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Thread: does anyone have hereditary scoliosis?

  1. #16
    Join Date
    Sep 2006
    Posts
    13
    Hi - i was interested to read this. On telling my mother that Kaitlin had been diagnosed with scoliosis her first reaction was "well no one in our family has it" (isn't that just typical??). A few weeks later she told me she found out that my cousin's daughter has it and then she found out that her own brother had it and had to wear a leather brace (or corset he called it) as a child which she had forgotten about. So yes i suppose it is in our family. I recently had an appt with the physio and she told me i have a very mild curve as well (I am 40), funny because i was screened in year 7 and have also had many chiro and physio appts over the years and no one ever mentioned it, i don't have the best back in the world either.
    Our surgeon is rather blunt and first question was "anyone in the family with a crooked back"?
    Mind you there are some far far worse things she could have inherited so we have to be happy this is something that can be fixed. Melinda.

  2. #17
    Join Date
    Apr 2006
    Location
    Toronto, ON - Canada
    Posts
    2

    Hereditary Scoliosis

    I was diagnosed with Scoliosis at the age of 12. My first visit with a Scoliosis specialist was back in 1978 at The Hospital for Sick Kids in Toronto to see Dr. Bobechko.
    I am 40 years old and recently discovered that my paternal grandmother had Scoliosis. On my Mother's side of the family however I have three cousins, each one having one child diagnosed with Scoliosis ranging in age of 14-20 years.
    Most back specialist/surgeon that I have visited in the past few years have asked if anyone in the family has this condition.
    I believe there may be some proof of this condition being hereditary.

  3. #18
    Join Date
    Feb 2010
    Location
    Texas
    Posts
    1
    Hi there.
    I'm new.
    I went to an Urgent Care Er Tuesday Evening for possible Kidney problems and a UTI.
    They did xrays and CT scans and on the report they said I have Lumbar Levoscoliosis.

    My background and family history is complicated.
    My biological parents died in 1985 when I was barely 2 yrs old.
    My Sister and I were in foster care for about 3 yrs and then were adopted.
    Our biological Father was married twice before our mother.
    I have 3 half sisters and 1 half brother.
    One full blooded sister.

    Two of my half sisters are twins and are in their mid 30's.
    They both have scoliosis.
    Now I've been diagnosed @ age 26
    My Full blooded sister has always had a hump at the top of her neck where it seems the top of her spine connects to her skull.
    Now that I think about it, she's had it for a long time, it's not huge, but is noticeable when she has her hair pulled up, she just turned 31, so i am thinking she has a large degree curve form of scoliosis.

    My oldest half sister has three children, and it in her late 30's, but not sure if she has it or not.
    Also, I don't know if my half brother had it, he died in 1994 at age 24 from an epileptic seizure and a heart attack from hereditary heart disease.

    Now that I know it seems to run in our blood line, I'm worried my 7 yr old son, and two daughters, ages 5 and 3 are at risk.
    They already have the odds against them because their father, my husband, was born with Hydrocephalus (fluid around the brain) and spina bifida (exposure of spine and nerve endings), but luckily they didn't inherit those two genes and were born with no defects.
    I would never wish the pain and heartache my husband has had to go through his soon to be 33 yrs of life.

    I am not sure if this helps the mother, then child getting scoliosis, but that is where I am at right now, to see if i passed this on to my kids.

    Hugs,
    Debbie

  4. #19
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,145
    Welcome Debbie. Only my maternal grandmother had scoliosis in my family. And it was only mild and was untreated. I have two daughters who didn't inherit it and I now have three tiny grandaughters who I'm keeping an eye on.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  5. #20
    Join Date
    Nov 2007
    Location
    Houston, TX
    Posts
    1,757
    Quote Originally Posted by DebbiePoynter View Post
    Now that I know it seems to run in our blood line, I'm worried my 7 yr old son, and two daughters, ages 5 and 3 are at risk.
    They already have the odds against them because their father, my husband, was born with Hydrocephalus (fluid around the brain) and spina bifida (exposure of spine and nerve endings), but luckily they didn't inherit those two genes and were born with no defects.
    Debbie:

    Hydrocephalus is only a true genetic defect in the case of X-linked hydrocephalus. It's typically a *symptom* of something else, and it is frequently found with spina bifida (a neural tube defect, I'm sure you know).

    According to ASBAH, the risk of a SB parent having an SB child is 3%. The alpha feta protein test (given to pregnant women at 16 weeks) is a fairly definitive one. I don't think many people are surprised to give birth to a child with spina bifida these days.

    I developed communicating hydrocephalus at age 10 (right after my scoliosis was discovered) - independent of any other identified condition. Remarkably, after a month of sustained intracranial pressure (estimated at 5-7x normal) there is no evidence of damage. Not even in my eyes - which actually crossed (total 6th cranial nerve palsy) and had near total bilateral retinal hemorrhages.

    Pretty amazing.

    My VP shunt, never revised, will be 31 years old this year.

    Is your husband shunted?

    Regards,
    Pam
    Fusion is NOT the end of the world.
    AIDS Walk Houston 2008 5K @ 33 days post op!


    41, dx'd JIS & Boston braced @ 10
    Pre-op 53, Post-op < 20
    Fused 2/5/08, T4-L1 ... Darrell S. Hanson, Houston


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