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Thread: I feel sad

  1. #1
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891

    I feel sad

    hey everyone today my sister called my mom and my soon to be 8 year old niece has scoliosis.
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  2. #2
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,524
    Your niece is very lucky because she will have you to support her! Sorry that it makes you sad. She may never need any treatment, just monitoring. Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  3. #3
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    Good point susan she has a referral in to ucsf. My sister said she was going to call the doctor to she if she can be sent to shriners
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  4. #4
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,524
    Quote Originally Posted by kennedy View Post
    Good point susan she has a referral in to ucsf. My sister said she was going to call the doctor to she if she can be sent to shriners
    Might be good to get 2 opinions. The price is right at Shriners. She may not ever need surgery, but if she does, you will be a great source of support!

    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  5. #5
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Kennedy,

    You can help your niece in any way that she will need help

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  6. #6
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    Good point Melissa
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  7. #7
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    i also gave her a flyer for my support group
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  8. #8
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    Hi Kara,

    I'm sorry to hear about your niece's scoliosis. I hope it is a small enough curve that she doesn't need any treatment for, but if she does go to UCSF, she would be in very good hands with Dr Diab. He does tethering which is a newer alternative to fusion.

    I'm sure you will be a great source of comfort for your niece.
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  9. #9
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    Gayle my ninces Doctor said she might need a brace at bed time
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

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