Results 1 to 15 of 47

Thread: My niece

Hybrid View

Previous Post Previous Post   Next Post Next Post
  1. #1
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30

    My niece

    Hi everyone my youngest niece scoliosis has doubled in sized it went from 8 degrees to 27 degrees. Shriners said if it gets any bigger she will need to wear a back brace. Iím really worried about her due to having scoliosis myself. Iím just hoping she doesnít have to go though what I went though.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  2. #2
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    You are a very sweet and caring aunt. Your niece is lucky to have you
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #3
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    Melissa that makes me happy to here. She a real sweetheart.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  4. #4
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,245
    Quote Originally Posted by Karagirly View Post
    Melissa that makes me happy to here. She a real sweetheart.
    I sent you a PM
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #5
    Join Date
    Dec 2018
    Location
    Eureka California
    Posts
    30
    Update on my niece. My niece has been in a nighttime brace for almost 2 months. We went to Shriners a few weeks ago her back in her brace is straight.
    Kara
    Age 27
    Boston Brace Apr 15 2005 to May 25 2006
    Posterior Spinal Fusion March 10 2010
    T4-L2
    Before T50 and L35
    After T20 and L17
    Possible Neruomuscular scoliosis
    Possible Charcot-Marie-tooth Disease type 1A

  6. #6
    Join Date
    Sep 2011
    Posts
    368
    Quote Originally Posted by Karagirly View Post
    Hi everyone my youngest niece scoliosis has doubled in sized it went from 8 degrees to 27 degrees. Shriners said if it gets any bigger she will need to wear a back brace. Iím really worried about her due to having scoliosis myself. Iím just hoping she doesnít have to go though what I went though.
    Hi

    it is really worth looking into VBT if your niece is still growing and has a sizeable progressing curve.

    surgeons to contact are Shriners , DRs Betz, Antnacci and Cuddihy and also Dr loner VBT is done while the child is growing unlike fusion which is normally done when growth is complete.

    It is much less invasive and I believe the instrumentation is close to getting FDA approval which will undoubtedly make easier access to the procedure. There a few Facebook groups which have excellent factual detail about VBT.

  7. #7
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,167
    I think VBT will replace fusion in most kids. That's my prediction.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #8
    Join Date
    Sep 2011
    Posts
    368
    Quote Originally Posted by Pooka1 View Post
    I think VBT will replace fusion in most kids. That's my prediction.
    I think there is a way to go. it doesn't seem so successful on double curves. From what I can tell the compensatory curve does not correct even when the tethered structural one does, when the structural one is thoracic. Whether this is because the compensatory one isn't really compensatory at all?

    There seem to be having success with adult patients as well as the fully grown Adolescent. In these cases they are performing ASC which is still fusion less but where the correction is done on the table - held by the tether until remodelling takes place.
    Last edited by burdle; 05-21-2019 at 06:38 AM.

  9. #9
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,167
    Quote Originally Posted by burdle View Post
    I think there is a way to go. it doesn't seem so successful on double curves. From what I can tell the compensatory curve does not correct even when the tethered structural one does, when the structural one is thoracic. Whether this is because the compensatory one isn't really compensatory at all?
    That, if true, is a deal breaker for thoracic scoliosis in my opinion. The entire hope of avoiding involvement/structuralization of the lumbar depends on that being driven straight by straightening the thoracic spine. Fusion drives the lumbar straight in many cases. If tethering cannot drive straightness in the lumbar and fusion can in a given case, it is a no-brainer to select fusion to preserve hope of no future lumbar involvement. No question in my mind as a parent given fusion and tethering of the thorax probably feel the same to the patient.

    There seem to be having success with adult patients as well as the fully grown Adolescent. In these cases they are performing ASC which is still fusion less but where the correction is done on the table - held by the tether until remodelling takes place.
    I don't follow this. How exactly is tethering and ASC different? Are they both done on kids and adults?
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  10. #10
    Join Date
    Sep 2011
    Posts
    368
    Quote Originally Posted by Pooka1 View Post
    That, if true, is a deal breaker for thoracic scoliosis in my opinion. The entire hope of avoiding involvement/structuralization of the lumbar depends on that being driven straight by straightening the thoracic spine. Fusion drives the lumbar straight in many cases. If tethering cannot drive straightness in the lumbar and fusion can in a given case, it is a no-brainer to select fusion to preserve hope of no future lumbar involvement. No question in my mind as a parent given fusion and tethering of the thorax probably feel the same to the patient.?
    VBT seems to be most successful where there is no lumbar curve to start with- not having a fused thoracic prevents degeneration of the lumbar vertebrae seen in so may adults who have had fusion as a kid.



    [QUOTEI don't follow this. How exactly is tethering and ASC different? Are they both done on kids and adults?[/QUOTE]

    ASC is still fusionless and it is an anterior approach- when done on a mature spine they use the ASC rather than VBT. The difference is they get all the correction they can whilst in surgery ( on the table) and the idea is that correction is held by the tether so the tether is tight. with VBT the tension of the tether varies to allow for further growth

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •