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Thread: Charcot-Marie-Tooth + Spinal Fusion

  1. #1
    Join Date
    Feb 2017
    Location
    Silver Spring, MD
    Posts
    3

    Post Charcot-Marie-Tooth + Spinal Fusion

    Hello new community! I'm having a two-part fusion procedure next week at Georgetown Univ. Hospital in D.C. Besides having an "S" curve of 56 and 68 degrees, I also have a peripheral neuropathy -- Charcot-Marie-Tooth (CMT) disease. CMT patients have weak hands and leg muscles, which means I'm unable to squat to bend down and buttoning shirts is problematic. I have two questions: 1) Has anyone been a patient of Dr. Fred Mo? 2) Do any other Forum members suffer with CMT.... I'm looking for advice on how they may have made adjustments and how long they were in rehab facility. I've been told to expect a week in the hospital and 1-3 weeks in a rehab facility.

    Judybug
    50ish female, married, two teenagers
    adolescent scoliosis (Milwaukee brace)
    soon to have cages L5 -- S1 and fusion T4 to pelvis

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
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  3. #3
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,551
    Hi Judy,

    Next week is right around the corner....

    Can I ask about your CMT? Was this diagnosed as an adult?

    Welcome to the forum

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
    Join Date
    Feb 2017
    Location
    Silver Spring, MD
    Posts
    3
    Hi Ed, CMT1A was diagnosed in early childhood. I'm fairly independent. I do wear AFOs and avoid marathons, extensive hiking and weight lifting

  5. #5
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,551
    Judy, I can see marathons being out with the foot drop issues. My father had ALS and had the same problem....He was diagnosed late in life....

    Have you been waiting a long time for this? and are you ready? Some of us cant wait for surgery and some of us wait forever....like me. My pain was out of control and didnít have a choice.

    I tried a search for Dr Mo here, and didnít find anything. But I see he did a fellowship at HSS...which is good.

    Wishing you all the best.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
    Join Date
    Feb 2017
    Location
    Silver Spring, MD
    Posts
    3

    Red face

    Thank you Ed and Linda for your help.

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