Hi...
I'm new to this but want to see if anyone out there has gone through this. My son had congenital scoliosis that we have been following since birth (Vater Syndrome). True to the Doctors word when he went through puberty the curves got very large very quickly. He had to have 12 vertebrae fused with 15 inch rods. He had this surgery on June 27th and did incredibly well. We were home from the hospital in five days.
However after the surgery he had very little appetite-we thought from the pain meds. Then on his fourth day home he began vomiting profusely. They ran a bunch of tests-upper GI, CatScans, etc-and they think due to the surgery and his weight loss he has Superior Mesenteric Artery Syndrome (where the artery creates a blockage at the doudenum).
We have been hospitalized twice in the past 3 weeks since the surgery, his weight at 5'7' has gone from 105 ot 88 pounds and now he is home with an NJ tube and we are feeding him via pump at night to get a weight gain. He still can handle very little by mouth (popsicles, gatorade).
Kevin has been a healthy kid other than his scoliosis since he was four (prior to that he had a tracheostomy).
School starts in two weeks and I was wondering if anyone else has been through this. The Doctors say they "think" if he gains weight it will resolve the problem. He's depressed he's not going to be able to start school with his friends and we are frantic as we can find no one else who has gone through this. PS His back surgery looks great and has caused him very little discomfort after the first five days.
I'm new to this but want to see if anyone out there has gone through this. My son had congenital scoliosis that we have been following since birth (Vater Syndrome). True to the Doctors word when he went through puberty the curves got very large very quickly. He had to have 12 vertebrae fused with 15 inch rods. He had this surgery on June 27th and did incredibly well. We were home from the hospital in five days.
However after the surgery he had very little appetite-we thought from the pain meds. Then on his fourth day home he began vomiting profusely. They ran a bunch of tests-upper GI, CatScans, etc-and they think due to the surgery and his weight loss he has Superior Mesenteric Artery Syndrome (where the artery creates a blockage at the doudenum).
We have been hospitalized twice in the past 3 weeks since the surgery, his weight at 5'7' has gone from 105 ot 88 pounds and now he is home with an NJ tube and we are feeding him via pump at night to get a weight gain. He still can handle very little by mouth (popsicles, gatorade).
Kevin has been a healthy kid other than his scoliosis since he was four (prior to that he had a tracheostomy).
School starts in two weeks and I was wondering if anyone else has been through this. The Doctors say they "think" if he gains weight it will resolve the problem. He's depressed he's not going to be able to start school with his friends and we are frantic as we can find no one else who has gone through this. PS His back surgery looks great and has caused him very little discomfort after the first five days.
Comment