Results 1 to 3 of 3

Thread: Need information on Infantile scoliosis

  1. #1
    Join Date
    Jun 2005
    Posts
    3

    Need information on Infantile scoliosis

    Hello Everyone,

    This is my first message and introduction mail for this forum. Myself is Sanjay Malik and i belong to India. My son who is now 11 months, was born with scoliosis and couple of other bony deformaties.

    It was noticed at the time of his birth that he does not appear to be a normal baby, there were some bony deformities visually apparent e.g. CTEV on the right / left feet and extra digit with left little finger (which was removed on 2nd day). He had weak thumb in left hand.

    There was bend in the spine hence the doctors took an X-ray and did the ultrasound just to avoid any other deformity.
    It was analyzed in ultrasound that the child has crossed fused kidneys on left side. on further investigation, it was found that both are working and nothing to be done for it.

    After analyzing the X-Ray, they found out multiple hemi vertebras in spine in cervical, thoracic and lumber regions. with curve bending upto 55 degrees. the second X-ray (when he was 6 months old) showed little improvement and the curve reduced to 34 degree. Now it seems that it is increasing again as the he now started to sit by himself ( he is due for another x-ray in july)

    Right now, we are visiting an orthopedic consultant and POP cast was applied was almost 7 months, then the surgery of the right feet is done just 2 weeks ago under supervision of this consultant. The surgery for the left feet is due in next 2 weeks time.

    I leant from some web information that exercise could help, so if someone can please let me know, if they had similar case? what they did and what did helped them most?

    lastly, if someone can suggest me any clinic / hospital / doctor specialized in scoliosis in INDIA.

    Regards,


    Sanjay Malik

  2. #2
    Join Date
    Mar 2004
    Posts
    1,140
    Hi Sanjay

    Did your son's curve resolve on its own to 34 degrees ? Was there anything you did to help him along ? Was he placed in a POP jacket at seven months of age ? Sorry for all the questions.... I do know of a mother whose child has congenital scoliosis. Her daughter has been going to physical therapy for the longest time and the curve ( even though it's congenital ) has reduced from 45 degrees to 24 degree !!! If you like, I could put you in touch with her to find out what kind of exercises her daughter is doing. So far, your son is doing VERY WELL if his congenital curve has reduced from 55 to 34 degrees ! Unfortunately, I don't know of any doctors who practice in India.


    Celia

  3. #3
    Join Date
    Mar 2004
    Posts
    1,140
    Sanjay,

    I looked through the Scoliosis Research Society fellowship and I found one doctor who is a member that practices in India, I don't know if he's close to you.


    Ashok Johari, MD
    702 Dev Kripa, Mogul Lane
    91 22 24 223518/2437
    Off Sitladevi Road
    Mahim Mumbai 400 016
    India




    Celia

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •