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Thread: Back again after 5 years! HELP!

  1. #16
    Join Date
    Mar 2010
    Thanks so sorry you had this journey too. They have seen ID and they and other departments looked into things. The trouble has been there is no talking to one another especially in the same room. I think my daughters and I would have loved to have a meeting with all the docs to discuss everything. This has never happened and those days of medicine are far far gone. I and they wouldn't mind hearing an argument even! It would be invaluable to hear the different ways of thinking and seeing a multilayered problem like this. In other words a tumor conference type of approach or maybe a mini grand rounds!!!! Why can't patients be involved in the evolving story of their illness?Some department folks were better than others. No one was evil or bad. I think it was hard for everyone administration included.
    When I worked in the hospital there was a md/phd student who had complaints of heart issues. They couldn't find anything and said it was all in his head. A week or so after that brilliant assessment he falls down dead of a cardiac arrest!
    What I think we are looking for is affirmation that new eyes need to see them both ( which we have gotten thanks you all!)and what would be the best place because it does mean other specialties like ID. Rheum has been involved. And we are going into a whole different discussion with that because with inflammation there can be ebbs and flows so that blood work like with P acnes can look good but not be the end all and be all.
    How will they know for you? Is it blood work? Are you still in pain?

  2. #17
    Join Date
    Dec 2008
    I recently had an unusual surgery at the University of Chicago. They worked with one another well. I did see the different specialist at different times but had one appointment that I saw 2 at the same time. I felt that they were in great communication with one another. I was also told that I was being discussed behind my back. Maybe a setting like at the University where they are used to talking among themselves to reach a solution. It is also a teaching hospital.
    T10-pelvis fusion 12/08
    Fractured t-9 six days out of surgery
    C5,6,7 fusion 9/10
    PJK at t-9
    T2--T10 fusion 2/11
    Removal of left side t6-t10. 8/14
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16

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