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  • #31
    Originally posted by sportsdoc

    but before I leave..it'd really like to know..from Linda if she's never done what I've acused her of doing on the other post..not from you Karen...you don't have access to her private messages do you? I've had pm from several people regarding exactly that..

    she knows what she had done and there are others reading this thread...so i don't think she'd lie...i'll take her word for it...either way...
    Want to finish that thought? I have no idea what you're asking.

    Originally posted by sportsdoc
    btw, karen, would someone urging another to not trust their current physician or urging someone to forgo their physician's recommendation and give alternate options constitute medical advice or just friendly chitchat??
    telling someone to see specialist is one thing...to overrule another physician's diagnosis or treatment protocol is quite another...in my opinion that is...
    I know about what you're referring here. It's really convenient that the person to whom you're referring deleted all of her posts. She gave me quite a few red herrings (that she had over 100 x-rays at one appointment, that her surgeon was going to use an implant system that is not approved for, nor even recommended as useful for scoliosis by the manufacturer) that made it sound like her doctor was doing something dangerous. I have since checked it out, and as I say, those statements were red herrings.

    Don't flatter yourself that you're the only one who gets PMs.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

    Comment


    • #32
      Linda, why not just say my name instead of beating around the bush?
      When did I say I had over 100 xrays at one visit? I said I had 45 xrays that day. 45 shots because of the hard angles he asked for before my surgery.

      And I deleted my posts because of your hostility towards my treatment and your constant badgering of what I was posting.

      And yes, of course, you checked into it, as always. You have your surgeon friends whom you consult on almost every single person who posts here.
      You always ask who the surgeon is.
      Every new person who posts, you ask, "And who is your surgeon?"

      Why do you do that? Do you know every single surgeon in the whole country? Do you think you have that right to ask so many questions of people?


      And oh of course, red herrings. You have no idea exactly what my surgery entailed unless of course you have been in contact with my personal surgeon and if this is the case, my private medical information has been breached.

      God Linda, you just don't get it.
      You are always offering up medical advice, offering your opinion on every person who posts here, speaking with surgeons about people here. You have no right to do that.
      That is why I deleted my posts Linda. You were talking my case over with people whom I don't know, didn't ask you to talk to them on behalf and think that somehow you were being helpful.
      It wasn't helpful at all.
      I was facing very complicated surgery and trying to see if other people had been through what I was facing and instead of being supported and answered by other patients, I was given medical advice from someone who had no business doing that.
      36 year old single mom of teens ages 14 & 15.
      Anterior/posterior spinal fusion on February 9th & 16th 2006 with Dr. Anthony Moreno who now has his own practice.
      Fused from T-3 to S-1 (sacrum)
      Curve pre-op = 70 degrees
      Curve post op = 20 degrees
      No pain anymore!!
      Google is your friend

      I am not a doctor and will never give medical advice. I will support and answer questions from personal experience only.

      Comment


      • #33
        Originally posted by Karen Ocker
        The fact that your name on the forum is "sportsdoc" seems like it's meant to give the impression the YOU can give medical advice or that YOUR info is more valid that anyone else. This can mislead forum participants to thinking this forum has its own "sportsdoc" giving valid advice. This is dishonest and a disservice to scoliosis patients and families. Could there be other motives like acting as a referral service to your friends or to unproven therapies playing on patients/parent fears?

        If your are are sportsdoc then come clean and tell us if you are an orthopedic surgeon specializing in sports injuries, a dentist, a urologist, an eyedoctor.

        Therei s nothing you have posted so far that impresses me both as a scoliosis patient or professionally .
        karen...let me let you in on a little secret...I'm a chiropractor as i have hinted in many many posts..i treat a lot of sports injury..my clinic is rehab based and we do sports rehab...i've taken one year post doc course on rehab on sports injury and continue to do CE every year on the very subject.....

        so my nick is as accurate of discription as possible..
        don't you think I would have used scoliosis doc if I wanted some extra weight here??

        and I have no intention to impress anyone here..as I said on the other post, i'm here to learn rather than teach anything..

        and as for referal services and playing on fear..that's what I thought Linda was doing...she's just very fond of her doctor isn't she??

        Why don't you do this..click on my id and get all the post..give me an example of me playing on other people's fear...there aren't that many posts..so should be easy...

        I have a busy clinic of my own..i have no time to waste promoting other people's..between my clinic and family, extra time is spent in church..i come to this forum between patients...not everyone has time to waste...
        nor do I even want to promote my clinic..i certainly want to remain as anonymous as possible...

        but I have to wonder though...is that your purpose here? or Linda's? I certainly see a lot of promotion for Linda's surgeons..I haven't read many of your posts...I think if anyone's guilty of any motivation of that nature, it's Linda...it's ironic that you guys are assuming others of such action isn't it??
        An important scientific innovation rarely makes its way by gradually winning over and converting its opponents: it rarely happens that Saul becomes Paul. What does happen is that its opponents gradually die out, and that the growing generation is familiarised with the ideas from the beginning.

        Max Planck (the founder of Quantum Physics)

        Comment


        • #34
          Interesting... I almost never post anything about my scoliosis surgeon. Where did you see me promote him other than here:

          http://www.scoliosis.org/forum/showt...ight=john+gray
          Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
          ---------------------------------------------------------------------------------------------------------------------------------------------------
          Surgery 2/10/93 A/P fusion T4-L3
          Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

          Comment


          • #35
            Don't flatter yourself that you're the only one who gets PMs
            you must be kidding..lol..this board must be your whole life...to even think that way ...that is really sad...
            there are people out there that don't think much of a forum message...

            as for that 45 x-ray thing katblack has mentioned...
            I don't really want to defend another physician...but I see that quite often..
            physicians do not take x-rays..heck ..they not even in the same room with you.....x-ray techs do that.....depending on their experience level, patient's anatomical variation, and the region one's x-raying, taking the right shot takes a bit of adjusting after each shot...
            sure 45 is excessive..but not being there yourself, how would you know this physician was at fault? He could have merely ordered the shot, and when seeing that the film didn't get what he wanted, he may have order another shot...all he could've seen was just end results of serious of shots...when face with major surgery, I'd think getting exactly the right should would be called for..or do you think proper protocol is call it at 10 and just to blindly??
            ..but you wouldn't know that would you??

            as far as modifications of the uses of the implants..I'd think that's a sign of good surgeon..to be able to use what he's got and be creatively solve problems...there are surgeons and there are surgical technicians...
            that's just my classificatin..surgical technicians can only perform ones taught by someone else and only that...true surgeons can adapt to different situations...in every profession there are levels of skills and orthopods aren't exeptions..you'll be surprised how many orthopods advertising as spine specialists are not even board certified...

            sure he could've been a complete quack...but what would you know about that? You do not have enough understanding to call the shots on what other's need to do..red herring or not..you have no idea what was going through that surgeons mind..

            Do you think being on the other end of scalpel makes you an expert in spine surgery?
            An important scientific innovation rarely makes its way by gradually winning over and converting its opponents: it rarely happens that Saul becomes Paul. What does happen is that its opponents gradually die out, and that the growing generation is familiarised with the ideas from the beginning.

            Max Planck (the founder of Quantum Physics)

            Comment


            • #36
              why this forum???

              I have to wonder though...is that your purpose here?
              --(sportsdoc referring to me)


              My purpose here is to encourage others that help is available especially adults but also parents. My parents were advised to let me stay crooked(100deg) and get educated.

              When I was a teen going through this my parents had absolutely no idea what to do or where to go. My godmother heard of a spine specialist in New YorK City where I lived named Dr. Cobb. He did my original surgery which got a modest correction and enabled me to live a normal life until middle age.

              When I developed breathing trouble at age 59 no one seemed to know what to do except do cardiac tests-which were normal but indicated my 30-80-40 deg curves were pressing on my lungs. My personal physician is a well respected osteopath who gave me no suggestions. I was faithully doing Pilates but my curves were increasing as I had no hardware .

              I participated in the previous NSF forum where Linda suggested I see a revisionist since most orthopedic surgeons throw up their hands when they see a fused spine. I never even knew there was such a surgeon. This suggestion literally saved me time, money and possibly my life. I began to ask around about the experiences of various patients and I also contacted espine and got some names from Dr. Pashman.

              With my revision, I got my life back and am pain free(and working) at nearly age 64. I got a 50% correction which is spectacular for an old stiff spine.
              I didn't waste time going to people who were not likely to help me.

              You have to give patients credit for their intelligence. Patients are more educated today, have access to sophisticated info and don't want to waste their time. They don't want false hope. We also have a gut feeling about doctors and have the right to ask anyone's opinion about other points of view. We are paying the doctor's salary and want results. Talking with other patients going through the same thing is comforting and helpful. Don't denigrate it.

              My suggestion is if someone does not like this forum leave and start your own.
              Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
              Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

              Comment


              • #37
                To all Scoliosis members,

                I am very disturbed by all of these post.

                I would like to share my reasons for joining this website. I did not have any knowledge of this website before my surgery and found it only after 1 1/2 yrs post op. I had no one to talk to about what was considered normal and what wasn't considered normal. If you are reading this post and you are pre-op or currently going through post-op you should consider yourself fortunate to have found this site. I wish I had been as lucky...it sure would have saved me a lot of worrying and wondering about pain, if my recovery period was about average for my age, it would have given me tips to help me through recovery and I could go on and on. I think we need to get back to the basics.

                I think that people come to this website for many different reasons. Some come to get encouragement only. Some want the truth about the surgery and the recovery and nothing but the truth...they don't want anything sugar coated. Some come to vent their frustration about pain, lack of flexibility, frustrations about recovery etc...they aren't necessarily wanting answers, just wanting to vent which is therapeutic to them. Some just want to find out little golden nugget tips to help with their recovery. Some want advice about whether to get surgery sooner or later. Some want to post the different opionions from several doctors and wants to gather other peoples thoughts to help them sort through the decision of which procedure is best. Some come to get the "scoop" good or bad on the surgeons they are considering. Some just come to read, never join and never post. In fact, each night I see that there are actually way more guests than members on-line.

                For whatever reason we each come to this website, we should understand that it is the internet. You are exposing things about yourself whether you have an on-line name or you use your real name. When you post you should expect to get a response. We are all humans and we can't detect from your post how you are feeling emotionally and what we might say that will upset you.

                For me personally, when I see the 1,943 post from Linda Racine I know that she has been around for a LONG time. Then I realize if she has posted 1,943, just how many post has Linda read! I would say thousands and thousands. So, with that said when I see a post from Linda I believe in my heart she DOES probably have more knowledge of Scoliosis than anyone else on this board. In my opinion, she has probably read about every imaginable pre-op and post-op problem there could possibly be. So, I trust in all her post and all her reading of post that she is pretty much on target. I am thankful beyond words that Linda has "connections" with spine surgeons. We will all benefit from her being able to find out their opinions. Without this message board I have only one surgeon I can contact and that is it. How about all of you?

                Linda's only objective is to help each of us search and find out as much as possible about our situation.

                Kat Black...it use to be a quiet place to come for encouragement, help, advice and opinions. I'm sorry that you have felt like Linda betrayed you. Linda doesn't even know if Katblack is an on-line name or your real name(none of us do). I'm sure when she enquired about your procedure the doctor didn't say, "what is the lady's name", before I can telll you my opinion. The doctor could have cared less he was just answering questions that I'm sure Linda ask him from time to time. Your confidentiality was not exposed. I will be happy for Linda to ask any of her surgeon friends about any problem I have...I think most feel the same. Kat, I'm sorry to have to write this...I've held off for a long time...you owe Linda an apology and then please let's move on and focus on what we all came here to do.

                Kindest Regards,
                Gail

                Comment


                • #38
                  Kat Black...it use to be a quiet place to come for encouragement, help, advice and opinions. I'm sorry that you have felt like Linda betrayed you. Linda doesn't even know if Katblack is an on-line name or your real name(none of us do). I'm sure when she enquired about your procedure the doctor didn't say, "what is the lady's name", before I can telll you my opinion. The doctor could have cared less he was just answering questions that I'm sure Linda ask him from time to time. Your confidentiality was not exposed. I will be happy for Linda to ask any of her surgeon friends about any problem I have...I think most feel the same. Kat, I'm sorry to have to write this...I've held off for a long time...you owe Linda an apology and then please let's move on and focus on what we all came here to do.

                  Kindest Regards,
                  Gail
                  I'm sorry you feel that way.

                  I will not apologize for my feelings or what has taken place.
                  I was brought up today. I was mentioned. I didn't even post anything bad or harmful or negative in a long time, but I was brought up.
                  I have been trying to post positive messages, positive responses to people since my surgery. Someone asked me a question about the bone stim and I answered from personal experience. I post from personal experience only or answers readily available on the net.
                  I have been trying to be helpful yet I was attacked today.
                  I had a right, IMO, to defend myself.

                  I'm sorry you can't see that.

                  Oh, and my name is Kat Cooper. I live in Sarasota Florida.
                  I am very real with very real feelings, thoughts and ideas.
                  36 year old single mom of teens ages 14 & 15.
                  Anterior/posterior spinal fusion on February 9th & 16th 2006 with Dr. Anthony Moreno who now has his own practice.
                  Fused from T-3 to S-1 (sacrum)
                  Curve pre-op = 70 degrees
                  Curve post op = 20 degrees
                  No pain anymore!!
                  Google is your friend

                  I am not a doctor and will never give medical advice. I will support and answer questions from personal experience only.

                  Comment


                  • #39
                    My suggestion is if someone does not like this forum leave and start your own
                    Are you implying this is Linda's forum and one should leave if they don't agree with her?? By far..most people on this forum have been gracious and very kind...I don't have problem with this forum at all as a whole...

                    Linda...yeah..you only used John Gray once...but try doing search on just Gray..you mentioned him a few more times..

                    and i haven't been here that long..but there's been several instances you've tried to push your surgeon but didn't get as far as naming him...

                    Gail, reading posts and managing a complex medical case is quite different. I don't care how many posts Linda has read..she's still not qualified to give medical advice...both by qualification and legally...just as reading medical texts all one's life doesn't qualify one to practice medicine..what you get on this forum is patient's version of what had happened..let me assure you...patient accounts of what had actually happend to them is rarely accurate..both because it's subjective and opinion of someone who doesn't have understanding of the process..noone's saying anything about suggesting "other options", sharing one's knowledge or experiences..as you stated that is the purpose of this forum I believe.....

                    What's important is that one does not cross the line especially when there are people who can be easily influenced..


                    Karen..you seem to have a lot of pent up issues...but what that has to do with me..i have no idea...

                    Linda...back to you..did you ever see me promote my practice? Or other doctors? Only time I mentioned any other doctor's name was with patients who were being treated by them...you and karen seems to have assumed the worst of me for less indications than you have given yourself...

                    Karen ...is that from your gut feeling?? I think it's about time you start distrusting your gut feeling...

                    well..back to my family...g'nite all..
                    An important scientific innovation rarely makes its way by gradually winning over and converting its opponents: it rarely happens that Saul becomes Paul. What does happen is that its opponents gradually die out, and that the growing generation is familiarised with the ideas from the beginning.

                    Max Planck (the founder of Quantum Physics)

                    Comment


                    • #40
                      Posts in which I mentioned the name of John Gray:

                      http://www.scoliosis.org/forum/showt...ight=john+gray
                      http://www.scoliosis.org/forum/showt...ight=john+gray
                      http://www.scoliosis.org/forum/showt...ight=john+gray

                      Please note that two of the posts were in response to other users asking about Dr. Gray. I hardly see that as pushing him upon others. I'm guessing that many people have mentioned the names of their surgeons quite a few more times. If Gail's correct about the number of posts that I've made, that's about 0.15% of the time.

                      I was brought up today. I was mentioned. I didn't even post anything bad or harmful or negative in a long time, but I was brought up.
                      Kat, I'd like to remind you that had you not responded to my post, no one would have had a clue, other than Sportsdoc and myself, that I was talking about you.

                      When you post on a public forum, I don't think you can expect any right to privacy. Anyone who has access to the internet could have read everything you said. Talking to someone else about what you posted was not, in my opinion, breaching anyone's privacy. You sent PMs to Sportsdoc about me about things that I posted. Did that breach my privacy? Nope.

                      I understand that you two dislike me. That's the penalty I pay for being so vocal. I'm not going to lose any sleep over it. You're not the first two, and you certainly won 't be the last. I think you might have better ways to spend your time than continuing to do this.

                      --Linda
                      Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                      ---------------------------------------------------------------------------------------------------------------------------------------------------
                      Surgery 2/10/93 A/P fusion T4-L3
                      Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                      Comment


                      • #41
                        linda..do you always play the victim?
                        that you are hated by someone for your pure intent?
                        it's you disliking other's first..judging them with your own standards...whatever that maybe..
                        I certainly didn't know who you were until your hostile remarks..
                        how fair you are...eh??
                        An important scientific innovation rarely makes its way by gradually winning over and converting its opponents: it rarely happens that Saul becomes Paul. What does happen is that its opponents gradually die out, and that the growing generation is familiarised with the ideas from the beginning.

                        Max Planck (the founder of Quantum Physics)

                        Comment


                        • #42
                          You just don't get it Linda and sadly, I don't think you ever will.
                          It would be so great if you could just acknowledge my feelings, understand that what you did and said in those weeks prior to my surgery affected me, maybe we'd be able to move past this.
                          Instead of being supported, I was badgered.
                          I never asked for advice or a second opinion. I just wanted support and encouragement and to know if anyone had been through what I was facing.

                          You just can't accept that you have done anything wrong.
                          I know what I did. I lashed out at you over those things and caused a commotion on these forums which I apologized for.
                          I just want you to acknowledge how your doubts affected a person going into something as major I was.
                          Everyone respected and trusted you and here you were, doubting my treatment.
                          Instead of encouragement, I was fearful and it turns out I had no reason to be what so ever.

                          For all the advice and suggestions you hand out, you should take your own sometime.
                          I think you might have better ways to spend your time than continuing to do this.
                          36 year old single mom of teens ages 14 & 15.
                          Anterior/posterior spinal fusion on February 9th & 16th 2006 with Dr. Anthony Moreno who now has his own practice.
                          Fused from T-3 to S-1 (sacrum)
                          Curve pre-op = 70 degrees
                          Curve post op = 20 degrees
                          No pain anymore!!
                          Google is your friend

                          I am not a doctor and will never give medical advice. I will support and answer questions from personal experience only.

                          Comment


                          • #43
                            Karen,
                            Thank you......very well said
                            SandyC

                            Comment


                            • #44
                              I'm sorry.. i have to speak up in support of Linda and Karen here ... and the others whose intent is to help those with questions and needs. Neither of them have ever claimed to diagnose conditions or prescribe treatments. They have both been very level-headed in their responses when i would panic over something. Their common-sense SUGGESTIONS led me to seek help from my dr when it was needed.. and calmed me down when what i was experiencing was normal.

                              These negative posts from Katblack and Sportsdoc are upsetting rather than helpful... From the beginning readers could sense an antagonism from Katblack in challenging anything that Linda said to the point that i tried to ignore all her posts... I refused to respond to someone who was 'looking for a fight'. I have questioned myself some of the posts i read... i DO remember the comment about over 100 x-rays in one visit...Too many things just haven't added up for me to believe.

                              I wonder why anyone would act as though their surgery was harder/bigger/worse than anyone else's thus making them more important...
                              The purpose of this forum is not a contest of who wins for enduring the most... but to help and advise those who need it.

                              I thank Linda for helping establish this forum for us... and for moderating it. It has been a lifeline for me in many ways.

                              Comment


                              • #45
                                Kat, I do acknowledge that I undermined your confidence going into surgery. And, you can't imagine how awful I felt about that. What I'm saying is that none of that would have happened if you hadn't given me several red herrings.

                                Can we end this discussion if I just admit that I just don't get it? I'm fine with that.

                                --Linda
                                Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                                ---------------------------------------------------------------------------------------------------------------------------------------------------
                                Surgery 2/10/93 A/P fusion T4-L3
                                Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                                Comment

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