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Thread: recommendations New York City

  1. #1
    Join Date
    Jul 2005
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    6

    recommendations New York City

    I'm looking for any recomendations for health care providers, non surgical Orthopedists, physical therapists, yoga teachers in New York City. I've a fifteen year old daughter with 55% curve. I want to explore all options.

    BobG

  2. #2
    Join Date
    Mar 2005
    Location
    NJ across from NYC
    Posts
    329

    Yoga

    BobG, I've listed the Yoga Site that is in mid-town Manhattan, 42nd & 5th. I have been e-mailing them about my back and I plan to start Yoga there. They were recommended by the company I work for. Look at their site, very impressive.

    http://www.yogasutranyc.com

    I would also recommend you look into The Alexander Technique. I practice that faithfully and feel it has helped me tremendously. There are many AT teachers in New York City. My teacher, only practices in NJ now (good for me as I live in NJ and is able to continue with her). Here's a site that explains what it's about.

    http://www.alexandertech.net

    Good luck with your daughter. LYNN
    1981 Surgery with Harrington Rod; fused from T2 to L3 - Dr.Keim (at 26 years old)
    2000 Partial Rod Removal
    2001 Right Scapular Resection
    12/07/2010 Surgical stabilization L3 through sacrum with revision harrington rod instrumentation, interbody fusion and pre-sacral fusion L5-S1 - Dr. Boachie (at 56 years old)
    06/11/14 - Posterior cervical fusion C3 - T3 (Mountaineer System) due to severely arthritic joints - Dr. Patrick O'Leary (at age 59)

  3. #3
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    Jul 2005
    Posts
    6

    recommendations in NY

    Jacque's mom;

    Thanks for your tips. Looking into your suggestions. Have you heard of any teen support groups in NYC?

    Bob

  4. #4
    Join Date
    Mar 2005
    Location
    NJ across from NYC
    Posts
    329
    Bob, I don't know of any teen groups but perhaps Linda Racine might know. If she does, I'm sure she will post for you. Is your daughter in any pain? Hope all goes well. LYNN
    1981 Surgery with Harrington Rod; fused from T2 to L3 - Dr.Keim (at 26 years old)
    2000 Partial Rod Removal
    2001 Right Scapular Resection
    12/07/2010 Surgical stabilization L3 through sacrum with revision harrington rod instrumentation, interbody fusion and pre-sacral fusion L5-S1 - Dr. Boachie (at 56 years old)
    06/11/14 - Posterior cervical fusion C3 - T3 (Mountaineer System) due to severely arthritic joints - Dr. Patrick O'Leary (at age 59)

  5. #5
    Join Date
    Jul 2005
    Posts
    6

    Pain

    JACQUE'S MOM

    No pain, discomfort after walking for a long time.

    B

  6. #6
    Join Date
    Jul 2004
    Location
    Northern California
    Posts
    255
    Hi Bob, I just saw your post. There is a practitioner of Pneumex outside New York in New Jersey. Pneumex is something like physical therapy and traction put together; I consulted the New Jersey guy and he had a lot of teenagers in there and claimed to have had good results. (Not sure if this was with less than 55, which is quite large as you know.) You can look up info on the Pneumex website, or search things I've written here elsewhere using the search engine at the top of the page. I'd be interested to know what happens, if you follow this up. I was in Philadelphia and it was too far to travel, but I really wanted to continue myself. All the best. Laura
    30y/o
    Upper curve around 55
    Lower curve around 35

  7. #7
    Join Date
    Sep 2003
    Location
    NJ
    Posts
    1,291

    Pneumex

    I read the pneumex and understand medical lingo. I am not impressed. Might be a scam as far as I am concerned playing on the fears of desperate parents.

    Some studies cited were for spinal cord injuries and PT. The scoliosis "studies" do not show before and after x-rays and I am not sure about the curve severities because they talk about degrees of "shift". Also curve "corrections" are not shown to be followed up with X-rays for a time to see if correction is maintained. I saw many treatment dropouts.

    Chiropractic has NEVER been shown in any studies to correct curves, prevent progression in any permanent way. I had personal experience with that in the 6th grade.

    One practitioner's link in my state NJ, says it is not chiropractic but most of the practitioners are chiropractors so what are they practicing? Other practitioners are physical therapists or have no degree after their names.

    Physical Therapy(PT) does help muscle strength and improve posture but
    not correct significant curves PERMANENTLY.

    The cost can run $5,000-they say med ins can cover "portions" of the treatment depending on the policy.
    Buyer beware.

    Karen
    Last edited by Karen Ocker; 07-13-2005 at 05:02 PM. Reason: misspelling/more info
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  8. #8
    Join Date
    Jul 2004
    Location
    Northern California
    Posts
    255
    Hi Karen! I followed Pneumex up for myself less on the basis of the publicity and more because I spoke to three separate practitioners who claimed separately to have the same (good) results - one was a chiro and two were PTs, one in NJ (who actually had a PT administer the session), one is Baltimore, and one in LA. I wrote this up elsewhere on this site. There are a lot of scams around, I know; from what I saw and heard, my impression was that Pneumex might best stand a chance of helping teens with moderate (not severe) curves. Take care. I always enjoy reading your posts on the site. Laura
    30y/o
    Upper curve around 55
    Lower curve around 35

  9. #9
    Join Date
    Sep 2005
    Posts
    24
    Well i travel to eastern Europe to see a Back specialist he works with scoliosis and moves the bones in your back and goes all the way down to your feet. i did this when i was in 8th grade he had fixed my back but i grew taller and scoliosis came back but this guy had fixed my back in 2 weeks. My degree is 47 and they want surgury if it gets to 50 but i gotta pay my Doc a visit soon i got till feburary.

  10. #10
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    Quote Originally Posted by northlandmed
    Try Dr.Robert Berry @ (607) 535-7080
    Please note that this person is a chiropractor.

  11. #11
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    Mar 2006
    Posts
    1

    Postural Reconstruction

    Has anyone tried Postural Reconstruction?

  12. #12
    Join Date
    May 2005
    Posts
    776
    Has anyone tried Postural Reconstruction?
    what is it??

    gerbo

  13. #13
    Join Date
    May 2006
    Posts
    2

    Reply to Postural Reconstruction Question

    Quote Originally Posted by janmossphysio
    Has anyone tried Postural Reconstruction?
    My wife and I found a physical therapist in Montreal QUEBEC who is trained in postural reconstruction. We were taking our then 12 year old daughter from our home in New Jersey to Montreal about every weekend for 9 months in 2005. Unfortunately, finances prevented us from continuing, but her scoliosis was improving. Postural Reconstruction is based on a method developed by Francoise Mezieres and it is now taught at the University of Strasbourg in their medical school as I recall. My nephew was treated with Postural Reconstruction in Rome Italy where he grew up and he also benefited from treatment for his scoliosis. We would have gone to someone in the US but there is no one we could find who is certified in Postural Reconstruction in this country except for one therapist who was practicing on the West Coast.

  14. #14
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    Sep 2003
    Location
    NJ
    Posts
    1,291

    Question Results

    Did the good results obtained in your daughter and nephew remain? In other words were they permanent or did the curves come back?

    One problem with alternative means is lack of permanent results. Otherwise we would have a revolution in scoliosis care and the insurance companies would pay.

    Also practitioners around the world should duplicate these great results and demonstrate their permanence.

    I get very suspicious when individual groups/practitioners get good short-term (a few weeks/months) results touting THE ANSWER. Often it is very expensive and cannot prove long term(years) correction/stabilization of significant curves.

    If they CAN prove this why are they keeping the secret to themselves and not publishing(NOT ADVERTISING) it around the world to benefit others???!!
    Last edited by Karen Ocker; 05-03-2006 at 02:58 PM. Reason: grammar
    Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
    Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

  15. #15
    Join Date
    May 2006
    Posts
    2
    My nephew did not relapse and had a long (almost 2 year) treatment. My daughter's has and unfortunately, we were not able to afford the trips to Montreal to continue treatment.

    It is true that there are many questionable treatments for scoliosis as there are for many other disorders and diseases. Some treatments may work for some people and not for others. No doctor knows why bracing seems to work half the time and fails the other half of the time which begs the question of whether it actually does anything the other half of the time or it is just coincidental that the patient is wearing one and improves.

    The reason there has been no revolution in scoliosis treatment is the same reason that there has been no revolution in healthcare. If physical therapists could successfully treat scoliosis even 1/3 of the time, then surgeons and hospitals would have that much less to do and bill us for.

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