Page 3 of 3 FirstFirst 123
Results 31 to 35 of 35

Thread: First day home from the hospital

  1. #31
    Join Date
    May 2016
    Posts
    48

    Question So far, congrats: pain level?

    Quote Originally Posted by 1998golfer View Post
    Hey everyone,
    I made an account over the weekend hoping to post before my surgery, but it wouldn't let me post.

    Anyways, I can now, and wanted to share my story.
    I'm 18 years old, male, found out I had scoliosis when I was 17, and through a series of appointments and referrals, was lucky enough to find an opening for surgery on July 11th at a local hospital.
    Details:
    Last July, 40 curve from initial x-ray
    March, 47 curve, new x-ray from the surgeon
    At the appointment in March, we talked to the surgeon about surgery and decided it would be best to do it before it got worse as the years go by, and earlier that day he had someone else cancel their surgery for July 11th, so we immediately scheduled it for then.
    I got my blood work done July 8th just for type/cross.
    Clear liquids Saturday, nothing Sunday, was at the hospital around 5:20am on Monday to check in, and they wheeled me to the operating room right on time at about 7:30am. I think I woke up around 12:30-1pm, my surgeon and his team did an incredible job.
    I stayed in the PICU for the duration of my visit, came home yesterday in the early afternoon.
    I've done a lot of walking, sitting up/down, etc since the surgery, and apparently they were impressed by my progress and pain tolerance at the hospital, and even considered letting me go home Wednesday.

    Soo... Scoli details... They fused T4-L1 with 2 rods, 1 titanium and 1 cobalt-chrome, and 17 titanium screws. I don't know the new curve amount but it looks almost perfectly straight, considering it was 47 3 months before surgery.
    So, I highly recommend my surgeon Dr. Brian Shaw in Colorado, and I'll attach the xrays from before surgery (March) and after surgery on Monday on this post.

    If anyone has any suggestions on how to ensure quick and safe recovery... I'm very interested, as well as anything else I might want to know for efficient pain management.

    Before:
    https://imgur.com/yV35CPA

    After:
    http://i.imgur.com/fOs3dED.jpg

    I look forward to hearing from all of you!
    -Golfer
    Golfer- Just a few quickies. Have not had the surgery, but need it, longer job than yours ( mine will be from base of neck to posts screwed into the ilium. Huge job. Not that your's was small. 2 ?s: 1) Can you sleep on your back, i.e. do you feel the hardware? 2) How is your pain level? Manageable, or do you hurt, and if so, can you locate the area? Keep On Getting Better, RJM

  2. #32
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Quote Originally Posted by rjmacready View Post
    Golfer- Just a few quickies. Have not had the surgery, but need it, longer job than yours ( mine will be from base of neck to posts screwed into the ilium. Huge job. Not that your's was small. 2 ?s: 1) Can you sleep on your back, i.e. do you feel the hardware? 2) How is your pain level? Manageable, or do you hurt, and if so, can you locate the area? Keep On Getting Better, RJM
    I am fused from C2x -, sacrum if you have any questions
    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #33
    Join Date
    Jul 2016
    Posts
    18
    Quote Originally Posted by LindaRacine View Post
    I'm surprised that he called it kyphosis. You were actually hypokyphotic. That is, you had too little kyphosis. It's relatively common in teens with thoracic curves. The postop sagittal films look really good.

    I hope that you're successful in straightening out your cervical spine. It looks pretty uncomfortable.

    --Linda
    That makes sense, the paper he gave me said "kyphoscoliosis", he never said kyphosis.

    And thanks, I'm not too confident it'll fix itself, it's a bit painful pushing my arm down to make my shoulders level... Would an extended fusion surgery be as hard as the first one? Hopefully he'd only need to go to T2 or T1, max, but that's just my guess
    First diagnosed July 2015, 40
    Follow up March 2016, 47

    Fused T4-L1 July 11, 2016 - age 18
    Pre-surgery curve: 47+
    Not sure corrected curve yet

  4. #34
    Join Date
    Jul 2016
    Posts
    18
    Quote Originally Posted by rjmacready View Post
    Golfer- Just a few quickies. Have not had the surgery, but need it, longer job than yours ( mine will be from base of neck to posts screwed into the ilium. Huge job. Not that your's was small. 2 ?s: 1) Can you sleep on your back, i.e. do you feel the hardware? 2) How is your pain level? Manageable, or do you hurt, and if so, can you locate the area? Keep On Getting Better, RJM
    I can't feel the hardware, I just feel the stiffness of that area of my back. It'll take some getting used to.
    I tried yesterday to sleep on my stomach and it was quite painful.. Sleeping on my left side or my back is the most comfortable.
    My pain level is very low, depending on what I'm doing. When laying down, sitting, or walking, it's zero to uncomfortable. But the last few days I've been driving and riding my bike, I'm pretty sore but not bad enough to take any pain meds. I haven't taken anything since July 22nd, 11 days post-op.

    That's a big surgery, I wish you luck. Talk to some of the others here with longer fusions, they'll have better advice. And also how old are you, I'm only 18 and I'm pretty sure my relatively young age is making the recovery quicker.
    Best wishes,
    -Golfer
    First diagnosed July 2015, 40
    Follow up March 2016, 47

    Fused T4-L1 July 11, 2016 - age 18
    Pre-surgery curve: 47+
    Not sure corrected curve yet

  5. #35
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,798
    Quote Originally Posted by 1998golfer View Post
    That makes sense, the paper he gave me said "kyphoscoliosis", he never said kyphosis.

    And thanks, I'm not too confident it'll fix itself, it's a bit painful pushing my arm down to make my shoulders level... Would an extended fusion surgery be as hard as the first one? Hopefully he'd only need to go to T2 or T1, max, but that's just my guess
    Kyphosis and scoliosis = kyphoscoliosis. So, scoliosis and kyphosis is saying the same thing as kyphoscoliosis. What I think you actually have is scoliosis and thoracic hypokyphosis.

    It's hard to say whether an extension of your fusion would be an easier surgery than the original one. Typically it is, so your recovery could be easier. However, I think you'll find that having your cervical spine fused will be somewhat more bothersome in the long run, depending on how high they would need to go.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •