Suzanne - I had surgery by Dr. Keim in 1981 at the age of 27! I too had no pain until 1997, then it started... I went to Dr. Errico at NYU Medical Center as he had my records from Dr. Keim. Initially he thought my spine moved again but it didn't after reviewing my past records. From then on, I was on a wild goose chase trying to find what the heck was causing the pain. In 2000, I eventually found Dr. Harvinder Sandhu at Hospital for Special Surgery in NYC who said my rod was loose and should be removed. I had never heard that rods can be removed. He was quite surprised that I still had it in my back. So I had the surgery with the intent of having it completely removed; turns out he only removed about 2.5 inches on the top as it was so fused to my spine. If need be, he would have removed it all but it would have taken hours on end. It took three hours to remove the 2.5 inches. It did help with the upper pain but not the cure all. I then had, four months later, part of my right shoulder blade removed as it was so uneven it was hitting my rib cage. HSS referred me to Columbia Presy. with Dr. Louis Biglianni, a shoulder surgeon. That did help quite a bit. After all that, I still had the hip pain that was just awful. I since went to pain management, and I am on meds that I will be on forever, but it's a miracle as I feel like a new person. I also practice "The Alexander Technique" which is also what saved me. Anyone with back issues should absolutely look into that technique. It is my salvation. I also walk on a treadmill as walking is my only form of exercise that doesn't hurt me. When I had my surgery in 1981, the one thing that stuck in my mind was Dr. Keim saying, watch your weight. I had lost 20 plus pounds being that awful body cast through the hot summer for nine months (doesn't that bring back memories?) and have since kept it off - that is truly a key in helping with the pain. Also by growing three inches as result of the spine straightening, boy I thought who I was! It was a great feeling back then. Isn't it amazing how the surgery is now? You are out of the hospital certainly is less time than when we had it done and with no body cast. That is truly amazing. Take care, LYNN
Last edited by Jacque's Mom; 04-13-2005 at 02:58 PM.
1981 Surgery with Harrington Rod; fused from T2 to L3 - Dr.Keim (at 26 years old)
2000 Partial Rod Removal
2001 Right Scapular Resection
12/07/2010 "Surgical stabilization L3 through sacrum with revision harrington rod instrumentation, interbody fusion and pre-sacral fusion L5-S1" - Dr. Boachie - and feeling GREAT! (at 56 years old)