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Thread: Progression After Skeletal Maturity

  1. #1
    Join Date
    Sep 2003
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    Progression After Skeletal Maturity

    Hi...

    One of the surgeons I work with is looking for x-rays to use in a talk. He specifically wants a patient who had a small curve (say, under 30 degrees) at skeletal maturity, and who has progressed significantly (to a minimum of 50 degrees) since then. If you read this and are willing to share before and after xrays, please PM me.

    Thanks.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
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    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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  2. #2
    Join Date
    Sep 2011
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    240
    Hi,

    Sorry I am not suitable as I have a progressive curve of 59* but have no idea how it was at skeletal maturity.

    However can I ask if the sort of curve you are asking for would be classed as degenerative?

    The UK Website SAUK has combined Progressive AIS in adults with Degenerative Scoliosis and I would have thought that as degenerative curves tend to increase 1 degree a year approx. that a progressive AIS curve in an adult should be 'classed' differently?

  3. #3
    Join Date
    Mar 2010
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    2,755

    Your Box is Full

    I would be willing to share. I only have the actual film from around 2000. Dr. Perra measured it at 41o and Dr. Tribus measured it at 38o which is where I was when I was first diagnosed. The lower curve was insignificant and they never measured it. It is a double now and they are measuring it around38o I think. The upper, I think is around 46o. I know it's not exactly what he's looking for. I only have the 2005 in picture format. I could ask Dr. Tribus' office if they would send me the 2000 disc since they converted it. But, mine is on the move. It's just been over the last couple of years that the most progression has occurred. PM me and let me know if mine is interesting enough for his talk. Mine is unique... never seen before as far as I know.

    My doctors seemed to think that I was not "safe" from progression when I was a teenager and skeletally mature. They TOLD me I would eventually need surgery, even with numbers that low and a very negligible compensatory curve.
    Be happy!
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  4. #4
    Join Date
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    Quote Originally Posted by burdle View Post
    Hi,

    Sorry I am not suitable as I have a progressive curve of 59* but have no idea how it was at skeletal maturity.

    However can I ask if the sort of curve you are asking for would be classed as degenerative?

    The UK Website SAUK has combined Progressive AIS in adults with Degenerative Scoliosis and I would have thought that as degenerative curves tend to increase 1 degree a year approx. that a progressive AIS curve in an adult should be 'classed' differently?
    Hi Burdle...

    Degenerative scoliosis is usually classified as scoliosis that starts in adulthood. People who have idiopathic curves as a child are considered to have adult idiopathic scoliosis when they're in their later teens (and beyond).

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  5. #5
    Join Date
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    Rohrer...

    Thanks for letting me know about my box.

    I actually did think of you when I was trying to come up with someone, because I knew you had posted xrays over a relatively long period of time. Your curve is really atypical, so it wasn't appropriate for the talk.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  6. #6
    Join Date
    Jan 2008
    Location
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    I think Gayle may fit in that category. Also, this woman fits...

    http://www.scoliosis.org/forum/showt...age&highlight=


    I am sure you have seen these but will post for others following along.

    http://journals.lww.com/spinejournal...iosis_.11.aspx

    http://www.ijoonline.com/article.asp...13;aulast=Wong


    And here is Dr. Hey mentioning "countless" cases of progression of "stable" scoliosis.

    http://www.scoliosis.org/forum/showt...sis&highlight=
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #7
    Join Date
    Jan 2008
    Location
    NC
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    Here's a 36* at maturity progressing to 48*

    http://drlloydhey.blogspot.com/2012/...ent-young.html
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #8
    Join Date
    Jan 2008
    Location
    NC
    Posts
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    Here's a ~30* at maturity progressing

    http://drlloydhey.blogspot.com/2012/...51-degree.html
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #9
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,802
    The talk is done, but thanks for looking. I had actually sent several of Lloyd Hey's blog entry links to the surgeon before I posted here.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

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