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Thread: Hello - I'm back and developed osteopenia

  1. #1
    Join Date
    Mar 2010
    Posts
    2,760

    Hello - I'm back and developed osteopenia

    Hello everyone,

    I'm back after several years of not having a computer. I'm posting in this section because I've opted not to pursue surgery. I have developed osteopenia and my curve has been stable in the upper 40's lower 50's depending on who reads the radiographs. I couldn't keep up with posting after my computer fried. I was too cheap to buy a new one since I could do my essential tasks from my phone.

    My HMO hospital hired a new scoliosis surgeon whom I was not impressed with. In "his" professional opinion anyone over the age of 25 is too old to be having this surgery. If you ask me, that just goes to show the degree of his skill level, which is low.

    I came to the decision on my own not to have this surgery. A surgeon at Mayo Clinic in Rochester was willing to do the surgery, but over the years my neuromuscular disease has overshadowed my health concerns.

    My major concern is the degeneration of my neck, for those of you familiar with my case already know, is involved in my extremely high left thoracic curve. I know I will have to eventually have to have some sort of intervention there due to 4 bad discs, but not at this time. I don't know what to expect on that front because of the cervical curvature, but I will address that in the surgical section if/when the time comes.

    I just wanted everyone to know I haven't dropped off the face of the earth. My son just gave me a new computer!

    So hello to all... I still see a multitude of familiar names. ;-)
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  2. #2
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,317
    Hey Rohrer! Welcome back! I think of you from time to time. You were a very effective contributor to the forum in my opinion.

    Wow!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Mar 2010
    Posts
    2,760
    Thanks, Pooka! I will try to post here again, now that I have a computer. I've missed the discussions, but honestly haven't been physically well. I am grateful that my progression has been stable. Hopefully, it will stay that way...but I'm over 50 now with weakened bones, something I need to discuss with my doctor. Since I left the forum I fell and broke a rib. It's been a couple 2 or three years and it still hurts. It just goes to show how much torque is on my ribcage from my unusual curvature. I didn't actually fall hard. I rolled down a short embankment in the neighbor's yard and felt the snap. That makes the prospect of surgery that much more terrifying to me.

    I have some interesting news for all you fellow scoliosis ladies out there. I have DDD in my L5/S1 disc. I had severe sciatic radiculopathy clear to my toes. My doctors were baffled because the DDD wasn't that severe so as to cause the severity of pain that I was enduring. I had a hysterectomy in 2018 and when all my organs were out of the way, it was discovered that I had endometriosis growing on the sciatic nerves low on the abdominal wall. Once it was zapped away and my ovaries were taken out (female hormones make endometriosis grow), the pain was GONE! So, just in case any of you are having sciatic pain and you have your female parts intact, have your gynecologists evaluate you for endometriosis. It is the great mimicker. I could have gone through a totally unnecessary back surgery if that had not been found. As it is, I went through many epidural injections that eventually quit working.

    The voice of experience! Back problems can be a red herring for other underlying issues.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  4. #4
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,087
    Rohrer! Yes, it has been a few years......Glad your son got you a new computer, welcome back

    I am down in Colombia again. Flying back on the 21st, then down to Mexico 5 days after.

    Having a little trouble keeping up here lately and will be a little slow with any replies.

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  5. #5
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    7,107
    Glad to hear from you. I just thought about you on Saturday, and was going to try to make the effort to contact you again. Sorry to hear that things aren't really all that much better.

    --L
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  6. #6
    Join Date
    Mar 2010
    Posts
    2,760
    Thanks for the welcome back Ed and Linda!

    Things could be worse. They didn't expect me to live to see 50 and I'm 51! I'm seeing a neurologist every three months right now so he can get my meds right. I have less trouble walking. In fact, for short distances, one would think there's nothing wrong with me! So life's pretty good.

    It's been three years since my last radiographs were taken, so I'm not quite sure where I'm at. I'm guessing about the same. I'm not sure if I posted this, but my friend that was born with congenital scoliosis died a couple of years ago. She was a very severe case and had had at least two surgeries over the years. Her lungs were severely compromised and she smoked on top of that. By the time she quit smoking it was too late to recover from for her. It was all very sad since she was only in her 50's. The perils of smoking are so much worse for our "community", not that they aren't life and death for everyone else, too.

    I hope everyone stays safe through these rounds of storms. I saw where there was an avalanche at a ski resort near Reno/Tahoe. So glad you aren't there now, Ed!

    You all take care,
    Rohrer01
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  7. #7
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,087
    I saw that. They lose a few each winter in the Tahoe basin.

    I was in a slide at Alpine Meadows in March 1983. It was up to my armpits and took me for a quick ride down about 500 feet or so. (Like an ocean wave) The snow was super light while travelling and when it settles, it has the consistency of cement. I skied out of it at an angle and was not in the settle zone. I have been in 2 slides over the years. My winter mountaineering skills are pretty good because I am still around. Not skiing anymore also helps in this regard. (smiley face) I made the news on one of them, I wish I had the article. "Lone skier and boarder trigger off massive slide and leave" I didnt know your supposed to notify the authorities? The Sherriff dept get kinds jumpy about these things. I didnt know this at that time.

    Here is a little skiing tidbit. Line of the winter. Stress management.
    https://www.youtube.com/watch?v=EMVPpPE_Bx4

    Interesting on the endometriosis....I am also aware of scar tissue formations from my large ALIF from Karen Ocker. So far so good in that regard.....
    Renal Colic from kidney stones will produce mind blowing amounts of scoliosis related soft tissue pain. It was the worst pain I have ever felt. Opioid constipation also is up there on the pain scale. When one poster posted about it having the consistancy of wood, I had to ask, what kind of wood? Teak or Mahogany? We sure have had some detailed discussions here through the years.....(smiley face)

    Getting meds right is not easy. If they are not right, you really have to make adjustments slowly and wait for a response and try to evaluate. My neck is also roasted, and its been almost 7 years of trial and error with pain, and figuring out why it happens. Diet plays a strong part, eat crappy, feel crappy, weather changes are also a factor, atmospheric pressure changes. I manage with Diclofenac, you can buy it OTC for $3 down here. No problemo....I dont know what will happen with my neck. Will it eventually autofuse? I just dont know?

    I keep the stress down and laugh as much as possible. It works well.

    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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