Page 2 of 4 FirstFirst 1234 LastLast
Results 16 to 30 of 48

Thread: 14 months after surgery and need revision 😒

  1. #16
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,549
    Revisions are a walk in the park compared to the original one. I have had 4 revisions. So sorry that this happened. Send healing thoughts, Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L5 screw

  2. #17
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    92
    Back from seeing the Surgeon in Toronto, I had a catscan there and was fitted for a Jewitt Brace. I have to leave it on except for sleeping.
    And come back to see him in a month.
    It is not very comfortable and hard to get up and down with it on. But at least it is not a solid brace so should not be as hot as the one Susan had to wear.
    Doc said when this is healed I will be scheduled for my revision surgery. Can't wait to get this over with and get on with my life, I will be 70 tomorrow! Oh how time flies.
    Wishing you all a wonderful summer.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused to S1 with screws in pelvis

  3. #18
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,549
    Quote Originally Posted by Marianne View Post
    Back from seeing the Surgeon in Toronto, I had a catscan there and was fitted for a Jewitt Brace. I have to leave it on except for sleeping.
    And come back to see him in a month.
    It is not very comfortable and hard to get up and down with it on. But at least it is not a solid brace so should not be as hot as the one Susan had to wear.
    Doc said when this is healed I will be scheduled for my revision surgery. Can't wait to get this over with and get on with my life, I will be 70 tomorrow! Oh how time flies.
    Wishing you all a wonderful summer.
    Happy 70th Birthday! You caught up with me!
    The good side of a brace is that it greatly decreases the fear that if you were in a car wreck or someone bumped into you at the supermarket, that it would hurt.
    "It is what it is".
    Hoping for a cool summer!
    Sending you healing thoughts,
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L5 screw

  4. #19
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    92

    Still waiting.

    It has now been 18 months since I was told I need revision surgery and still no date.
    I spoke to my surgeon's secretary this morning and she told me it will be a while yet. They have no beds in the hospital, people are in halls and any where else they can put them. And that would not be acceptable after my surgery.
    So we will just have to wait until there are beds and nurses available.
    I am back to using a walker when going out, I can walk with a cane when we go visiting and mostly sitting around.
    Sorry just needed to vent.
    Ed I send you a PM yesterday.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused to S1 with screws in pelvis

  5. #20
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,702
    I think that is terrible that you still don't have a date for surgery. I guess we shouldn't complain about our healthcare in the US. I feel for you.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  6. #21
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,655
    Quote Originally Posted by Marianne View Post
    Ed I send you a PM yesterday.
    Marianne, I replied to your PM. Please use my e-mail address as the PM system limits after 3 sentences.

    Just respecting the privacy of the PM system.

    Thx
    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #22
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    92
    Thanks Karen........

    Ed on the forum is fine thanks.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused to S1 with screws in pelvis

  8. #23
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,549
    Marianne, so sorry that your back has caused more problems and that surgery has been delayed. I have also had a roller coaster ride to a proxy of wellness. Take care of yourself and keep putting one foot in front of the other. Hoping that you have a surgery date soon.
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L5 screw

  9. #24
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    92
    Thanks Susan, yes you are trooper you have gone through more then any one else.
    And always manage to keep cheery.i hope all will go well for you.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused to S1 with screws in pelvis

  10. #25
    Join Date
    Sep 2011
    Posts
    302
    I am sorry to hear you have further complications- hope you get a date soon.

    Life in UK as regards hospital appointments and surgical dates is pretty much the same. Due to flu and general lack of funding all routine/elected ops were cancelled for Jan 18 and no new dates given out yet for the re-scheduling ( or how in fact they will re-schedule.)

    I was most interested in your actual appointment with your surgeon before he agreed to a further CT scan. I hear countless people in UK who after a fusion can get no-where with following up when they have pain. Revision surgery seems so rare here- in fact it and further scans etc. are actively discouraged and people have to go to such extreme lengths to get re-seen by their surgeon.

    I am particularly scared as my consult is actively putting me off surgeon and has been doing for some years saying that surgery cannot help with pain- despite the fact that I now have 3 progressive curves and am in pain. I understand that surgery is not done for pain alone but I am very scared that at some point it will have to be done and then I will be left with no-one to help me if I have worse pain afterwards.

    sorry to hijack thread a bit was I was interested in the routine follow ups that you guys have in US and how they compare?

  11. #26
    Join Date
    Aug 2015
    Location
    Midlands, UK
    Posts
    22
    Hi Burdle

    I'm sorry you are struggling to get anywhere with revision in the UK. I'm not sure where you are but I am in the Midlands and have had multiple surgeries at the Spinal Unit at Nottingham's Queen's Medical Centre. They have always listened to me over the years and I have had no problems being referred for CT scans, MRI scans and whatever other diagnostic procedures are required.

    Is it possible to ask your GP for a referral to another hospital for a second opinion?
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    2015 - Sagittal plane imbalance correction by insertion of 30 degree hyperlordotic cage at L5/S1 level (anterior approach) with fixation to pelvis (posterior approach) now fused T2 to sacrum.
    2017 - October - SI joint fusion - left side
    2017 - December - Revision of failed left SI joint fusion

  12. #27
    Join Date
    Sep 2011
    Posts
    302
    Quote Originally Posted by Spinals View Post
    Hi Burdle

    I'm sorry you are struggling to get anywhere with revision in the UK. I'm not sure where you are but I am in the Midlands and have had multiple surgeries at the Spinal Unit at Nottingham's Queen's Medical Centre. They have always listened to me over the years and I have had no problems being referred for CT scans, MRI scans and whatever other diagnostic procedures are required.

    Is it possible to ask your GP for a referral to another hospital for a second opinion?
    Hi,

    I have not had any surgery. I am merely recounting the many many experiences that are relayed on social media about people who have had surgery ending up being told to 'live with the pain' I am please that you have a good 'pathway' but many many people do not in the UK. There is simply no treatment and lots of people are just ending up at a dead end. It is particularly bad now with all the cuts to services.

  13. #28
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,655
    Quote Originally Posted by burdle View Post
    I have not had any surgery. I am merely recounting the many many experiences that are relayed on social media about people who have had surgery ending up being told to 'live with the pain' I am please that you have a good 'pathway' but many many people do not in the UK. There is simply no treatment and lots of people are just ending up at a dead end. It is particularly bad now with all the cuts to services.
    Burdle, We have pretty much the same sort of thing going on here in the states.... There have been posts recently about members struggling to have their insurance accepted. Doctors and hospitals want to get paid, and its not cheap, and it requires really good insurance. When I had my surgeries, I had the best insurance I could buy.

    Now that I am cruising, not needing "immediate" surgery (for my neck) I have the cheap insurance......Why? Because elder males in the US get HAMMERED on medical insurance premiums. Its the stats.... It truly is insane what they want. I could make 2 house payments for what they want. I take the balance of the insurance savings money, and invest it. This will finance a gold plan a few years down the road should I need my neck fused.

    If you need scoliosis surgery here in the states, you have to "time your insurance policies". If you are 30, and you can wait, you don't really need to buy a gold plan. If you think you are going to make a surgical decision within a year, it would be prudent to upgrade your insurance before surgery.

    Young scoli's in the states that are surgical candidates need to plan way ahead.....DECADES AHEAD At least have an IRA, and if they can wait, possibly do a HSA to save for years leading into surgery. Health Savings Accounts offer many advantages....This stuff is really important!

    I am thinking about starting a ROTH IRA for my goddaughters child. She is 6 weeks old.

    I think I am waiting too long.

    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  14. #29
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    92
    Well this afternoon I received a call from my Surgeon's office. They now have a date for me.
    Feb. 22 (that's only 3 weeks from today) yikes!
    Very exited and nervous at the same time. But happy to get it over with and get on with my life
    I am allowed to do my pre-op at my Doctor's here so will not have to make an extra trip to Toronto.
    Thank you all for helping me through this waiting time.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused to S1 with screws in pelvis

  15. #30
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,655
    Good news! Marianne

    Its been a long wait....I don't know what to say other than that your not the only one.

    And with all the waiting, pain, and melancholy, it reminds me of a few cat videos that are just brilliant......

    Some entertainment....

    Henry 3, Le Vet
    https://www.youtube.com/watch?v=IiYUzYozsAQ


    Henry 2, Paw de Deux
    https://www.youtube.com/watch?v=Q34z5dCmC4M



    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •