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Thread: percentage of 1st Scoliosis surgery rlater require revision?

  1. #1
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    percentage of 1st Scoliosis surgery rlater require revision?

    As Iím looking at my 1st Scoliosis surgery & Reading about so many revision threads makes you think about your future. I know its a crap shoot but thereís gotta be research out about this. If anyone knows please share sources. Thanks Nancy

  2. #2
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    Most of us do well with scoliosis surgery. If there was no improvement, they wouldn't be fusing people for over a century. Most get done, come out ok, and don't post anymore, or pop in every once in a blue moon. Here is a happy I had surgery thread....
    http://www.scoliosis.org/forum/showt...-Sticky-Thread

    Go into the Surgical first time threads and glance at Linda's sticky threads up at the top. The top 5 are slightly shaded.

    Linda had posted studies with percentages in the past. They are here....(someplace) If you have trouble finding these, I will dig for you.

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
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    Quote Originally Posted by titaniumed View Post
    Most of us do well with scoliosis surgery. If there was no improvement, they wouldn't be fusing people for over a century. Most get done, come out ok, and don't post anymore, or pop in every once in a blue moon. Here is a happy I had surgery thread....
    http://www.scoliosis.org/forum/showt...-Sticky-Thread

    Go into the Surgical first time threads and glance at Linda's sticky threads up at the top. The top 5 are slightly shaded.

    Linda had posted studies with percentages in the past. They are here....(someplace) If you have trouble finding these, I will dig for you.

    Ed
    Sorry Ed tried to find Lindaís thread on research but maybe itís been awhileóam recovering from PT pain now-will try to look further in research forum (should have posted there to start) thanks Nancy

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    If you're talking about patients who had scoliosis surgery as adults, no one has really done anything with enough follow-up. I believe you'd need at least 30-40 years to get a meaningful number. There is one study that showed a revision rate of 20% at 10 years. I'm guessing that with 30+ years of follow-up, there's probably a 25%+ revision rate. There are so many factors that come into play (age at first surgery, skill of surgeon, type of surgery, comorbidies, etc.), that I'm not sure that number is really helpful.

    https://www.ncbi.nlm.nih.gov/pubmed/26964785

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

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    Quote Originally Posted by LindaRacine View Post
    If you're talking about patients who had scoliosis surgery as adults, no one has really done anything with enough follow-up. I believe you'd need at least 30-40 years to get a meaningful number. There is one study that showed a revision rate of 20% at 10 years. I'm guessing that with 30+ years of follow-up, there's probably a 25%+ revision rate. There are so many factors that come into play (age at first surgery, skill of surgeon, type of surgery, comorbidies, etc.), that I'm not sure that number is really helpful.

    https://www.ncbi.nlm.nih.gov/pubmed/26964785

    --Linda
    Thanks for info

  6. #6
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    I was thinking stats on complications.....

    Infection and pseudarthrosis stats....

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #7
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    Quote Originally Posted by titaniumed View Post
    I was thinking stats on complications.....

    Infection and pseudarthrosis stats....

    Ed
    I don't know how many surgeons would be honest about this, but I've heard many of them say that complication rates for adult scoliosis surgery is likely to be somewhere around 70%. Most studies record relatively few potential complications. Any medical complications peri-operative are usually not included.

    The SRS collects stats ONLY on infection, neurologic damage, and death.
    https://www.ncbi.nlm.nih.gov/pubmed/26693670
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  8. #8
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    Angry

    I think it is the case that other than infection which is institution versus surgeon related, the other complications scale with age and condition of the patient. It is a cruel irony that people and their surgeons try to postpone surgery as long as possible though that increases the chances of a complication. Adult patients are almost always faced with this terrible dilemma.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #9
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    Regardless of the stats, when adults are in pain, a lot of pain, its not really going to affect the decision. I was guaranteed 100% complications and did my surgeries anyway. Every other surgical member here did the same thing. Its the chance we have to take.

    On the 70% value, I think that many surgeons get really affected by outcomes. When you don't have an answer on something, that has to be hard. I told Crystal many years ago that she was going to see things as a (Ped Emergency trauma surgeon) and they wont be pretty. She told me years ago that they talk about this sort of thing in Med school, and she is aware, but now she has seen things that have made her psyche so much more serious. She doesn't smile that much anymore and is in really deep thought, all the time. Off in space.....There are things she wont discuss with me anymore, its just too heavy. She almost has that 3 mile stare that Marines get after battle.
    There is a lot of pressure on our surgeons....

    I did a post about a British Neurosurgeon here years ago who did brain surgeries with high serious complication rates....I even posted his photo, he was suffering from severe depression from all of this.....This sort of thing will result in doubts, and if asked, complications will be high. I think that since we do some pretty severe procedures around here, we will witness some of this....Its hard to ask a surgeon about failure. I know because I have done that, and felt bad, and could see the distress through the mask, I am an expert at reading people. Its ok, they are people too. The body is just so complicated. I hope everyone understands what I am saying here.

    70% is too high. Its understandable. I have seen the head shaking.

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  10. #10
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    Quote Originally Posted by Pooka1 View Post
    I think it is the case that other than infection which is institution versus surgeon related, the other complications scale with age and condition of the patient. It is a cruel irony that people and their surgeons try to postpone surgery as long as possible though that increases the chances of a complication. Adult patients are almost always faced with this terrible dilemma.
    I am thankful I was in pain. If I wouldn't have had the heavy pain when I did, and had it kick in 20 years later, that would have been a problem. The biggest reason why adults wait is because they are SCARED.....when my surgeon asked me why I waited so long, I didn't have an answer. I didn't think I needed to answer. Scoliosis surgeons also need to be aware that we need time to absorb the surgical process. Its not easy.

    Many of us have some sort of pain and we get used to it. Then if things are bad enough as adults past age 40, the neuropathic pain kicks in which is an elevated nerve related pain (sciatica, and arm and hand pains from herniation's and stenosis). We sort of get used to that too. But what happens is that you can only do that battle for so long. If you manage to reduce these pains, they really are temporary since the damage and degeneration is still there waiting to be triggered by some sort of event. (Lifting, twisting, or STRESS) Stress is a killer, no doubt. I did that for around 6 years taking NSAID's Prescription anti-inflammatories (Celebrex, Bextra) and hot water therapy for pain. Diclofenac is a good one for pain also. You have to get these from a Medical Doctor. Opioid's do not solve the problems of inflammation, they just mask pain and constipate you. Muscle spasms are also warnings, you really need to know why you have the pain you have....?????? Truly know your scoliosis.

    If one is a surgical candidate going through neuropathic pain, it either isn't bad enough or the person hasn't experienced it long enough to commit to surgery. If the pain is bad enough, no-one is going to tell us to not have surgery because we essentially give up. We capitulate.

    Neuropathic pains are signals. Warning signs for adult scoliosis patients with large curves or degenerative problems. Burning and incredible acute pains, I guess are the bulk of it. I am forgetting this now since all of this was resolved by surgery. They are also warning signs for fused scoliosis patients under fusion masses.

    There is no rushing into surgery, but when its needed, its needed. Neuropathic pain is your indicator. Scoliosis surgeons will also offer shots trying to avoid surgery, but if ones situation is bad enough and you have that scoliosis train wreck, they seem to be hard to justify when you truly are a surgical candidate.

    I ignored my scoliosis for many years waiting for technology. If I had to re-do the whole process again, I would do it 10 years sooner and skip the major pain period of my 40's.

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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