I was asked if I wanted to participate in a study about people with long fusions. I was given a huge amount of paperwork to look at by the research gal. None of the questions had anything about Scoliosis in them, nor did they mention long fusions. It was put out by the Euro QOl group, whoever they are. The questions were so general....did I feel sad or happy? Had I experienced pain in the past six months? It was ridiculous! It didn't even ask if I had a spinal deformity! Anyway, I declined to participate as I couldn't answer the questions as they were not relevant.