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  • Anyone have a spinal stimulator?

    Dr. Bob Hart suggested a spinal cord stimulator for my R leg chronic pain, recently diagnosed as CRPS. Anyone have an experience with a spinal stimulator?
    Susan
    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw
    2021: Removal T1 screw & rod

  • #2
    Susan I don't have a spinal cord stimulator but the Dr explored one for me but couldn't get thru my fusion. Ask about it.
    T10-pelvis fusion 12/08
    C5,6,7 fusion 9/10
    T2--T10 fusion 2/11
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16
    Broken neck 9/28/2018
    Emergency surgery posterior fusion C4- T3
    Repeated 11/2018 because rods pulled apart added T2 fusion
    Removal of partial right thoracic hardware 1/2020
    Removal and replacement of C4-T10 hardware with C7 and T 1
    Osteotomy

    Comment


    • #3
      I had the same experience as Jackie. They couldn't get the leads placed because of my fusion. My surgeon feels they could do it, but it would have to be done under general anesthesia, which is too risky for me.
      Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
      ---------------------------------------------------------------------------------------------------------------------------------------------------
      Surgery 2/10/93 A/P fusion T4-L3
      Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

      Comment


      • #4
        Popular Spinal cord stimulation and pain testimonial videos...

        https://www.youtube.com/playlist?lis...r5&app=desktop

        Notice that there are no scoliosis fusion patient testimonials. (I am not seeing any) If anyone see's any, please post.

        Ed
        49 yr old male, now 63, the new 64...
        Pre surgery curves T70,L70
        ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
        Dr Brett Menmuir St Marys Hospital Reno,Nevada

        Bending and twisting pics after full fusion
        http://www.scoliosis.org/forum/showt...on.&highlight=

        My x-rays
        http://www.scoliosis.org/forum/attac...2&d=1228779214

        http://www.scoliosis.org/forum/attac...3&d=1228779258

        Comment


        • #5
          A Physicians Perspective: Dr Simon Thompson on chronic pain

          https://www.youtube.com/watch?v=PemD...&index=41&t=0s

          Ed
          49 yr old male, now 63, the new 64...
          Pre surgery curves T70,L70
          ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
          Dr Brett Menmuir St Marys Hospital Reno,Nevada

          Bending and twisting pics after full fusion
          http://www.scoliosis.org/forum/showt...on.&highlight=

          My x-rays
          http://www.scoliosis.org/forum/attac...2&d=1228779214

          http://www.scoliosis.org/forum/attac...3&d=1228779258

          Comment


          • #6
            Dr Schubiner Pain and nerve pathways

            Once again, posting in general due to all the scoliosis patients that come here. Dr Schubiner explain's about chronic pain, stress and nerve pathways. I have read about this material, but this is the first (intro) video I have found on the subject.

            Stress causes a lot of damage...I have been a victim along with most or all of us...I hope this helps someone even though we are extreme spine patients and some of us have damaged nerve tissue due to our scoliosis situation. I personally have used comedy for pain which helps quite a bit.

            https://www.youtube.com/watch?v=XM5hdlEOSFM

            Ed
            49 yr old male, now 63, the new 64...
            Pre surgery curves T70,L70
            ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
            Dr Brett Menmuir St Marys Hospital Reno,Nevada

            Bending and twisting pics after full fusion
            http://www.scoliosis.org/forum/showt...on.&highlight=

            My x-rays
            http://www.scoliosis.org/forum/attac...2&d=1228779214

            http://www.scoliosis.org/forum/attac...3&d=1228779258

            Comment


            • #7
              Thank you Jackie, Linda, and Ed. Unsure what I will do. Bummed.
              Susan
              Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

              2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
              2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
              2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
              2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
              2018: Removal L4,5 screw
              2021: Removal T1 screw & rod

              Comment


              • #8
                Hi Susan, there has s a u tube video on SCS. Look up Dr. Adam Young giving a presentation on the SCS in 2016 at the Midwest pain convention. Dr Young is my doctor. He gives a great presitation but doesn't say anything about like fusion.
                T10-pelvis fusion 12/08
                C5,6,7 fusion 9/10
                T2--T10 fusion 2/11
                C 4-5 fusion 11/14
                Right scapulectomy 6/15
                Right pectoralis major muscle transfer to scapula
                To replace the action of Serratus Anterior muscle 3/16
                Broken neck 9/28/2018
                Emergency surgery posterior fusion C4- T3
                Repeated 11/2018 because rods pulled apart added T2 fusion
                Removal of partial right thoracic hardware 1/2020
                Removal and replacement of C4-T10 hardware with C7 and T 1
                Osteotomy

                Comment


                • #9
                  Jackie, This might be the Dr Young video you are talking about. Thanks for letting us know.
                  https://www.youtube.com/watch?v=pSjqgCD_aCQ

                  DRG (Dorsal Root Ganglion Stimulation) is mentioned,(26:35) its similar, from what I understand this is for lower hip and leg pains. They target the DRG not the Spinal Cord.
                  https://paindoctor.com/treatments/do...g-stimulation/

                  https://www.neuromodulation.com/DRG

                  Have any full fusion scoliosis patients been done? Can either of you guys ask your surgeons this question?

                  Can they get through? If not from the back, can they get in from the side?

                  Ed
                  49 yr old male, now 63, the new 64...
                  Pre surgery curves T70,L70
                  ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                  Dr Brett Menmuir St Marys Hospital Reno,Nevada

                  Bending and twisting pics after full fusion
                  http://www.scoliosis.org/forum/showt...on.&highlight=

                  My x-rays
                  http://www.scoliosis.org/forum/attac...2&d=1228779214

                  http://www.scoliosis.org/forum/attac...3&d=1228779258

                  Comment


                  • #10
                    Yes Ed that is the video. He is a very young ,progressive pain management doctor. He could not get through my fusion. We discussed entering the spinal layer from higher in the spine. But now with the broken neck my fusion is too high. We talked about the reason it isn't usually done up that high is there can be too much movement. I other words, entering the leads in the thoracic and going down with the leads.
                    I will discuss it again but for me it isn't possible.
                    He is progressive. He placed my pump under local anesthetic. Most wouldn't even try that. It worked.
                    T10-pelvis fusion 12/08
                    C5,6,7 fusion 9/10
                    T2--T10 fusion 2/11
                    C 4-5 fusion 11/14
                    Right scapulectomy 6/15
                    Right pectoralis major muscle transfer to scapula
                    To replace the action of Serratus Anterior muscle 3/16
                    Broken neck 9/28/2018
                    Emergency surgery posterior fusion C4- T3
                    Repeated 11/2018 because rods pulled apart added T2 fusion
                    Removal of partial right thoracic hardware 1/2020
                    Removal and replacement of C4-T10 hardware with C7 and T 1
                    Osteotomy

                    Comment


                    • #11
                      Jackie, You have been very positive and very strong considering all you have been through....Orthopedic, Spine and Neuro problems sure are challenging, no doubt about it. Its good to see you posting.

                      You have been through an orthopedic whirlwind, doing the doctor tour, and finally ending up at Rush is quite a story of determination. Susan and Melissa have also done this, and the 3 of you combined have done probably over 25 serious orthopedic procedures over the last 10 years battling scoliosis. Of course, there are others who don't post as frequently that are also in pain and doing their own battles.

                      Its nice to see younger Doctors like Dr Young pursue pain, intractable neurogenic (nerve related) pain, which is sorely needed....I would like to see this progress further and somehow help solve some of our serious pain problems that can be extremely devastating with no position comfortable. Perhaps in the future, someone will invent a device where leads or paddles are not necessary.

                      I can only guess that doctors can relate to our pains through their own experiences. Everyone gets hurt at some point in their lives, everyone burns themselves on stoves. I guess this burning pain for a few days on the hand is the way they can understand what some of our pains feel like. The only difference is that its not the hand, its the spine and the spinal cord which can be much much worse. I think they understand, but the truth comes out in our faces. Pain shows up in the face....Its the dead giveaway. I have a few wrinkles around my eyes from scoliosis over the years....

                      Ed
                      49 yr old male, now 63, the new 64...
                      Pre surgery curves T70,L70
                      ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                      Dr Brett Menmuir St Marys Hospital Reno,Nevada

                      Bending and twisting pics after full fusion
                      http://www.scoliosis.org/forum/showt...on.&highlight=

                      My x-rays
                      http://www.scoliosis.org/forum/attac...2&d=1228779214

                      http://www.scoliosis.org/forum/attac...3&d=1228779258

                      Comment


                      • #12
                        Originally posted by titaniumed View Post
                        DRG (Dorsal Root Ganglion Stimulation) is mentioned,(26:35) its similar, from what I understand this is for lower hip and leg pains. They target the DRG not the Spinal Cord.
                        https://paindoctor.com/treatments/do...g-stimulation/
                        When my procedure was attempted, it was for a DRG. It's placed in the same method as the SCS, so would be subject to the same complications for someone with a fusion.

                        Originally posted by titaniumed View Post
                        If not from the back, can they get in from the side?
                        The side of the vertebrae? I doubt it.
                        Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                        ---------------------------------------------------------------------------------------------------------------------------------------------------
                        Surgery 2/10/93 A/P fusion T4-L3
                        Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                        Comment


                        • #13
                          When I do see Dr. Young I will ask him in general if a Spinal cord stimulator can be placed with full spinal fusion. He is very approachable to questions. He is willing to listen . He is indeed very young but does seem to enjoy what he does. He is also at a teaching facility. I have already met 2 of the new fellows. They start in July. These 2 are ok but it is always a learning experience.
                          I will find out on Wednesday, if we proceed with the scapulothorasic fusion.
                          I really want the plan spelled out. I'm not even to the year Mark after the car accident.
                          T10-pelvis fusion 12/08
                          C5,6,7 fusion 9/10
                          T2--T10 fusion 2/11
                          C 4-5 fusion 11/14
                          Right scapulectomy 6/15
                          Right pectoralis major muscle transfer to scapula
                          To replace the action of Serratus Anterior muscle 3/16
                          Broken neck 9/28/2018
                          Emergency surgery posterior fusion C4- T3
                          Repeated 11/2018 because rods pulled apart added T2 fusion
                          Removal of partial right thoracic hardware 1/2020
                          Removal and replacement of C4-T10 hardware with C7 and T 1
                          Osteotomy

                          Comment


                          • #14
                            Jackie,
                            Can I ask where this DrYoung is located?
                            Rita Thompson
                            Age 46
                            Milwaukee Brace wearer for 3 years in childhood
                            Surgery Mar 1st - 95 degree thoracic curve
                            Surgery by Dr. Lenke, St. Louis, MO
                            Post-surgery curve 25-30 degree

                            Comment


                            • #15
                              He is located in Chicago. He is great
                              T10-pelvis fusion 12/08
                              C5,6,7 fusion 9/10
                              T2--T10 fusion 2/11
                              C 4-5 fusion 11/14
                              Right scapulectomy 6/15
                              Right pectoralis major muscle transfer to scapula
                              To replace the action of Serratus Anterior muscle 3/16
                              Broken neck 9/28/2018
                              Emergency surgery posterior fusion C4- T3
                              Repeated 11/2018 because rods pulled apart added T2 fusion
                              Removal of partial right thoracic hardware 1/2020
                              Removal and replacement of C4-T10 hardware with C7 and T 1
                              Osteotomy

                              Comment

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