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  1. #1
    Join Date
    Sep 2016
    Posts
    82

    MRI and Emergency Room

    Just left ER and got 2 shots and more discouragement. The Dr said no one in BR would help me and that I should go to Baylor in Houston as soon as possible as I'm losing muscle strength now in leg and it's getting worse.

    My New York appt is end of February for consultation but I don't know if I can wait as my nerve stuff has gotten worse. I'm Hoping to get an MRI and email to a few Dr's and see if one of these scoliosis Dr's can see me soon.

    I am scheduled to see another Ortho Dr. Monday here locally and all I need from him is to get this MRI.

    Meantime I'm gonna stay on anxiety meds to help!
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  2. #2
    Join Date
    Sep 2016
    Posts
    82
    Obviously I am not an expert on Scoliosis but if someone here who knows more with nerve damage and scoliosis, can I contact you to communicate?

    I am in the process of getting more test done here locally so that I may take them or email them with the scoliosis specialist that can hopefully help me. I'm calling the specialist after my appt on Monday to see if I can get in sooner. I wish I had done all this sooner but this is it and I e got to focus on getting help and answers.

    I really appreciate it.
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  3. #3
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,535
    Melisse, your trip to ER brought back memories...I went through those battles years ago, ready to check into the emergency room and demand to be knocked out for a break. This of course never happened (for my scoliosis) but many of us here know how this feels.

    I donít know if there is a ďscoliosisĒ surgeon in BR, but I would NOT let anyone else operate on my spine. Scoliosis surgeons are the only ones trained to ďbalanceĒ our spines which is important.

    For nerve pain, I did many hot water soaks, and massages.....NSAIDís also work well for pain....Celebrex, Diclofenac....You can get these through your GP.

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
    Join Date
    Sep 2016
    Posts
    82
    Ed,

    I was at my wits end yesterday filled with fear and anxiety. I'm not in a ton of pain but realize my right leg is getting worse.

    I've already had a neurosurgeon refuse to see me the other day while waiting in his exam room. My fears seriously went into overdrive realizing my back is severely complicated and learning from him and the ER dr. That no one will touch me here in Louisiana.

    I'm great full for this site and for the compassionate people who have given me advise, you, Linda, Sharon, Jackie, misty.

    Like I said I hope to get my MRI soon so that I can take to Baylor and New York drs that I have appointments with.

    I am a strong woman but all this needed research and education and rejection is overwhelming but it's my life and spine and I'm not a quitter.
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  5. #5
    Join Date
    Sep 2016
    Posts
    82
    Ed, by the way on a lighter note.

    I could probably sit down with you in real life and exchange snow related injuries. I outlived an avalanche in BC back in 2003, and outlived a snowmobile wreck in 2001 that left me with a compression fracture in my spine.

    I formerly lived in Montana and saw first hand just how amazing but also dangerous those rockys can be.
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  6. #6
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,535
    Quote Originally Posted by Kay1974 View Post

    I was at my wits end yesterday
    Many members here have mastered their fears and anxiety concerning scoliosis.....this comes after experience, and knowing what to expect. Learning to breathe and understanding that change can be hard, accepting change, and of course pulling the old boot straps up is something we get pretty good at. Extreme pain events are true tests that we overcome and we do heal. I like to repeat this thought, even if it is hard at times, but we actually do heal. Itís a concept of intention. The intent to prevail means that it has to be more powerful than everything else. Utilize powerful healing thoughts....

    I almost drowned swimming in a lake many years ago. I was way out there coming back and was waving to a lifeguard who was preoccupied with the usual beach action. If he would have saved me, he would have scored, Ha ha but that didnít happen and I had to think about my situation. Since anxiety and panic set in, I realized that I was actually trained to survival float. Of course that worked, and saved the day. Scoliosis is similar in that we learn our bodies and utilize our own methods of self recovery. Hot soaks are good, ALONE, not talking to others, in that we transfer our minds and relax....I found this to be quite helpful. Our first choice should be to simply lay down and do a time out.

    I had way more anxiety ski jumping as a kid...standing above cliffs knowing that it could be a disaster waiting to happen. I learned to relax and transfer thoughts.....This is why I like to post jokes once in a while, comedy takes our minds off pain and anxiety.

    You do need to see a scoliosis surgeon somewhere.....Be careful with MRI co-pays, they can really be a shocker. If no-body has ordered your MRI, donít dictate your own diagnostics, they can be expensive mistakes. X-rays should be cheap, MRIís require laying in expensive machinery which they charge accordingly. CTís usually only for emergency use....

    When did you leave Montana?

    I made it to age 58 today.

    Any day above ground and vertical is a good day....-Burt Munro- The Worlds Fastest Indian

    Ed
    Attached Images Attached Images
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #7
    Join Date
    Jan 2016
    Location
    Sioux City, Iowa
    Posts
    88
    Happy birthday Ed! I hope it was a great day!
    Decompression surgery L4/L5
    April 3, 2015
    Twin Cities Spine Center - Dr. Joseph Perra
    Fused from T11 - Sacrum anterior/posterior
    June 24, 2016 - 55 years old at surgery
    Twin Cities Spine Center - Dr. Joseph Perra
    Before Surgery: 42 degrees lumbar, 28 degrees thoracic
    After Surgery: 10 degrees lumbar, ?? Thoracic
    2 inches taller

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