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Thread: A POSITIVE post

  1. #1
    Join Date
    Jul 2010
    Location
    Long Island, New York
    Posts
    87

    Cool A POSITIVE post

    Hey everyone I have been reading all the posts and most lately have been not quite positive. It's sad to hear how much pain there is out there and unsuccessful surgeries and I pray that my successful surgery continues to just get better. I only take a small painkiller on occasion I'm saving them for September when I go back to teaching 5th grade. The only thing that really bothers me is my neck a little bit above the fusion on occasion only, and if I sit for too long. Otherwise I'm doing pretty well considering it's only four months. Tonight I am back to my disco dance band, my first performance since April 2. We are playing from 9 PM To 1 AM at a local disco club. My lung capacity is not quite what it was before but it's still pretty good. There are two other singers thank goodness so I won't have to do all the sets by myself. I'm pretty excited I've missed it it's what I've been doing since I'm 18 years old so I figured I'd share it with you guys. Some of the post I read on this forum scare me and I get the feeling that someday I'm might have to stop doing this which would be horrible because singing and performing is so important to me.

    I wish you all lived locally so you could come down I'll buy you a drink!

    Wish me luck!
    🎶🎤
    Cathy
    2 sons, one Syracuse University graduate (working for the Mets now), one college sophomore, one great husband and two fabulous cats
    54 years old March 5
    AIS 45 degrees Thoracic at 14, Milwaukee brace for one year in 1977 then in 2012 I found Dr. Baron Lonner ❤️
    Surgery April 8 2015
    Presurgical curves T77 L66
    Post surgical T27 L22
    Fused T3-S1 pelvic fixation, osteotomies and all the other stuff but you know what? It's done...

  2. #2
    Join Date
    Jul 2011
    Posts
    535
    Great to hear! If I lived near you, I'd stop by for the disco festivities!
    44 years old at time of surgery, Atlanta GA

    Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
    Post-Surgery curves ~10 degrees, regained 4 inches of height

    Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
    2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

    http://thebionicachronicles.blogspot.com/

  3. #3
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,262
    What great news!

    Where are you on Long island?

    I am from Long Island
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  4. #4
    Join Date
    Jul 2010
    Location
    Long Island, New York
    Posts
    87
    Quote Originally Posted by mabeckoff View Post
    What great news!

    Where are you on Long island?

    I am from Long Island

    I'm in Oakdale Melissa, where are you from?
    Cathy
    2 sons, one Syracuse University graduate (working for the Mets now), one college sophomore, one great husband and two fabulous cats
    54 years old March 5
    AIS 45 degrees Thoracic at 14, Milwaukee brace for one year in 1977 then in 2012 I found Dr. Baron Lonner ❤️
    Surgery April 8 2015
    Presurgical curves T77 L66
    Post surgical T27 L22
    Fused T3-S1 pelvic fixation, osteotomies and all the other stuff but you know what? It's done...

  5. #5
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Congratulations for getting back to what you love so early in your recovery! You must be so happy!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  6. #6
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,136
    Cathy

    Your not singing “Muskrat love” are you? Oh, Man.... I’m convinced that number exasperates scoliosis. LOL

    You should be able to sing just fine.....keep it up

    One of the saddest things I have ever read was about Linda Ronstadt not being able to sing due to her Parkinson disease.....

    She is a National arts advocate and stated before Congress....

    “In the United States, we spend millions of dollars on sports because it promotes teamwork, discipline, and the experience of learning to make great progress in small increments. Learning to play music does all this, and more”.


    Ed
    49 yr old male, now 61, the new 61...
    Pre surgery curves T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #7
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,598
    I am from Massapequa Park, Long Island....but live near Portland, OR so if you are ever in this neck of the woods or I am in New York, we could drink together!

    Congrats on your increased activity and return to singing!

    Suggestion for pain relief when returning to work: Bring heat or ice....what ever works, take breaks and lay down, when you go home, lay down for 20 minutes before tackling your easy or take out dinner, be good to yourself and delegate [like hiring a house cleaner].

    Re: the posts of "good, bad and ugly"...yes, the tone has shifted and I believe that it is because those of us with continuing challenges feel safe to post with company. I post a little bit more infrequently anyway now, but my continuing saga is in the ugly category [spinal cord injury and spinal infection over one year after first surgery] but I am improving. I am glad that a spectrum of outcomes to surgery are posted to present a spectrum of outcomes and to offer support/suggestions to those of us posting.

    Susan
    Last edited by susancook; 08-08-2015 at 02:25 PM. Reason: typing faster than my brain can operate!
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw

  8. #8
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,262
    Wow... we could have a Long Island Group. I am from Oceanside many years ago. I now live in Southern CA but but will always consider Long Island home


    Glad that you are doing what you want .

    At this point, even though I have pain I still consider myself a success. Pain does not define me. I am more than my pain. I am hoping that my spinal cord stimulator will work . If it does not, then I will have to figure out how to go on with my pain, but I will go on. Life is always changing. I am finally getting a divorce . I am getting another grandchild in December. I am considering restarting an at home baking business I started before pain was a partner in my life. For those of you who know, you know that not much stops me .

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  9. #9
    Join Date
    May 2013
    Location
    Grove City, OH
    Posts
    275
    Yeah, Cathy! It's great to get back to 'normal' things!
    My 'new normal' is soooo much better than my old normal!

    I want to address neck pain from above the fusion. I think this is where my scapula pain is coming from & I've finally diagnosed myself, as to why. I often sit with my head looking down: ipad on pillow on lap or paperwork at the kitchen table. The neck/head position is what seems to trigger the burning scapula pain. Ice packs help. At first, it was 'bear claw' & most of the time. With lessening frequency & duration, I was able to pinpoint what I'm doing to aggravate the issue. So . . . Bottom line . . . Check your head/neck position!

    Have fun singing!
    Peg
    61 yrs old
    75 degree lumbar curve with thoracic kyphosis
    T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
    Working on healing in Columbus, Ohio!

  10. #10
    Join Date
    Jul 2010
    Location
    Long Island, New York
    Posts
    87
    Quote Originally Posted by titaniumed View Post
    Cathy

    Your not singing “Muskrat love” are you? Oh, Man.... I’m convinced that number exasperates scoliosis. LOL

    You should be able to sing just fine.....keep it up

    One of the saddest things I have ever read was about Linda Ronstadt not being able to sing due to her Parkinson disease.....

    She is a National arts advocate and stated before Congress....

    “In the United States, we spend millions of dollars on sports because it promotes teamwork, discipline, and the experience of learning to make great progress in small increments. Learning to play music does all this, and more”.


    Ed
    Ha! Ed I'm pretty sure it was "Puppy Love" that sent me to surgery..... By the way the evening went well, was pretty exhausted next day but soooo glad I'm back. Next show, next Friday at the beach!
    Attached Images Attached Images
    Cathy
    2 sons, one Syracuse University graduate (working for the Mets now), one college sophomore, one great husband and two fabulous cats
    54 years old March 5
    AIS 45 degrees Thoracic at 14, Milwaukee brace for one year in 1977 then in 2012 I found Dr. Baron Lonner ❤️
    Surgery April 8 2015
    Presurgical curves T77 L66
    Post surgical T27 L22
    Fused T3-S1 pelvic fixation, osteotomies and all the other stuff but you know what? It's done...

  11. #11
    Join Date
    Aug 2009
    Location
    York, PA
    Posts
    332
    Fabulous news that you're back to singing. My own experience as a choral singer is that I can sing much better since my surgery because of better breathing capacity, no pain when standing and everything in the diaphragm/vocal mechanism, etc. is much better aligned. Sounds like you're really healing well and will be ready to go back to teaching. Doing the happy dance for you!


    Anne in PA
    Age 58
    Diagnosed at age 14, untreated, no problem until age 50
    T4 to sacrum fusion
    63 thoracic now 35, 92 lumbar now 53
    Dr. Baron Lonner, 2/2/10
    Am pain-free, balanced, happy & an inch taller !

  12. #12
    Join Date
    Jan 2015
    Location
    Davie, FL
    Posts
    21

    So happy for you!

    So absolutely thrilled for you! I feel sad when I read the not so happy comments, but I see why this would be the place to do it.

    Like you, I have recently gone back to work on limited basis since the Dr doesn't want me driving for long periods of time. Still wearing the brace (Ninja turtle shell!) which helps but I am beginning to notice some dependence on it. Other than an occasional pain med I am meds free... and that by itself makes me a happy girl.

    Best thoughts for all of you dealing with scoli issues. We all know first hand how debilitating it can be.

    Loretta
    39 years old, 2 children, suffering from scoliosis since the age of 12.
    Lumbar curve 55 degrees, 4 herniated disks and 2 small fractures - after surgery only 20 degree curve - Fusion T10-L4
    Surgery on 4/21/15 with Dr. Gjolaj @ (UM) Jackson Memorial Hospital, Miami, FL

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