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  1. #1
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891

    Great

    hey everyone!
    yesterday me and my mom found out from my sister my 11 year old nephew has severe scoliosis as well his is more severe then his little sister's scoliosis. so know i'm thinking oh great not again
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  2. #2
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    so sorry Cara
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  3. #3
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    Hi Cara,

    I'm really sorry to hear about your nephew's scoliosis…that must be very upsetting for you and your whole family. You mentioned your niece would be seen at UCSF, hopefully that's with Dr Diab, and now your nephew too?

    Take care, and let us know how things are going with them.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  4. #4
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    I said she has a referral to ucsf. but she was just accepted in to the shriners system her 1st appt is apr 14th 2016. my big sister asked if i would like to come as well i said yes of course.
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

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