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Thread: Checking In - 16 months post

  1. #1
    Join Date
    Mar 2013
    Location
    Chaska, Minnesota
    Posts
    40

    Checking In - 16 months post

    It has been so long since I have checked in with the site after religiously checking in daily throughout my recovery. I am about 16 months post now and have done really well, all things considered. I healed fairly quickly right out of the gate, and by 9 months, was cleared to do most activities. My doctor said that the hardware all looked really good, so he was comfortable with me getting 'back on the horse', so they say. I was able to golf, travel and even dance a bit over the summer and through this fall with little issues. Even though I have a desk job and sit the majority of my day, I try to stay as active as possible and work out 3-4 days a week on my Peloton or treadmill and I think it has really helped.

    I do still feel like I am still in healing mode some days. My pain is usually at the top of my fusion (T-6 and above) and can sometimes force me to lie down for a bit if I do too much. Just recently this pain has seemed worse and is concerning me a bit so have scheduled a visit with the doc this Friday. I am sure that it's nothing and just normal aches and pains, but I am always nervous that something will go wrong. Better to be safe than sorry

    I just wanted to let all of the supporters know on here how much your support and advice meant to me. I probably didn't express that enough in the early months when my only concern was getting better, but a very big thank you is in order. A special thanks goes out to Ed in particular. The time that you put in here is noticed and admired.

    Much love!
    Misty
    • 42 yr old female
    • Diagnosed at 13yo w/ a 32* lumbar curve at Gillette Children's Hospital
    • Braced for two-years
    • Pre-surgery curves L55, C37
    • Surgery scheduled August 1, 2016 to fuse T6-L5
    • Dr. Jeffrey Dick, Twin Cities Orthopedics
      Post-surgery curves L24, C21



  2. #2
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,557
    Misty


    Thanks for the glowing report, did we ever have any doubts? Never!

    The top of the spine can present issues along with the lumbar spine. I guess a lot of us might think that since there is less weight, that it is less of a problem but that thought is wrong....If you look at the difference in weight and force between the cervical and lumbar, there must be a significant difference....but look at how many cervical problems there are in people without any curves. Curves are only a small factor in adult degenerative situations. The rest of it is this surprisingly infinite puzzle of problems that we need to focus on. You know, the other 99%. The spine is complicated....and its everyone's problem. We are just the lucky ones who have to deal with the brunt of it all....

    I am glad you appreciate my posts. I think that we all learn from one another and this site helps in that regard. The testimonials have been invaluable, along with reading about all the different cases. My special thanks would go to Linda Racine, our moderator. She has been invaluable around here....

    I had a friend pass (Age 53)from a 27 year battle with MS so I am in the dumps right now.....This took a lot of determination on his part. So many of my friends have had to do battle with some sort of disease in one way or another....It's something I am really thinking about these days. The old questions of "Why me?" that arose when I was diagnosed with scoliosis, even with 50 years and surgeries and all the lovely stuff we go through, are blessings compared to some of the hardships I have seen people go through.

    That's why we are the lucky ones...

    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Nov 2017
    Location
    Eurkea California
    Posts
    14
    Hey misty Iím glad your surgery went well
    Kara
    25
    Posterior Spinal Fusion 03-10-2010
    T4-L2

  4. #4
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    Quote Originally Posted by titaniumed View Post
    Misty


    Thanks for the glowing report, did we ever have any doubts? Never!

    The top of the spine can present issues along with the lumbar spine. I guess a lot of us might think that since there is less weight, that it is less of a problem but that thought is wrong....If you look at the difference in weight and force between the cervical and lumbar, there must be a significant difference....but look at how many cervical problems there are in people without any curves. Curves are only a small factor in adult degenerative situations. The rest of it is this surprisingly infinite puzzle of problems that we need to focus on. You know, the other 99%. The spine is complicated....and its everyone's problem. We are just the lucky ones who have to deal with the brunt of it all....

    I am glad you appreciate my posts. I think that we all learn from one another and this site helps in that regard. The testimonials have been invaluable, along with reading about all the different cases. My special thanks would go to Linda Racine, our moderator. She has been invaluable around here....

    I had a friend pass (Age 53)from a 27 year battle with MS so I am in the dumps right now.....This took a lot of determination on his part. So many of my friends have had to do battle with some sort of disease in one way or another....It's something I am really thinking about these days. The old questions of "Why me?" that arose when I was diagnosed with scoliosis, even with 50 years and surgeries and all the lovely stuff we go through, are blessings compared to some of the hardships I have seen people go through.

    That's why we are the lucky ones...

    Ed
    Thanks Ed.

    Sorry for your loss. It's hard when a loved one goes so early. I suspect it's the universes way of getting us warmed up for all of the losses we'll have to withstand a little later in life.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  5. #5
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,557
    Linda, I hope not too warmed up.....of course, this comes to mind

    Sometimes the Green Mile seems so long.....
    https://www.youtube.com/watch?v=_YbVsEhNuT0

    We really don't get cut off short, you know? And we have to endure our scoliosis for long periods of time, almost like our own Green Mile.....

    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
    Join Date
    Jan 2016
    Location
    Sioux City, Iowa
    Posts
    91
    Quote Originally Posted by mistybowe View Post
    It has been so long since I have checked in with the site after religiously checking in daily throughout my recovery. I am about 16 months post now and have done really well, all things considered. I healed fairly quickly right out of the gate, and by 9 months, was cleared to do most activities. My doctor said that the hardware all looked really good, so he was comfortable with me getting 'back on the horse', so they say. I was able to golf, travel and even dance a bit over the summer and through this fall with little issues. Even though I have a desk job and sit the majority of my day, I try to stay as active as possible and work out 3-4 days a week on my Peloton or treadmill and I think it has really helped.

    I do still feel like I am still in healing mode some days. My pain is usually at the top of my fusion (T-6 and above) and can sometimes force me to lie down for a bit if I do too much. Just recently this pain has seemed worse and is concerning me a bit so have scheduled a visit with the doc this Friday. I am sure that it's nothing and just normal aches and pains, but I am always nervous that something will go wrong. Better to be safe than sorry

    I just wanted to let all of the supporters know on here how much your support and advice meant to me. I probably didn't express that enough in the early months when my only concern was getting better, but a very big thank you is in order. A special thanks goes out to Ed in particular. The time that you put in here is noticed and admired.

    Much love!
    Misty
    Hi, Misty! It is good to hear from you! I'm so happy that you are doing well, and I hope that your aches and pains are nothing serious, just part of the healing process.

    I will say, I felt pretty good at my 1-year post op check up, but not 100% great. I did notice more healing from 12 months to 16 months. I'm now 18 months out and I feel like I'm as good as it's gonna get. I can't complain as I am SO MUCH better than before my surgery. But, I have certainly make life adjustments, and I'm OK with that. I'm sure the "18 month healing time" for me was partly due to my age.

    Please let us know how your appointment goes.

    Kathy
    Decompression surgery L4/L5
    April 3, 2015
    Twin Cities Spine Center - Dr. Joseph Perra
    Fused from T11 - Sacrum anterior/posterior
    June 24, 2016 - 55 years old at surgery
    Twin Cities Spine Center - Dr. Joseph Perra
    Before Surgery: 42 degrees lumbar, 28 degrees thoracic
    After Surgery: 10 degrees lumbar, ?? Thoracic
    2 inches taller

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