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Thread: 10 year anniversary, saying "hi", and health update

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  1. #1
    Join Date
    Oct 2007

    10 year anniversary, saying "hi", and health update

    Hi from the past! I used to be very active on here but dropped out last year after some sadness in my life. I thought I would stop in and say hi since this is an important day to me and I was thinking about you all.

    TEN YEARS AGO today (May the Fourth be with me!) I had my spinal surgery. I had a slow recovery, and after 10 years I wish I could say I am back to "normal" but instead will say I am doing fine with my new "normal" - and am glad I had my surgery. Life offers many challenges and various paths we choose. The interesting part is how we can change our priorities and move on with new ways to navigate our days. A work in progress!

    Thanks to all who had an input on here with me over those years.
    My Charcot Marie Tooth disease is my main health issue now, even though the limitations from my scoli surgery are still present. I did get to go to one of the CMT Centers of Excellence in December for a full (10 hour) exam at the Univ. of Iowa CMT clinic. I will go back every year as this is a progressive disease. I have an axonal form (CMT Type 2) and it is autosomal dominant.

    That's enough about that. Just sending my best to you all and letting you know I'm still around. Take care -- Susie
    Last edited by Susie*Bee; 05-04-2017 at 09:08 PM.
    66 and still heartbroken...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

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