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Thread: SI joint fusion

  1. #1
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22

    SI joint fusion

    Hi

    I had my left SI joint fused 4 weeks ago and think something is wrong as it is painful to put any pressure through my left leg to walk.

    It feels like a nerve is impinged as the pain goes from buttock at the site of the fusion down to my foot when trying to walk.

    Has anyone else had this surgery as I am interested to hear other people's experience. So far I can only find discussion groups where people have not had scoliosis and revision surgeries so I'm assuming it would not be a similar experience.

    (I am already fused T2 to sacrum before SI fusion).

    Thanks
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  2. #2
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    Sorry to hear of your pain...wondering what your surgeon has to say about the pain, if it is par for the course right now, or out of the ordinary?

    Good luck with your recovery.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #3
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Thanks Gayle

    Upon discharge I was told I could do more or less anything with no restrictions but a week later I had to go back for crutches to assist with walking as it was too uncomfortable. I was advised the pain shouldn't get any worse over the next few weeks but it has in my case.

    I have an appointment in 10 days so will hopefully be able to discuss my concerns then.
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  4. #4
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,640
    I cannot remember any SI people here......

    Sounds like you are really inflamed.....Do try to take it easy...

    I hope this passes quickly

    Rod Stewart
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  5. #5
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Thanks, I hope it isn't permanent.....I am, at this point regretting having this surgery.
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  6. #6
    Join Date
    Nov 2017
    Location
    Eurkea California
    Posts
    31
    I知 sorry your in pain I hope it gets better soon
    Kara
    Soon to be 26
    Braced at 13 years old
    Posterior Spinal Fusion March 10th 2010
    Age at the of surgery 18 years old
    Preop Curves 50T and 39L
    Postop Curves 20T and 17L

  7. #7
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Quote Originally Posted by Kara1992 View Post
    I知 sorry your in pain I hope it gets better soon
    Thanks Kara
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  8. #8
    Join Date
    Nov 2017
    Location
    Eurkea California
    Posts
    31
    Your welcome! I知 actually in the same boat with you right now. I知 in the worst pain I been in my life. It started from after I fell backwards the bathtub and the fused area bent forward
    Kara
    Soon to be 26
    Braced at 13 years old
    Posterior Spinal Fusion March 10th 2010
    Age at the of surgery 18 years old
    Preop Curves 50T and 39L
    Postop Curves 20T and 17L

  9. #9
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Quote Originally Posted by Kara1992 View Post
    Your welcome! I知 actually in the same boat with you right now. I知 in the worst pain I been in my life. It started from after I fell backwards the bathtub and the fused area bent forward
    Oh no, sorry to hear that.....what are you having to do about it?
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  10. #10
    Join Date
    Nov 2017
    Location
    Eurkea California
    Posts
    31
    Well right now I知 taking extra strength in the morning and at night to help me sleep I think extra ibuprofen. I have a appointment with my surgeon on January 4.
    Kara
    Soon to be 26
    Braced at 13 years old
    Posterior Spinal Fusion March 10th 2010
    Age at the of surgery 18 years old
    Preop Curves 50T and 39L
    Postop Curves 20T and 17L

  11. #11
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Quote Originally Posted by Kara1992 View Post
    Well right now I知 taking extra strength in the morning and at night to help me sleep I think extra ibuprofen. I have a appointment with my surgeon on January 4.
    Hopefully you will get some answers then!! Not good relying on painkillers
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  12. #12
    Join Date
    Nov 2017
    Location
    Eurkea California
    Posts
    31
    I hope so as well
    Kara
    Soon to be 26
    Braced at 13 years old
    Posterior Spinal Fusion March 10th 2010
    Age at the of surgery 18 years old
    Preop Curves 50T and 39L
    Postop Curves 20T and 17L

  13. #13
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Well, after seeing my surgeon at my 6 week review appointment the other week he decided it had not worked properly as the Si joint still had some movement. A bone densitometry scan showed up some fractures around the implants too which explains the pain and that I wasn't improving.

    I had revision surgery 5 days ago where my left pelvic screw (which was loose) was removed and replaced with a thicker screw plus a new one added to reinforce the whole joint and distribute the force across my pelvis.

    I am now non-weight bearing on the left for 4 weeks then partial weight bearing for the next 3 weeks after this. I have a wheelchair too so need to be extremely cautious whilst it is healing.

    Hopefully it will work this time as I feel a lot more positive about the explanations and decisions made regarding my care
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  14. #14
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,640
    Spinals, You poor thing......sounds very painful. You have been through a lot.


    I hope you heal up soon.....


    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  15. #15
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Thank you, I am more frustrated than anything as it feels like the last 8 weeks of my life has been wasted trying to recover from an operation which failed!! I am now back to square one!!

    Oh well, nothing I can do about this now


    Quote Originally Posted by titaniumed View Post
    Spinals, You poor thing......sounds very painful. You have been through a lot.


    I hope you heal up soon.....


    Ed
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

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