Lisa
Not Charlotte, but if I needed spine work done in North Carolina, Dr Hey would be a surgeon I would want to talk to.
https://heyclinic.com/
Dr Hey's You Tube channel
https://www.youtube.com/user/TheHeyC...t=dd&flow=grid
If Dr Lenke was your surgeon, you really should let him know what is going on at some point. I think its really important to inform our surgeons when there is a problem. It does help them with the disease. None of this stuff is easy since the body is so complicated.
In the thoracic, the screw heads can present some discomfort and I felt this. When I did my shoulder rebuild surgery, (10 months post) the arm surgeon ordered physical therapy right away since he didn't want the shoulder to freeze up. The arm bike was used to pedal with my arms and it toughened up the thoracic area and sure did help with my spine and continued scoliosis surgery recovery. I don't know if you have done any physical therapy but at 18 months post you are more than fine to enter a therapy program....movement is something we have to do. We are almost like most sharks in this regard.
I don't know what kind of pain you are in, one thing that's extremely important is your exact "description of pain". These surgeons will want to know exactly what is going on, and they are pretty darn good at knowing what is happening. There is always going to be something that's going to happen after what we go through, pain or lingering pain is one thing we have to be prepared for. My full recovery took me 2 years...and I still get the bear traps and the lumbar planks every once in a while. Its something that really doesn't bother me much anymore and I lay down if it happens. My neck is a problem that's for sure, but I am not running into surgery.
Lifelong scoliosis sure does involve a lot of waiting. The whole gamut from being a kid with scoliosis to senior scoliosis.
Send me a PM through the system and I would be more than happy to talk with you about things on the phone. I am retired now, so timing really doesn't matter much.
Ed