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Thread: Disc Degeneration - Need Dr in Ontario

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  1. #1
    Join Date
    Jun 2005
    Location
    Waterloo, ON
    Posts
    8

    Disc Degeneration - Need Dr in Ontario

    I'm so glad I've found this web-site!! I thought I was alone out there. I had CD rods (similar to Harrington rods) and fusion in January of 1986 the full length of my back, with 2 vertebrae at the bottom remaining unfused to give me mobility. This corrected my scoliosis and has given me almost 20 years of a wonderful life, practically pain-free. My Dr., John Kostiak moved from Toronto, Ontario to Johns Hopkins Hospital in Baltimore shortly after my surgery, leaving me with no one to go to for check ups.

    Recently, now at age 50, I've been having tingling in my left leg, and lower back pain when doing almost anything. X-rays have shown forward sliding disc of L5 in relation to S1. There is narrowing of disc space from L2 to S1. I have mid-lumbar rotoscoliosis, and moderate disc degeneration from L2 to L5 and advanced from L5 to S1. (this is all from the x-ray report, don't know what it really means...) Has anyone had similar problems? I've been reading the web-site and wonder if artificial disc replacement works. Or any other experiences or advice?

    And here's a question that I need help on quickly. Does anyone know of a good doctor in Southern Ontario? I've been waiting over a month for my family doctor to refer me to someone. There is an Orthopedic Clinic in London Ontario but the waiting list to even get an appt. is unreal. And who knows if they even have a scoliosis specialist at that Clinic? (oh the traumas of Canadian Healthcare...) Thanks to anyone who responds.

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Hi Carol...

    I'm going through similar problems. :-( I have an appointment on July 13th to discuss the possibility of extending my fusion.

    There's another discussion on one of these forums about Dr. Stephen Lewis in Toronto. He's got excellent credentials, and has confirmed that he routinely treats patients with prior scoliosis fusions.

    Best of luck in finding someone to help.

    Regards,
    Linda

    P.S. For the record, C-D rods aren't all that similar to Harrington rods. Harrington rods were attached to the spine (usually without any bends) at the top and the bottom. C-D rods were the first of what are classified as universal rods, which are still pretty much the gold standard. Universal rods are attached at various levels to the spine, and are bent to match the normal kyphosis and lordosis of our spines.

  3. #3
    Join Date
    Jun 2005
    Location
    Waterloo, ON
    Posts
    8

    Response - C-D rods

    Thanks Linda for the info. I'd be interested to know what your doctor recommends after your visit July 13. And thanks for the tip on Dr. Lewis in Toronto. I'm going to follow up on that.

    As for the difference between C-D and Harrington rods, I find that quite interesting. No one has ever explained it to me. My surgery was to correct a 54 degree upper and 46 degree lower curve when I had the surgery done in 1986. In my teenage years I wore a Milwaukee brace which slowed down the curve somewhat. But after 2 pregnancies in my 20's the curves developed more significantly. So I'm pleased with the C-D rods thus far, only the disc degeneration below the rods/fusion are where the pain is now.

    Best of luck to you too with your doctor.

  4. #4
    Join Date
    Apr 2005
    Posts
    913
    Hi Linda...

    I would like to ask you for your help in case you would know who is a good ortho in Montreal, Quebec, Canada. I know you are from the US and didn't want to bother you and didn't know if you had any info on Canadian orthos, but since you know about Toronto, I thought I'd give it a try. I think I'm seeing the best one, his name is Dr. John Ouellet, and my ortho that I've already seen is Dr. Gilles Maurais. I had surgery from Dr. Max Aebi who was considered to be one of the tops in the world, as he went back to Switzerland, don't know if you ever heard of him? But I know that could be just talk from the medical field.

  5. #5
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Hi...

    I couldn't find any educational references for Dr. Ouellet. It did seem that most of what I found referred to Dr. Ouellet as a pediatric surgeon. So, you might want to check to be sure he's got enough experience in adult revision surgery.

    I also found this list of of Members of the Quebec Scoliosis Society. Thought it might be a useful resource:

    Max Aebi, M.D.
    Vincent Arlet, M.D.
    Thierry Benaroch, M.D.
    François Cabana, M.D.
    Marie-Andrée Cantin, M.D.
    André Desjardins, M.D.
    Julien Dionne, M.D.
    Morris Duhaime, M.D.
    François Fassier, M.D.
    Roger Gallien, M.D.
    André Ghibely, M.D.
    Guy Grimard, M.D.
    Stéphane Guay, M.D.
    Reggie Hamdy, M.D.
    Chantal Janelle, M.D.
    Peter Jarzem, M.D.
    Alain Jodoin, M.D.
    Hubert Labelle, M.D.
    Gaétan Langlois, M.D.
    Patrick Loisel, M.D.
    Dante Marchesi, M.D.
    Gilles Maurais, M.D.
    Alain Moreau, Ph.D.
    Pierre Mercier, M.D.
    Patrice Montmigny, M.D.
    Benoit Morin, M.D.
    Nicholas Newman, M.D.
    Jean Ouellet, M.D.
    Benoit Poitras, M.D.
    Charles-Hilaires Rivard, M.D.
    Jean Rousseau, M.D.
    Jean-François Roy, M.D.
    Constantin Stanciu, M.D.
    Thomas Steffen, M.D.
    Chantal Théorêt, M.D.
    Yvan St-Cyr, M.D

    I honestly know very little about Canadian specialists. Sorry that I couldn't be of more help. Best of luck in finding the right surgeon.

    Regards,
    Linda

  6. #6
    Join Date
    Apr 2005
    Posts
    913
    Thank you for that list Linda, and yes I just found out two days ago that Dr.Ouellet was a pediatric surgeon and he has replaced Dr.Max Aebi who was my surgeon, so I will check out what he's about, and compare him to my ortho, Dr. Maurais

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