Hello everyone:
I'm fused T2-L3.
For thirty years, I have suffered with various types of thoracic pain. I've had a tight "bearclaw" feeling, burning, a DEEP ache in between my shoulder blades and over shoulder blades and rib hump (feels like there's a chainsaw in my back) and general horrible fatigue feeling in my upper spine. In the past few years the deep thoracic ache is so bad at times that I actually cry in public. Also, the past two years I frequently wake up in the middle of the night and in the morning with my right arm numb and it takes me several minutes before I can move my numb fingers.
The only good thing about the "ax in the back" pain is that, unlike my broken spine lumbar pain, it comes and goes. But, when it comes it's a mother!!!
All my MRI's and X rays have shown nothing.
I've asked every Scoliosis surgeon about it (and I've seen several recently) and they either won't comment, or they say there's nothing they can do about "it," but they don't say what the "it" is. Finally, one surgeon actually talked about it with me. He said that "all of us" - meaning anyone who had had Scoli surgery eventually got this thoracic pain, and that no one had any idea what caused this pain, or what is was and that there was absolutely nothing to be done about it.
This is just unacceptable to me. Why hasn't any research been done for us? I think as Scoli patients we need to stand up for ourselves and demand that the Scoliosis medical community start taking this seriously and DO something! Why hasn't the Scoliosis research society done a study on this? Doesn't anybody care about us? Sometimes I think they just fuse our spines, go home to their families and their dinner, say to themselves "Oh, I straightened another spine," and don't give a darn fig about our pain afterwards.
I'm fused T2-L3.
For thirty years, I have suffered with various types of thoracic pain. I've had a tight "bearclaw" feeling, burning, a DEEP ache in between my shoulder blades and over shoulder blades and rib hump (feels like there's a chainsaw in my back) and general horrible fatigue feeling in my upper spine. In the past few years the deep thoracic ache is so bad at times that I actually cry in public. Also, the past two years I frequently wake up in the middle of the night and in the morning with my right arm numb and it takes me several minutes before I can move my numb fingers.
The only good thing about the "ax in the back" pain is that, unlike my broken spine lumbar pain, it comes and goes. But, when it comes it's a mother!!!
All my MRI's and X rays have shown nothing.
I've asked every Scoliosis surgeon about it (and I've seen several recently) and they either won't comment, or they say there's nothing they can do about "it," but they don't say what the "it" is. Finally, one surgeon actually talked about it with me. He said that "all of us" - meaning anyone who had had Scoli surgery eventually got this thoracic pain, and that no one had any idea what caused this pain, or what is was and that there was absolutely nothing to be done about it.
This is just unacceptable to me. Why hasn't any research been done for us? I think as Scoli patients we need to stand up for ourselves and demand that the Scoliosis medical community start taking this seriously and DO something! Why hasn't the Scoliosis research society done a study on this? Doesn't anybody care about us? Sometimes I think they just fuse our spines, go home to their families and their dinner, say to themselves "Oh, I straightened another spine," and don't give a darn fig about our pain afterwards.
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