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Study at UC Davis

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  • Study at UC Davis

    I was asked if I wanted to participate in a study about people with long fusions. I was given a huge amount of paperwork to look at by the research gal. None of the questions had anything about Scoliosis in them, nor did they mention long fusions. It was put out by the Euro QOl group, whoever they are. The questions were so general....did I feel sad or happy? Had I experienced pain in the past six months? It was ridiculous! It didn't even ask if I had a spinal deformity! Anyway, I declined to participate as I couldn't answer the questions as they were not relevant.
    1st surgery: Fused T1-L3 in 1987 with contoured Harrington Rods. Rods broke at top.
    2nd surgery: Re-done two weeks later; fused C7-L3. Left in chronic pain.
    3rd surgery: Hardware removal 1997, but still pain for 30 years.
    4th Surgery: Fused to the sacrum in 2016. Came out of surgery with left foot paralysis. (Drop Foot) Can't walk on my own.
    I'm blessed to have found my peace and reason to live not from a husband or kids (I have none) but from God and within myself.
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