Hooray! Today is the 8th anniversary of my surgery date. It's funny how you can still conjure up those surgery memories and emotions at the mere thought! Yikes! So glad to have it behind me and the long recovery over with. I always posted how some have a s-l-o-w recovery because mine was one of those... but life is good and each year post op gets better and better.
I have been doing so well over the years-- back to the turtle analogy, slow and steady... some of you may remember I was diagnosed with Charcot Marie Tooth disease recently and have balance issues along with other problems. In January I lost my balance and took a really hard fall. I twisted and hit the back of my head and did a number on my back. I have been having some very sharp pains intermittently in the mid scapular area ever since. I will try to tough it out unless it gets worse. I go for a scoli check up in another year. I recently had PT for my CMT and we worked on balance, but it still helps to have something not too far away to grab hold of... or at least to put my arms out and "fly" for balance at times.
I am so excited to have 8 WHOLE YEARS UNDER MY BELT! Whoo hoo! For you "newbies" -- I think those surgery memories are kind of like having a baby to some of us but you just never forget the experience of your surgery unless you were so doped up. Ed was... I wasn't. I remember my time in the hospital totally! What my nurses looked like. The really nice ones, the one mean one. The two "fellows" - Dr. Brasher and Dr. Cahill (who later worked with Dr. Betz), having NPO (no food or drink) because of an ileus for 5 days and wishing I could at least have something to drink. My husband was there for part of the time, but also gone quite a bit-- work (and home) was over 2 hours away. I got along fine by myself. It depends on the nurses at your hospital. I remember my whole hospital experience like it was yesterday. My surgeon was very caring. Now that he is only at Shriner's in Chicago, I miss getting to see him!
My very best to all of you who are starting out or are somewhere in between. It is always a roller coaster ride. I have watched the forum and its ups and downs for about 7 1/2 years now and have seen the life experiences of so many scoli people as they come and go. And have made so many friends. Cheers to all of you that remain, and best wishes to all of you who read this. Life is a journey and scoliosis may be a part of it, but so are many other joys and challenges. We are strong - and don't ever forget that! Take care!
I have been doing so well over the years-- back to the turtle analogy, slow and steady... some of you may remember I was diagnosed with Charcot Marie Tooth disease recently and have balance issues along with other problems. In January I lost my balance and took a really hard fall. I twisted and hit the back of my head and did a number on my back. I have been having some very sharp pains intermittently in the mid scapular area ever since. I will try to tough it out unless it gets worse. I go for a scoli check up in another year. I recently had PT for my CMT and we worked on balance, but it still helps to have something not too far away to grab hold of... or at least to put my arms out and "fly" for balance at times.
I am so excited to have 8 WHOLE YEARS UNDER MY BELT! Whoo hoo! For you "newbies" -- I think those surgery memories are kind of like having a baby to some of us but you just never forget the experience of your surgery unless you were so doped up. Ed was... I wasn't. I remember my time in the hospital totally! What my nurses looked like. The really nice ones, the one mean one. The two "fellows" - Dr. Brasher and Dr. Cahill (who later worked with Dr. Betz), having NPO (no food or drink) because of an ileus for 5 days and wishing I could at least have something to drink. My husband was there for part of the time, but also gone quite a bit-- work (and home) was over 2 hours away. I got along fine by myself. It depends on the nurses at your hospital. I remember my whole hospital experience like it was yesterday. My surgeon was very caring. Now that he is only at Shriner's in Chicago, I miss getting to see him!
My very best to all of you who are starting out or are somewhere in between. It is always a roller coaster ride. I have watched the forum and its ups and downs for about 7 1/2 years now and have seen the life experiences of so many scoli people as they come and go. And have made so many friends. Cheers to all of you that remain, and best wishes to all of you who read this. Life is a journey and scoliosis may be a part of it, but so are many other joys and challenges. We are strong - and don't ever forget that! Take care!
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