Results 1 to 3 of 3

Thread: wicked pain up and down the rods

  1. #1
    Join Date
    Mar 2015
    Location
    Connecticut
    Posts
    21

    wicked pain up and down the rods

    Hello.......I posted about the terrible pain I have with my spinal fusion, which is fairly large T6-L4
    Someone asked if I might have a sensitivity to the rods.......but I cannot get ANY doctor to believe this.

    Could I be allergic? sensitive to the rods? I WISH I could get someone to help me.......I'm 62 years old and I can't stand the pain. I take 2700mg of Gabapentin.....but that doesn't come close to calming this pain.

    I live in Connecticut and I just don't know where to turn. I've seen more than a half dozen surgeons who do the type of surgery I had......but they all say "well, everything looks ok".

    I just don't know what to do.

    Any thoughts? I'm desperate

    Carol

    ps - I first had stainless steel rods.....doc reluctantly said it could be an allergy (I knew I was allergic to Nickel, but was never told they were using stainless, which contains nickel)......so he removed them and put in titanium. Pain is almost worse because I actually have 3 rods now instead of 2.

  2. #2
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,926
    Carol

    I am not a surgeon, or doctor, and I hate to assume anything since that is usually fruitless. But this sounds awfully familiar to what happened to Jackie. She ended up with Arachoniditis.

    https://en.wikipedia.org/wiki/Arachnoiditis

    Did you follow her threads? About a year ago....

    I forget exactly how and who diagnosed her. I think she saw a neurologist. ??? Her spine surgeon said she was fine.

    Ed
    49 yr old male, now 60, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    807
    Hi Carol i just happened to be on the forum and noticed your thread. I also saw Ed 's message. Yes I was diagnosed with arachnoiditis. It is a problem in the spinal cord and one of the causes is blood in the spinal cord. Most likely mine was caused by 5 years in the Dura later of the spinal cord during the scoliosis surgery. I was diagnosed by a neurosurgeon. They used a mylogram since an MRI would not give a clear reading.
    It can cause pain an neurological defects. I am bothered by the defects.
    One treatment is a spinal cord stimulator. The other is a interthecal pump. That is what I have. It does seam to help. It is a trial to get the right meds and dose. Not all doctors believe in this diagnosis of treatment.
    It is worth a discussion.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •