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Thread: Trying to decide

  1. #16
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,534
    Here is another Dr Tennant vid....and Neuroinflammation. (and some Jazz music....)
    https://www.youtube.com/watch?v=cdQvuO6J6_I

    Arachnoditis Handbook for relief and recovery
    http://foresttennant.com/foresttenna....pdf?v=Nov2016

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #17
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Thanks Ed for the information. The one video really explains the unusual side effects. The one about sweating explains the very different experience I was having. If I am down on my hands and knees I will sweat. When I stand up it goes away. It is so strange but now I know the possible cause.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  3. #18
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,534
    Dr Burton refers to the subarachnoid space as the most precious and fragile enviornment in the human body. His statement that most of us have arachnoiditis, especially after spine surgery is a bit of a wake up call ....There is something to be said about "doing nothing"....its not as crazy as it sounds, but then many of us have no choice. We do have to take risks sometimes, as scoliosis patients its something we have to do. (smug face)

    I wonder how many doctors are trained to spot arachnoditis? I also wonder how many of us have it and don't know we have it......

    I hope Dr Tennent's handbook helps....it seems that keeping the spinal fluid moving is important. I don't know if you have had any stretching instructions....I think that this is important. Pay attention to Dr Beak. (smiley face)

    Interesting how he likes to use magnets....

    You hang in there Jackie, try to post when you can.....

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #19
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Ed I don't think many doctors are trained to spot this. It has taken me a long time to go from spinal surgery to diagnosed. I am not even sure my spine surgeon believes it. I started noticing the neurological problems. They would show on exam and on Emg. He could not explain them. So he sent me to a neurosurgeon. The first one did a myelogram but wasn't interested in finding the problem. So through the neurologist I got another referral tu a neurosurgeon that is spine specific. He is at a large University Hospital in Chicago. He is a little younger and the hospital is known as progressive.
    I saw him in January. On the same myelogram he showed me the arachnoiditis.He did say there isn't any test that proves it. He said you use the images and history of the patient.
    This could explain why some patients have a harder time. Who knows.
    After reading some of the information that you shared, it helps me understand the strange things. I get extreme ringing in the ears, but can correct it by laying down. Stuff like that and the weird sweats.
    However here is where I am. The doctor team at Rush University truly believes it. So a spinal cord stimulator should be the treatment. We can not do that because they can't get through the fusion. It would require removing part of it and the surgeon doesn't want to take a chance.
    So they put in a intrathecal pump to deliver pain meds and another med for the neuro problem . That was done on Wed. It is a little early to say how much it will help. I will post more as I know.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

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