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  1. #1
    Join Date
    Jun 2005
    Posts
    3

    Need information on Infantile scoliosis

    Hello Everyone,

    This is my first message and introduction mail for this forum. Myself is Sanjay Malik and i belong to India. My son who is now 11 months, was born with scoliosis and couple of other bony deformaties.

    It was noticed at the time of his birth that he does not appear to be a normal baby, there were some bony deformities visually apparent e.g. CTEV on the right / left feet and extra digit with left little finger (which was removed on 2nd day). He had weak thumb in left hand.

    There was bend in the spine hence the doctors took an X-ray and did the ultrasound just to avoid any other deformity.
    It was analyzed in ultrasound that the child has crossed fused kidneys on left side. on further investigation, it was found that both are working and nothing to be done for it.

    After analyzing the X-Ray, they found out multiple hemi vertebras in spine in cervical, thoracic and lumber regions. with curve bending upto 55 degrees. the second X-ray (when he was 6 months old) showed little improvement and the curve reduced to 34 degree. Now it seems that it is increasing again as the he now started to sit by himself ( he is due for another x-ray in july)

    Right now, we are visiting an orthopedic consultant and POP cast was applied was almost 7 months, then the surgery of the right feet is done just 2 weeks ago under supervision of this consultant. The surgery for the left feet is due in next 2 weeks time.

    I leant from some web information that exercise could help, so if someone can please let me know, if they had similar case? what they did and what did helped them most?

    lastly, if someone can suggest me any clinic / hospital / doctor specialized in scoliosis in INDIA.

    Regards,


    Sanjay Malik

  2. #2
    Join Date
    Oct 2003
    Location
    Utah
    Posts
    1,010
    Hi Sanjay,

    I posted to you under the Waiting and Watching section. Let me know how things are going.
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

  3. #3
    Join Date
    Mar 2004
    Posts
    1,140
    Hi Sanjay,

    I posted this on another thread:

    Did your son's curve resolve on its own to 34 degrees ? Was there anything you did to help him along ? Was he placed in a POP jacket at seven months of age ? Sorry for all the questions.... I do know of a mother whose child has congenital scoliosis. Her daughter has been going to physical therapy for the longest time and the curve ( even though it's congenital ) has reduced from 45 degrees to 24 degree !!! If you like, I could put you in touch with her to find out what kind of exercises her daughter is doing. So far, your son is doing VERY WELL if his congenital curve has reduced from 55 to 34 degrees ! Unfortunately, I don't know of any doctors who practice in India.


    Celia

  4. #4
    Join Date
    Mar 2004
    Posts
    1,140
    Sanjay,

    I looked through the Scoliosis Research Society fellowship and I found one doctor who is a member that practices in India, I don't know if he's close to you.


    Ashok Johari, MD
    702 Dev Kripa, Mogul Lane
    91 22 24 223518/2437
    Off Sitladevi Road
    Mahim Mumbai 400 016
    India




    Celia

  5. #5
    Join Date
    Mar 2006
    Posts
    8
    Hello people i am sayma here,i'm from bangladesh and i'm the new member out here...
    My son have conginetal scoliosis and his curvature is 90 degree up now he is 7 n half yrs old and thats his medical report..

    X-Ray whole spine AP/Lateral with pelvis AP

    >There is dorsolumbar kyphoscoliosis.
    >Multiple conginetal anomalies are present at D11 D12 and L1-L4 vertebrae in form of butterflt,hemivertebra and left pedicles of L2-L4 vertebra are not seen.
    >Multiple conginetal anomalies of ribs are also present.
    >X-ray pelvis shows bones are normal and bilateral hip joints are also normal.

    His MRI findings are suggestive of conginetal anomaliy of the dorsal lumbar vartebrae with kyphoscoliosis. No significant anomaly of the cord.

    And I have been seeing All India Institution of Medical Science for my son since 1 and half year. And they said to do the operation. But I am not quiet sure that I will do my son's operation in AIIMS because I am still in search of far better hospitals in India and I badly need you people's suggestion about the surgery.And 1 thing my son is not having any problems by having scoliosis its just that his height is not increasing that much.By the way what if I dont do the operation of my son will it cause harm to him?Please reply ASAP!!
    Thank you!
    Sayma..

  6. #6
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    Hello Sayma,

    Welcome to the forum. While my son was diagnosed at a young age as well, his was not congenital scoliosis. He is also 7 years old.

    However, there are some folks here (Carmell, in particular, comes to mind) who I'm sure could offer you some very good advice to start. I don't know much about the medical care that is available to you in Bangladesh, but it is so important to find the right pediatric orthopedic surgeon that you feel comfortable with and whom you trust.

    Good luck to you. Keep checking back for responses as I'm sure someone more knowledgeable in congenital scoliosis will be happy to respond to you.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  7. #7
    Join Date
    Mar 2006
    Posts
    8

    conginetal kyphoscoliosis

    My son have conginetal scoliosis and his curvature is 90 degree up now he is 11 n half yrs old and thats his medical report..

    X-Ray whole spine AP/Lateral with pelvis AP

    >There is dorsolumbar kyphoscoliosis.
    >Multiple conginetal anomalies are present at D11 D12 and L1-L4 vertebrae in form of butterflt,hemivertebra and left pedicles of L2-L4 vertebra are not seen.
    >Multiple conginetal anomalies of ribs are also present.
    >X-ray pelvis shows bones are normal and bilateral hip joints are also normal.

    His MRI findings are suggestive of conginetal anomaliy of the dorsal lumbar vartebrae with kyphoscoliosis. No significant anomaly of the cord.

    And I have been seeing All India Institution of Medical Science for my son since 1 and half year. And they said to do the operation. But I am not quiet sure that I will do my son's operation in AIIMS because I am still in search of far better hospitals in India and I badly need you people's suggestion about the surgery.And 1 thing my son is not having any problems by having scoliosis its just that his height is not increasing that much.By the way what if I dont do the operation of my son will it cause harm to him?Please reply ASAP!!
    Thank you!
    Sayma..

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