Results 1 to 8 of 8

Thread: Problems with atypical curves.

  1. #1
    Join Date
    Sep 2016
    Posts
    82

    Problems with atypical curves.

    Hi everyone,

    Happy December. I am finally headed to a neurosurgeon this coming week and I hope I can eventually get some answers as to what's causing my leg nerve issues. For the last several months my low back pain got way worse and created newer nerve related symptoms. Burning in low back, butt area with nerve feeling sensations starting in back thigh and down in leg, calf. It seems to be progressing, not getting better even with lots of stretching for sciatic and Schroth stretching for last several months.

    Apparently with having a main right side lumbar curve with left thoracic compensatory curve this shows a bigger red flag. I have never had an MRI as a teenager being diagnosed but after reading about this rarer curve, I probably should have. I am also seeking out consultations with a scoliosis specialist and hope to atleast hear if I can even be helped with my type of curve and if there is something more there than just a backwards curve.

    I am hoping to rule out things that could be like tumor and other spinal chord issues. Does anyone else here have atypical curves and did you have anything more than just a curve?

    I'm thankful for all of your knowledge and am trying wait patiently for answers from the specialist doctors.
    Last edited by Kay1974; 12-03-2016 at 09:26 AM.
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  2. #2
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,797
    With the possible exception of congenital bone issues, I doubt the left thoracic/right lumbar curve makes any difference to a scoliosis specialist. If you want an answer to whether or not there are underlying factors, you'll probably need to see a geneticist.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  3. #3
    Join Date
    Sep 2016
    Posts
    82
    Thanks Linda. I have never worried about having that atypucal curve until the pain slowly started a few years ago and now with nerve pain daily, I'm a little worried.

    Hopefully the Neuro Dr will be able to help me figure out what's causing it before it's too late and I give myself permanent nerve damage. This nerve stuff is seriously getting on my last nerve
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  4. #4
    Join Date
    Sep 2016
    Posts
    82
    Today was discouraging. I stay as strong as I can and go about my life as well as I can. I waited all month to see this neurosurgeon as my symptoms are getting worse with nerve pain and other stuff going on and is worrying me more. The PA comes in to talk to me and gets my copies of my X-rays to give to the Dr. The PA comes back 10 minutes later and says he can't see me as my spine is beyond him wanting to help me. So I leave.... Upset! Another dead end.

    The PA said she would contact a different scoliosis dr. to try and see me.

    I just want an MRI so that I have something to bring with me when I make my plans to see some of these top Dr's I hear about on here.

    Tomorrow will be a better day.
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  5. #5
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    I do know how discouraging it is not to get an answer when you are so looking for one. A good thing is at least he was direct and honest and willing to make a referral.
    I think your primary care doctor can give an order for a MRI. Yes it is important to have some of these scans with you when you go. Make sure to request your copy if you have one. This way it is easy to go where you need to.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  6. #6
    Join Date
    Sep 2016
    Posts
    82
    I really hope to see someone soon to get the MRI done. I have braces on unfortunately but have no problems getting them removed for the test if needed.

    I would like a complete spinal chord test to check for everything that can relate with a serious major right sided lumbar/ left thoracic curve.

    I've had a lot of strange problems over the last few years that have been escalating and it's got me worried.

    I'm headed out of state to see a Scoliosis specialist at the end of February and hope the nerve stuff doesn't keep getting worse and I can wait 11 more weeks.
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

  7. #7
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Kay you may be ok with the braces. When I worked for an orthodontist the braces were stainless steel and that is not magnetic . Just ask if you need your wires removed.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  8. #8
    Join Date
    Sep 2016
    Posts
    82
    Quote Originally Posted by jackieg412 View Post
    Kay you may be ok with the braces. When I worked for an orthodontist the braces were stainless steel and that is not magnetic . Just ask if you need your wires removed.
    Yes. I have an orthodontic appt Monday so will find out. My names Melisse by the way. My username is my middle name, sorry for the confusion.
    Melisse
    Age: 42: with 42* Lumbar, 32* Thoracic.
    Diagnosed with Adolescent Scoliosis @ 12 y.o. Thoracolumbar curve was around 28*
    Wore Boston Brace 2 -3 yrs

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •