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Thread: Anyone having hip problems

  1. #1
    Join Date
    Aug 2009
    Location
    St. Louis Missouri
    Posts
    47

    Anyone having hip problems

    Hi all:

    I was just wondering if any other post surgical scoliosis friend has had any hip issues. The last few years I have been increasing having groin pain. Both legs, not at same time. Currently, it is most days, with very very little walking. I had a five year visit with this time Dr. Gupta, who took Dr. Lenke's patients in St. Louis. The fellow that I spoke with first told me it looks like I have bad arthritis in both hips and I might need a hip replacement. Dr. Gupta just told me I need PT. Then, the next day I saw my radiologist report of my xray and it said the following: ..."Patchy sclerosis involving the femoral heads. ...may also represent developing osteonecrosis."

    If anyone is having groin/hip issues & pain can you recommend any doctor or treatment. I am having to use my walker because of the pain. It also wakes me up at night.

    I've had scoliosis since age 6 with two surgeries. 1969 & 2006. I am fused T3-sacrum.

    Appreciated any recommendations. Thanks! Karen

  2. #2
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,508
    Kathy, You mean drivetrain issues? I refer to the hips, knees, and feet as drivetrain......You get your back fixed, and then the drivetrain takes a dump. You know, just like a car, its always something! Its a good thing we don't have engine lights because they would be lit. "What color is your engine light, Yellow or Red?" "Mine was blinking a few years back, and had to have that fixed"

    Necrosis is a dirty word you know? We don't even want to talk about that! But motion, moving, and walking will help with cell death. Its all about the blood and moving it around. (And eating tons of blueberries!)

    Things start with therapy, self or otherwise. It seems we start with some sort of physical therapy program when we are young, which starts quite a bit before any surgery, and then a half a century goes by . We get fused, some more time goes by and then we start the process all over again......The 50 year cycle of living with scoliosis. All we want to do is stay out of the repair shop....

    It takes a certain amount of determination to move forward.....the determination to succeed participating in an alternative program as a teen, the determination to succeed after having your whole spine fused, or even the determination to put one foot in front of the other as we age. It seems like it gets harder as we age, and after what we went through with the surgeries and all, one foot in front of the other might seem like an easy thing to anyone else, but what do they know? They don't know....Sometimes I yelp from pain jabs and stabs, people ask what wrong, and I simply tell them I make a lot of noise. Its the easiest answer.

    My philosophy might have been that when the tire goes flat, to simply drive that sucker on the rim and add more gas by stepping on the pedal. I guess I might have done that by waiting so long for my surgeries, but now I think its a good way to think ageing with scoliosis...We can handle the pain as long as the engine light isn't blinking.

    One foot in front of the other.

    Add more gas.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  3. #3
    Join Date
    Aug 2009
    Location
    St. Louis Missouri
    Posts
    47
    Ed:

    You must be a writer. Your analogy is spot on and entertaining at the same time.

    I guess you're telling me I must keep up with the PT. (I will try the blueberries). The PT is always a young person used to having sports injured clients. Very rarely do I get one that even knows what scoliosis is and I always bring a copy of an xray to show my hardware.

    I'll do my best. My sweet husband does so much, I feel bad. It gets very hard at times. My engine light is blinking every day.

    Nice talking with you. BTW, my name is Karen. (From St, Louis) Code name: Daily Pain (lol) PS: You gave me a smile. Thanks!
    Last edited by dailypain; 06-15-2017 at 05:52 PM.

  4. #4
    Join Date
    May 2010
    Posts
    343
    Karen,
    I'v notice this time that my hips are really sore when I walk. I haven't had the pain and pressure there before. Hope it goes away. You are certainly one tough lady. Although I know the struggle gets very trying and depression is a huge part of this if not kept in check. I hope you find a good surgeon.Its a lot for you to think about!! If you have to use a walker things are not good. Best wishes to you!! Warmly, Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  5. #5
    Join Date
    Aug 2009
    Location
    St. Louis Missouri
    Posts
    47
    Thanks, Linda! Good luck with your issues too. Not that I want anyone else in pain but it sometimes helps to talk to people that really understand scoliosis and everything that goes with it. Plus pulmonary issues that I haven't mentioned yet.

    Take care,
    Karen aka Daily Pain

  6. #6
    Join Date
    Aug 2009
    Location
    St. Louis Missouri
    Posts
    47

    MRI ruled out Necrosis...Yay

    Quote Originally Posted by dailypain View Post
    Hi all:

    I was just wondering if any other post surgical scoliosis friend has had any hip issues. The last few years I have been increasing having groin pain. Both legs, not at same time. Currently, it is most days, with very very little walking. I had a five year visit with this time Dr. Gupta, who took Dr. Lenke's patients in St. Louis. The fellow that I spoke with first told me it looks like I have bad arthritis in both hips and I might need a hip replacement. Dr. Gupta just told me I need PT. Then, the next day I saw my radiologist report of my xray and it said the following: ..."Patchy sclerosis involving the femoral heads. ...may also represent developing osteonecrosis."

    If anyone is having groin/hip issues & pain can you recommend any doctor or treatment. I am having to use my walker because of the pain. It also wakes me up at night.

    I've had scoliosis since age 6 with two surgeries. 1969 & 2006. I am fused T3-sacrum.

    Appreciated any recommendations. Thanks! Karen

    Hi All:

    Finally got to see a hip specialist and had an MRI to check on Necrosis in my hips. No Necrosis, just mild osteoarthritis. SO NOW I KNOW ALL MY PAIN IS FROM MY BACK. PROBABLY SI JOINTS!

    Have a good day everyone.

    Karen aka: Daily Pain

  7. #7
    Join Date
    May 2010
    Posts
    343
    Quote Originally Posted by dailypain View Post
    Hi All:

    Finally got to see a hip specialist and had an MRI to check on Necrosis in my hips. No Necrosis, just mild osteoarthritis. SO NOW I KNOW ALL MY PAIN IS FROM MY BACK. PROBABLY SI JOINTS!

    Have a good day everyone.

    Karen aka: Daily Pain
    Hi Karen, I'm glad it's not necrosis, but osteoarthritis can cause pain too can't it? Although the said it's mild. So is it that the S1 joints radiating over to the hips, or could it be the iliac screws causing the pain? I'm feeling my iliac screws, as I'v lost quite a bit of weight, and the are close to the hip joints. Whatever, it's too bad you have to suffer with this. I have a cane I use most the time because of my left leg, knee and foot issues. I need surgery on my foot real bad , but have had so many surgeries, I am wore out, but I can't hardly put a shoe on my left foot. Sorry about my venting on your thread!!! I can relate to what you are feeling. Although when I look around I know I'm fortunate to be able to walk at all. I know that doesn't make a person feel any better if you're hurting!!!! Sending warm vibes to you, Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

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