Hi Sheryl, I did some speed reading of the 3 pages of entries.
I had adult degenerative scoliosis and have had a convoluted journey in recovery.
- the surgery can be positively life changing, esp if you are in a lot of pain preop.
- plan on lots of pain postop and have someone help you advocate for you if the doctors are not managing your pain well. Pain management is a fine tuning for each person. I have been both under and over medicated.
- the brace was my friend. T shirts as recommended by Irina. I did not worry about a bra.
- tell your supports to: plan on a postop problem. Almost everyone had one that I know about. I have won the lottery on postop problems. Having said that, my option was to be permanently in a wheelchair on opioids within 5 years if I did not have surgery. Someone else mentioned that scenario also.
- TRUST your surgeon
- go to "intensive rehab"
- reachers are great!
- have your support persons keep a notebook of everything that happens: what the surgeons says, timing of everything.
Sending you relaxing thoughts, a trusting perspective, and few bumps along the surgical way,
Last edited by susancook; 02-11-2017 at 07:54 PM.
Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer