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Thread: Any experience/knowledge of Dr. Barsi in Stonybrook, NY

  1. #1
    Join Date
    Nov 2014
    Location
    New York
    Posts
    83

    Any experience/knowledge of Dr. Barsi in Stonybrook, NY

    This might not be the right place to post this, but I feel most comfortable with the people in this forum.

    My almost 9 year old daughter has been diagnosed with scoliosis (18 degrees). As you can imagine, I'm devastated. I won't get into all the details/info here. But we are consulting with a Dr. Barsi and I just wanted to know if anyone has heard of him. He is affiliated with Stonybrook University in NY. If you have any other suggestions, I would appreciate it. We are just following her and possibly bracing in the future (gulp), no surgery for now. We have seen Dr. Lonner (my surgeon) but he really specializes in people who need surgery. Obviously, we are trying to avoid that.

    Thank you!

  2. #2
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    866
    Welcome. You are ahead of the game because you are watching. It is indeed scary but my granddaughter has a 14 degree curve. No treatment needed but she is a little older. I asked my scoliosis doctor to check her because of my full spine fusion.
    Take her for her checkups and watch her through her growth spurt. Bracing can be effective at this age. I am sure there are others that can give you info on the doctor that you mentioned.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

  3. #3
    Join Date
    May 2008
    Location
    long island, ny
    Posts
    233

    Just for another opinion maybe

    Hello KS mom, and welcome to this very informative and supportive forum! I see that you are from Long Island, and for a second opinion, I had a successful surgery with dr. Agulnick in Garden City. Also, one of my coworkers by coincidence, used this practice for his daughter. She was braced and holding steady. It was a different surgeon from this practice, I will find his name tomorrow, prayers to you and your daughter for peace of mind through this uncertain time in your lives! Learn all you you need to know about this and write down all of your questions and concerns
    Dolores A
    June 4, 2009 Anterior L3 - S1
    June 8, 2009 Posterior T4 - Pelvis
    Mark Agulnick, MD FAAOS
    NY Spine & Scoliosis Center

  4. #4
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,335
    Hi.

    I am so sorry to hear about your daughter's diagnosis. Since she was diagnosed at 8, she has early onset and not adolescent (assuming it isn't congenital). This is far less common than adolescent and you will want to have a surgeon who is extremely experienced in this form of scoliosis. Were it my child I would also get an appointment to have her seen by someone who does stapling and tethering in case that is an option if someone suggest bracing. There are relatively few surgeons who have done many cases so you have to seek them out.

    There are two mothers on this forum whose children have early onset and were stapled. They are both doing so well and it certainly looks like they will avoid fusion. I hope so. Here is a web site in case you want to find out more about this...

    http://www.vertebralstapling.com/

    Good luck.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

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