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  1. #1
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    RIP spinal fusions

    I am kind of regretting my surgery.

    https://www.statnews.com/2017/06/01/...-back-surgery/

  2. #2
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    It is up to the SRS to issue a statement if they want to stay relevant and give some credibility to what they are doing.

    This is not science-based medicine. The silence from the SRS is not acceptable anymore. We want transparency. Why they ommit horror stories?

    Big pharma, big insurance, medical implants businesses, and attorneys are washing away the truth and putting pressures on doctors to perform surgeries.

    They will become irrelevant as the truths are known and are spread to the the general public.
    Doctors and surgeons are puppets on the hands of these big businesses. Reps from these industries are influencing doctors just for the sake of money.

    If doctors are not well-paid they will become easy-preys and will be manipulated by the industries they rely on to pratice their profession.

    SPEAK UP!
    Last edited by richardis; 06-02-2017 at 07:38 AM.

  3. #3
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    richardis, you are mixing apples and oranges.

    The operation Tiger Woods got is a one or two level fusion for back pain. This is one of the most over-used and useless surgeries being done. It is scandalous.

    This has NOTHING to do with long fusions done for scoliosis. Posterior fusions are the gold standard of treatment for surgical range scoliosis. There is no other treatment as effective for curvature. For pain, the best treatment is less clear. Fusion saved the lives of my daughters. And given your curve is now <10 degrees, fusion has technically cured you of scoliosis.
    Last edited by Pooka1; 06-01-2017 at 09:52 PM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #4
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    Quote Originally Posted by Pooka1 View Post
    richardis, you are mixing apples and oranges.

    The operation Tiger Woods got is a one or two level fusion for back pain. This is one of the most over-used and useless surgeries being done. It is scandalous.

    This has NOTHING to do with long fusions done for scoliosis. Posterior fusions are the gold standard of treatment for surgical range scoliosis. There is no other treatment as effective for curvature. For pain, the best treatment is less clear. Fusion saved the lives of my daughters. And given your curve is now <10 degrees, fusion has technically cured you of scoliosis.
    I second this- fusion for Scoliosis is totally different. It is bad enough that the individual scoliosis terms get all muddled up - we don't need to confuse sufferers any more with scare stories about fusion surgery for totally different back issues.

  5. #5
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    Quote Originally Posted by Pooka1 View Post
    richardis, you are mixing apples and oranges.

    The operation Tiger Woods got is a one or two level fusion for back pain. This is one of the most over-used and useless surgeries being done. It is scandalous.

    This has NOTHING to do with long fusions done for scoliosis. Posterior fusions are the gold standard of treatment for surgical range scoliosis. There is no other treatment as effective for curvature. For pain, the best treatment is less clear. Fusion saved the lives of my daughters. And given your curve is now <10 degrees, fusion has technically cured you of scoliosis.
    In some part, I agree. But why aren't spinal fusions as effective for normal spines as they do for deformities? Nerve compression isn't the cause of pain, certainly (this in spinal fusions done on normal spines) . Muscle imbalances in scoliosis? Maybe or quite certainly. But less mobility means more stiffness.

    Spinal fusions are great for deformities because of the cosmetical benefits which play a role on the mental well-being and confidence.

    I choose surgery due to pain and it hasn't worked out yet. I am not cured, I simply have less mobility and a straighter spine.
    Not to be a bummer, but let your daughters age. So far, so good. I wish them the best.

    I will always push for a cure, not a fix. The science behind a spinal fusion is the same for every condition they apply it to, be it a one-level fusion or a (+)ten-level fusion. They have to push the frontiers of knowledge. They study so many years and the best they can come up to is a rod to straighten it up? Sorry, but even a kid in elementary school would come up with that simple fix.

  6. #6
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    Quote Originally Posted by richardis View Post
    I will always push for a cure, not a fix. The science behind a spinal fusion is the same for every condition they apply it to, be it a one-level fusion or a (+)ten-level fusion. They have to push the frontiers of knowledge. They study so many years and the best they can come up to is a rod to straighten it up? Sorry, but even a kid in elementary school would come up with that simple fix.
    No the science isn't the same. One or two level fusions for pain are not usually successful as far as I know. I read about one surgeon who was doing these all day and finally just had to stop because they weren't working for pain. Now he investigates pain at the level of the brain.

    Long fusions for scoliosis in kids at least is almost always a huge success. That is what there is a consensus about fusing large progressive T curves. We have the evidence. My daughters would be dead if they weren't fused. One had a curve that moved 5 degrees a month. She was literally collapsing. She also now does not technically have scoliosis (curve < 10 degrees) and has a normal life with no deformity or pain. Her surgeon LITERALLY saved her life. I don't know how to make this any clearer to you. Surgeons save kids all the time. Not just from collapsing spines but from the stigma of being deformed even if their spines wouldn't kill them outright.

    While fusion is obviously an effective treatment for progression, it may not be for pain. That is much more complex. Many adults on this group have been fused for pain and it was successful. Some were not successful. Maybe the studies of pain at the level of the brain will eventually help you and these people.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #7
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    Quote Originally Posted by richardis View Post
    Not to be a bummer, but let your daughters age. So far, so good. I wish them the best.
    They probably wouldn't be able to age now if they weren't fused. Your curve is not in the same league as theirs so maybe you are not able to relate. Their spines were collapsing. That is incompatible with life.

    You probably have AIS unrelated to some other condition. My daughters have some connective tissue disorder that may or may not be Marfans. Your experience almost certainly does not map onto theirs. They lead normal lives. One is doing an internship where she is in a mountain stream every day rowing boats, retrieving fish traps, carrying sampling gear, etc. etc. NONE of this would be possible had she not been fused.
    Last edited by Pooka1; 06-02-2017 at 08:58 AM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #8
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    Quote Originally Posted by Pooka1 View Post
    They probably wouldn't be able to age now if they weren't fused. Your curve is not in the same league as theirs so maybe you are not able to relate. Their spines were collapsing. That is incompatible with life.

    You probably have AIS unrelated to some other condition. My daughters have some connective tissue disorder that may or may not be Marfans. Your experience almost certainly does not map onto theirs. They lead normal lives. One is doing an internship where she is in a mountain stream every day rowing boats, retrieving fish traps, carrying sampling gear, etc. etc. NONE of this would be possible had she not been fused.
    I am not saying that you didn't take the best decision for them.

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