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Adult Scoliosis Surgery Support Group

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  • Adult Scoliosis Surgery Support Group

    There is a new Adult Scoliosis Surgery Support Group on FB. They do not give any medical advice. This is a group of people who have gone through surgery and will discuss their pre and post op experiences with you. If you have trouble finding the group just message me in the comments and I will help you get connected.

  • #2
    I'm trying to find it, so far just a generic site please help. Thanks.
    Cathy
    2 sons, one Syracuse University graduate (working for the Mets now), one college sophomore, one great husband and two fabulous cats
    54 years old March 5
    AIS 45 degrees Thoracic at 14, Milwaukee brace for one year in 1977 then in 2012 I found Dr. Baron Lonner ❤️
    Surgery April 8 2015
    Presurgical curves T77 L66
    Post surgical T27 L22
    Fused T3-S1 pelvic fixation, osteotomies and all the other stuff but you know what? It's done...

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    • #3
      Could you please tell us the name of the group? Thanks.

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      • #4
        Adult scoliosis revision surgery support group. This can be found on Facebook. Many stories about our experiences.

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        • #5
          Support group on FB

          I would also like to read the FB support group but I can't seem to find it, do you look under find frriends?
          Marianne
          rotoscoliosis, subluxation and spinal stenosis
          Surgery April 15, 2015 at age 67
          T11-L5
          Decompression with multiple discectomies
          Concord cages @ L2-3, L3-4, L4-5
          Osteotomies and local bone grafting
          Revision Feb.22, 2018
          Replaced rods
          Took out L5 disk to free up nerves
          Used BPM to help with fusing
          Fused T10-S1 with screws in pelvis

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          • #6
            If you go into the revision section of this forum someone posted a link to the group. Otherwise, just type the following into the search line on Facebook. Adult Scoliosis Surgery Revision Support Group. The top of the page shows a quote which says" scars are tattoos with better stories". Hope to see you on the group!

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            • #7
              You can get to the Facebook page by logging into Facebook and then pasting in the below address.

              https://www.facebook.com/1651668218451646/

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              • #8
                Thank you Dixiesmommie, found it!
                Marianne
                rotoscoliosis, subluxation and spinal stenosis
                Surgery April 15, 2015 at age 67
                T11-L5
                Decompression with multiple discectomies
                Concord cages @ L2-3, L3-4, L4-5
                Osteotomies and local bone grafting
                Revision Feb.22, 2018
                Replaced rods
                Took out L5 disk to free up nerves
                Used BPM to help with fusing
                Fused T10-S1 with screws in pelvis

                Comment

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