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Thread: Casting a baby?

  1. #1
    Join Date
    Apr 2005
    Location
    houston,texas
    Posts
    11

    Casting a baby?

    Hi,
    I'm new here and any info. would help?! My daughter,Riley, was born on 02/04/04 @ 32 wks., after 3 weeks of labor, she had thin ribs, floppy, a broken arm, breech, (she was emerg. c-section),came home on O2, in the NICU for 4mo., cont. misdiagnosed, severe scoliosis( from front to back & side to side), blood trans., tons of testing, a fundo, a feeding tube w/ night pump, bruised, etc....she was recently diag. w/ "central core disease" by muscle biopsy. We are sched. to get cast by ortho. on May12th. I was wondering if this would help fix, prevent, ???? anything? They want to cast her from under her arms down to the top of her hips. She is only 14mo. and it is terribly HOT here in Texas during May, June, & July!!!! They said she would wear it for 3mo. Has anyone been cast and did it help? Any help, advise, anything would be apprec. I'm a 1st time mom and this is all very scary.
    Thanks,
    Megan Gilbride

  2. #2
    Join Date
    Mar 2004
    Posts
    1,140
    Hi Megan,

    I read that your daughter has cental core disease, will they still anesthetize her for the cast given the risks ? If your doctor feels she would benefit from the cast despite her medical issues, I don't see any problem. Your doctor should be able to get very good correction with a cast. What degree curve does she have ? Who is your doctor ? Wearing a cast through a hot Texas summer does NOT seem ideal, nevertheless thank GOD for air conditioning !!!!





    Celia

  3. #3
    Join Date
    Oct 2003
    Location
    Utah
    Posts
    1,010
    Megan,

    I have a friend who has a 4yr old son with Central Core disease. She herself also has a milder form. I'd love to put you in contact with her, if you are interested. Her son also has kyphosis and scoliosis. She can give you LOTS of information based on their experiences. Oh, and Alex also has the anesthesia problem you mentioned - sounds very similar.

    Let me know if you are interested!
    Carmell
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc. http://carmellb-ivil.tripod.com/myfamily/

  4. #4
    Join Date
    Mar 2004
    Posts
    1,140
    Megan,

    I hope that casting will work for your daughter - we've had very good results with it. I've included the most recent standup x-ray of my daughter in the cast and for comparison purposes, I've also attached the original one.

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