I've been on the forum reading for years but just now posting. I was diagnosed in 1982 at age 17 with a 28 degree curve after experiencing back pain after exercise. The expert suggested a Harrington rod and body cast at that time. We then went to academic centers in two other cities and they recommended watchful waiting. I've had daily back pain for 15 years now and have progressed to 42 degrees. So much for < 30 degrees at maturity not progressing. I've been managing my muscle fatigue with steroid shots and Botox for years but now am needing more relief. Painkillers work but I do not want to take them during the day. I tried radio frequency ablation but that did not help.
I have a hard time sitting or standing for very long now. My scoliosis expert is not enthusiastic about surgically correcting my spine but will do it if I insist. He does not seem confident that I'll feel better. I went ahead and got bending X-rays and an MRI. He will probably be able to stop at L4...starting at T8 or T4... I have kyphosis as well. My people live a long time and quality of life is important to me.
I'm not sure what to do. He is very well respected and I trust him but I am so uncomfortable and getting worse..
Any advice is welcome.
txgal
I have a hard time sitting or standing for very long now. My scoliosis expert is not enthusiastic about surgically correcting my spine but will do it if I insist. He does not seem confident that I'll feel better. I went ahead and got bending X-rays and an MRI. He will probably be able to stop at L4...starting at T8 or T4... I have kyphosis as well. My people live a long time and quality of life is important to me.
I'm not sure what to do. He is very well respected and I trust him but I am so uncomfortable and getting worse..
Any advice is welcome.
txgal
Comment