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Thread: Possible clue that cause my scoliosis

  1. #1
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30

    Red face Possible clue that cause my scoliosis

    hi everyone. It me Kara here a update on my life. My back is doing fantastic. My family might have found a clue that caused my scoliosis and my other orthopedic problems. I have a possible diagnosis of Charcot Marie Tooth Disease. I知 having surgery on my right foot in 3 days. The foot and ankle surgeon I see said that my feet are consisted with a diagnosis Charcot Marie Tooth Disease.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  2. #2
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,974
    Kara

    Will this be outpatient?

    From what I am seeing, they have these foot surgeries dialed in now without fusion which is amazing.

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    Yes ed it’s outpatient
    Last edited by Karagirly; 08-06-2019 at 01:21 PM.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  4. #4
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,191
    Good luck with your surgery Kara. Will there be physical therapy after?
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #5
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    Yes Sharon. Their be physical therapy after surgery. But not until 7 weeks
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  6. #6
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    I got home around 3 pm or 3:30 pm. My reconstructive foot surgery took 2.5 hours. They did 6 out of 7 procedures. They didn稚 need to repair ligament in my ankle because that was a possible procedure. They did a first metatarsal Dorsiflexor osteotomy, Dwyer痴 Calcaneal osteotomy, a Partial Plantar Fasciotomy, Peroneal longus to brevis tendon transfer, right gastrocnemius recession. Right next now I知 in a splint until I go back to get my first cast in two weeks then get it changed to another cast. I知 also suppose to follow up 1 week after my surgery. Right now I知 in a splint. I won稚 be able to walk for 6 weeks. After 6 weeks I値l be in a walk boot cast for 6 more weeks with Gradual weight-bearing with physical therapy
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  7. #7
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,191
    Thanks for checking in after surgery Kara. Wow that is a lot of procedures! Are you in any pain?

    Hopefully you won't need any more surgery in your lifetime. You have had a lot.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #8
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    Your welcome Sharon. My surgeon said I might need it Fused but That like 30 years away
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  9. #9
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,974
    Kara

    I hope the pain is mellowing out some by now....

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  10. #10
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    Ed I知 actually not in pain.
    Tomorrow I値l be 2 weeks post-op from my reconstructive foot surgery. In four days I get this splint off and also my stitches removed and I get my first of two casts on.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  11. #11
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,974
    Kara, sounds great!

    On a 0-10 pain scale, how would you rate this surgery? Zero would be no pain.

    Remember, in the Olympics, they usually do not hand out perfect 10's. (smiley face)

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  12. #12
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    After the surgery was maybe like around 4 to 5.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  13. #13
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    I get my splint off tomorrow and stitches removed. Then placed in a cast for 2 weeks, are two weeks in that cast I get another cast I also wear that one for 2 weeks as well.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  14. #14
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    818
    Good luck tomorrow
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

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