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Thread: Hemivertibrae surgery - congenital scoliosis

  1. #1
    Join Date
    Aug 2019
    Posts
    2

    Hemivertibrae surgery - congenital scoliosis

    Hi everyone,

    My 5 year old son has a hemivertibrae causing a 7 degree curve. He is being monitored. The surgeon recommended removal and fusion.

    What is the success rate for this surgery in terms of paralysis, death, long term problems such as paralysis and reduced mobility.

    Are magec rods an option considering the growth factor?


    Thank you and regards

  2. #2
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,018
    Here is a study that was done...
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3175869/

    Scoliosis Research Society
    https://www.srs.org/professionals/on...ital-scoliosis

    7 degrees is not too bad....I doubt that Magec rods would be considered. This being a question only a Ped spine surgeon can answer.

    What level is the hemi at? and where is the surgery being done?

    Things are going to be ok....

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,260
    Hi EL-34.

    I think only a surgeon can answer your questions. If necessary, get more than one opinion.

    Several years ago we had a parent discussing her son's congenital scoliosis. That is the only case I can recall on this forum. I can't remember her screen name but if I do I will PM it to you. Her son is an adult at this point.

    What I think I recall is he was fused but had a very short fusion compared to all the AIS cases. I think it was only 5 levels which is rarely if ever the case with AIS per this forum and all the reading I have done. If you child needs fusion, hopefully it will be very short like that and there will be no issues going forward from the fusion itself.

    Good luck. I am sure it will be fine once you get all your questions answered.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #4
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    7,012
    Quote Originally Posted by EL-34 View Post
    Hi everyone,

    My 5 year old son has a hemivertibrae causing a 7 degree curve. He is being monitored. The surgeon recommended removal and fusion.

    What is the success rate for this surgery in terms of paralysis, death, long term problems such as paralysis and reduced mobility.

    Are magec rods an option considering the growth factor?


    Thank you and regards
    Hi El-34...

    I'm guessing that your son's doctor is talking about removal and fusion of the hemi level. That's quite different than fusion of the entire curve, and would probably not require growing rods. Whether or not that's the case, I would strongly recommend a second opinion. Where are you located?

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

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