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Thread: HELP!!! Lost my sagittal balance.....did anyone find it?

  1. #61
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Susan,

    I just got back on the forum. When you get the chance, please let us know how you are doing

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  2. #62
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Now, postop × 1 week. Dr. Hart replaced my fxed rods and all of my lumbar instrumentation from the posterior. The infection had caused pseudarthrosis/non-fusion at every lumbar site.

    I am at the Rehabilitation Institute of Oregon or RIO in Portland and I will probably go home on Friday. I am having some challenges moving my hip flexors and walking with one crutch. My stage 2 ant/lat surgery will probably be scheduled in January. I am finally straight but still periodically incontinent.

    I am tired but doing well. I have a fancy adjustable brace and TED hose. My incision is slightly open at the posterior end, so I had a visit from the "wound care nurse". I hope that it just closes off in a timely manner. My physician here said that the problem with surgical scar revisions is that the skin looks like the Philistines have been through it. Love his obscure comments!

    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  3. #63
    Join Date
    Jul 2012
    Location
    Warsaw, MO
    Posts
    373
    Glad to hear you doing okay. Your in my prayers.

    Tamena
    Diagnosed at age 12 with a double major curve

    Braced till age 15

    SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

    Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

    Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)

    Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)

  4. #64
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,224
    Glad to hear that things are going somewhat OK. I am having a procedure done by my urologist in 2 weeks. She said that she has many spine surgery patients that have urinary incontinence problems. She seems to feel that this will help me with that problem. I will let you know

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  5. #65
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Susan it was good to hear from you. Hope you heal well and regain your strength.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  6. #66
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    77
    Susan, glad to hear all went well and you are straight again and able to walk with one crutch.
    You will feel even better once you get to go home.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting

  7. #67
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Home again! Great to be back home! Awaiting scheduling of Stage 2 of lumbar revision: anterior and lateral revisions. I should be able to come home after this next surgery vs SNF or rehab facility.

    Back to being able to climb up 20 stairs with my crutch and railing. Hope to get in a little bit of outpt PT before next surgery in January. Feeling pretty good, but still dealing with incontinence from the spinal cord injury and pain quickly decreasing from the last surgery. You think by now, I would have constipation figured out....still a challenge.

    Mark and I made reservations for Kauai in Jan/Feb 2016 for 5 weeks.....made last year. All now canceled, but will reschedule.

    Thanks everyone for well wishes, emails, and calls. Susan
    Attached Images Attached Images
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  8. #68
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    Susan - that sounds like you are doing remarkably well - 20 steps! I'm impressed. As Dorothy said, "There's no place like home..." and I'm so glad you are there now. It sounds like you have a good plan to prep for this next surgery phase. Will be praying for you. Be sure to let us know when the date is determined. Sorry about the postponed trip, but that will be something to look forward to in awhile. Hugs, Susie
    66 and still heartbroken...
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  9. #69
    Join Date
    May 2013
    Location
    Grove City, OH
    Posts
    275
    Susan,

    Sending prayers for healing. I love your positive attitude!
    Peg
    61 yrs old
    75 degree lumbar curve with thoracic kyphosis
    T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
    Working on healing in Columbus, Ohio!

  10. #70
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Now impatiently awaiting the date for my stage 2 surgery. Did I say that I was impatient? I want to get on with my life. I am bummed. Did I mention that I was supposed to be in Kauai at the end of January for 5 weeks? Did I say supposed to be in Hawaii? Bummed again.....
    Susan
    Last edited by susancook; 12-19-2015 at 02:50 AM.
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  11. #71
    Join Date
    May 2010
    Posts
    345
    Quote Originally Posted by susancook View Post
    Now impatiently awaiting the date for my stage 2 surgery. Did I say that I was impatient? I want to get on with my life. I am bummed. Did I mention that I was supposed to be in Kauai at the end of January for 5 weeks? Did I say supposed to be in Hawaii? Bummed again.....
    Susan
    Susan, I have been to Kauai , so I understand why your bummed!!! Breathtakingly beautiful!! I hope you are standing straight( with crutches) But your balance can't be complete till they finish the surgery. That's what they told me. I know I'n going to have to go through another tough surgery or two. I will see Jan. 5th.
    You keep me from getting anxiety attacks, as you've been through the ringer and are here to inspire all of us. I wish you didn't have to be the inspiring one~~ none the less, you are!!
    Wishing you the best!! Hope you have a good Holiday Season.
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  12. #72
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    Hi Susan wishing you the best for Christmas and the new year
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  13. #73
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525

    Surgery #5: the finale!

    Thanks Jackie and Linda for your thoughtfulness.

    So..... Surgery #5 is scheduled for 29 January 2016 with Dr. Hart at OHSU in Portland. It will be a 5 hour surgery: anterior/lateral lumbar discectomy and fusion of T12-S1 with hardware removal. He will place 5 cages and BMP to support fusion. Yikes, I must be falling apart!

    Dr. Hart did not think that I would be going to a SNF or rehab facility after surgery. Maybe home health and physical therapy.

    Susan
    Last edited by susancook; 12-26-2015 at 05:17 PM.
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  14. #74
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,535
    Susan, That’s the same setup I have. And done on the same day 8 years ago! 01/29/2008

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  15. #75
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,525
    Quote Originally Posted by titaniumed View Post
    Susan, That’s the same setup I have. And done on the same day 8 years ago! 01/29/2008

    Ed
    Scary......
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

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