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Thread: Adult Scoliosis Surgery Support Group

  1. #1
    Join Date
    Aug 2008
    Posts
    37

    Adult Scoliosis Surgery Support Group

    There is a new Adult Scoliosis Surgery Support Group on FB. They do not give any medical advice. This is a group of people who have gone through surgery and will discuss their pre and post op experiences with you. If you have trouble finding the group just message me in the comments and I will help you get connected.

  2. #2
    Join Date
    Jul 2010
    Location
    Long Island, New York
    Posts
    87
    I'm trying to find it, so far just a generic site please help. Thanks.
    Cathy
    2 sons, one Syracuse University graduate (working for the Mets now), one college sophomore, one great husband and two fabulous cats
    54 years old March 5
    AIS 45 degrees Thoracic at 14, Milwaukee brace for one year in 1977 then in 2012 I found Dr. Baron Lonner ❤️
    Surgery April 8 2015
    Presurgical curves T77 L66
    Post surgical T27 L22
    Fused T3-S1 pelvic fixation, osteotomies and all the other stuff but you know what? It's done...

  3. #3
    Join Date
    Oct 2015
    Location
    Tucson, Arizona
    Posts
    1
    Could you please tell us the name of the group? Thanks.

  4. #4
    Join Date
    Aug 2008
    Posts
    37
    Adult scoliosis revision surgery support group. This can be found on Facebook. Many stories about our experiences.

  5. #5
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    98

    Support group on FB

    I would also like to read the FB support group but I can't seem to find it, do you look under find frriends?
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused T10-S1 with screws in pelvis

  6. #6
    Join Date
    Aug 2008
    Posts
    37
    If you go into the revision section of this forum someone posted a link to the group. Otherwise, just type the following into the search line on Facebook. Adult Scoliosis Surgery Revision Support Group. The top of the page shows a quote which says" scars are tattoos with better stories". Hope to see you on the group!

  7. #7
    Join Date
    Dec 2012
    Posts
    30
    You can get to the Facebook page by logging into Facebook and then pasting in the below address.

    https://www.facebook.com/1651668218451646/

  8. #8
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    98
    Thank you Dixiesmommie, found it!
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused T10-S1 with screws in pelvis

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