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Thread: CRPS....anyone have it?

  1. #1
    Join Date
    Jan 2012
    Location
    Yacolt, WA
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    CRPS....anyone have it?

    OK, stop laughing. You think that I left the "A" out of CRPS, right? When my Pain Management MD told me about CRPS as a possible diagnosis, I said to myself, "finally a problem that has a fitting name!" It stands for Complex Regional Pain Syndrome. Anyone with the diagnosis and what has worked or not worked?

    "Spinal Surgery, the gift that keeps on giving".

    Susan, feeling a little bit CRPY today
    Last edited by susancook; 08-02-2017 at 03:31 AM. Reason: always a better way to say something
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  2. #2
    Join Date
    Sep 2011
    Posts
    237
    yes - it is another name for Chronic Pain but more significant because Scoliosis is a complex condition

  3. #3
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Hi Susan, while I wasn't diagnosed with it, the diagnosis I do have (arachnoiditis) has similar symptoms. I'm not sure if CRPS has the neurological symptoms . I think it can be treated similar. Check out my latest thread and Ed posted a pamphlet that describes treatment.
    Last edited by jackieg412; 08-02-2017 at 09:30 PM.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  4. #4
    Join Date
    May 2010
    Posts
    345
    Hi Susan, I have a question about CRPS~~ what are your symptoms? I know pain for sure, but Is it all over your body? You always seem to be able to put a smile on my face , while telling us about a serious condition!!! I have been wondering about you and how you're doing.I guess I know now. (sad face).What does your pain management Dr. suggest for you? I'm sorry you're having to deal with this. Warmly , Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  5. #5
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,794
    Linda Luker, who was a participant to the listsrv that predeceased this forum, was diagnosed with Reflex Sympathetic Dystrophy, which was later renamed to CRPS. Typically, there's only one body part involved (e.g., one leg), but in Linda's case, and probably Susan's as well, the spine being the area of trauma causes pain in the entire body. Linda suffered for about 15 years. She could barely move. She spent 95% of her time in bed. Linda died late last year, finally out of pain.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
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    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  6. #6
    Join Date
    Aug 2009
    Location
    St. Louis Missouri
    Posts
    48

    Unhappy

    How old was Linda when she passed. Very sad to hear.

  7. #7
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,794
    Quote Originally Posted by dailypain View Post
    How old was Linda when she passed. Very sad to hear.
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    75
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

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