Oh, I hate to hear that you have another surgery in your future. I will send you an email.
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Terrible neck , shoulder and upper thoracic pain!
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Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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SO sorry to hear about another surgery, Linda. Dr. Lenke referred me to Dr. Daniel Riew (pronounced Ru) for cervical issues and I meet him almost 2 years ago. Dr. Riew moved to NYC with Dr. Lenke. While a local cervial doc had me terrified that my cervial was in horrible shape, Dr. Riew assured me that I was not at the surgical stage yet. Perhaps you can get Dr. Riew's opinion too? I know travel is not easy, but a second opinion is crucial with major surgeries. Prayers!44 years old at time of surgery, Atlanta GA
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
http://thebionicachronicles.blogspot.com/
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Had mylagram Jan. 5th! Ouch!!! Big Ouch!!!!
Hi everyone,
I got back from seeing Dr. Gupta. He looked at the mylogram and told me he would have
to do two surgeries . First on my neck and then on my back. When he's done I will be fused from my sacrum (S3) to C4. I will have some move meant in my neck. ( 50%). He will go through the front and then the back of my neck for the first surgery. He said it will take approx. 8 hrs. I was surprised so long. And I was told this is a very painful surgery. ( aren't they all?)
But anyway, afterI recover from my neck surgery, he will go in and fix the brokenn rods in my back. That will be a big surgery too. But he is going to have his assistant call me with a date and explain more to me about the surgeries.
All in all I am looking at a couple years recovery. There isn't any way around it if I don't want to end up in a wheel chair and my neck will keep on collapsing till my chin is on my chest completely. I can't lift my head up now. So it's time.And like I said earlier in a post, the discs in my neck are punching off my spinal cord plus the blood flow. So I'm a mess! Not to mention painful. I think I'm probably looking at middle of March for surgery..
I really would like any input from you fine people. Any help and support would be great!!! I will keep you posted on the date and information about this surgery. Hope you are all getting along alright. I know there's a few struggling pretty bad out there. I'll keep you in my prayers! Sending my best to a bunch of very strong people on this forum. Truly, LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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You will be ok. You can function with all of those levels fused. Actually the cervical surgery isn't as painful as the spine. Once you are off of the nerves, you actually feel better.Keep yourself strong.T10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
Osteotomy
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Linda,
I am so sorry for the pain you have and the fact that you will need two more surgeries. It doesn't sound like you have a choice so focus on the long term results of getting back to a normal life with less pain. Stay strong! You have my prayers and support.Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Linda, I guess that the bright side of all of this is that there is a competent surgeon who will do his best to fix you. My biggest fear with my first surgery was that my surgeon would say, "there is nothing that I can do". I wish you the best. Sending good thoughts your way. SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Originally posted by golfnut View PostLinda,
I am so sorry for the pain you have and the fact that you will need two more surgeries. It doesn't sound like you have a choice so focus on the long term results of getting back to a normal life with less pain. Stay strong! You have my prayers and support.
with Dr. Gupta. I'v seen him twice and he seems very competent. I still don't have a surgery date as he is still studying my case. Take good care~~LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Originally posted by susancook View PostLinda, I guess that the bright side of all of this is that there is a competent surgeon who will do his best to fix you. My biggest fear with my first surgery was that my surgeon would say, "there is nothing that I can do". I wish you the best. Sending good thoughts your way. Susan
truly can't explain it, but I am more nervous about these surgeries coming up than I was of the first one.
Could be that I'm aware of what's going to happen and that is pretty scary!! But I'll get through it, as you did! I just need to remember all your things you've been through, and then I need to toughen up and get strong like you . Hope things are doing well with rehab. Warm thoughts of you~~ LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Originally posted by babyboomer16 View PostHey Susan, I appreciate your post ,as I know if anyone knows how it is to keep having set backs, you do! I
truly can't explain it, but I am more nervous about these surgeries coming up than I was of the first one.
Could be that I'm aware of what's going to happen and that is pretty scary!! But I'll get through it, as you did! I just need to remember all your things you've been through, and then I need to toughen up and get strong like you . Hope things are doing well with rehab. Warm thoughts of you~~ Linda
Sure, surgery is scary. But, then, what's the alternative? Live like we are? Or place your faith in an experienced surgeon?
Hoping that you find relief from your pain and neck problems.
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Hello........I am new to this forum and website.........and I apologize but i did not read all the replies here......but your heading last May made me want to ask.......Linda, could you be 'allergic' to the implants in you??? I have two very long stainless steel rods in my back and i have SEVERE pain day/night. In two weeks i am having the rods replaced with titanium because i am indeed 'allergic' to the stainless steel (of which, I did not know my doctor was going to use) (I would have told him not to because i knew I was allergic, but they never asked).
I hope things look up for you soon!
sincerely
Carol
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Good luck Carol.
Linda, you've been through the mill but you're not yet crushed. Perhaps in a way it's good that there's no choice about this surgery, otherwise you'd be sleepless going backwards and forwards. There is the probability of a better life to come once you're healed from this surgery so this gives you something to look forward to. Keep thinking past the surgery, to the better life to come. I hope you have plenty of loving family and friends to support you through this. Thinking of you and best of luck!Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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Originally posted by JenniferG View PostGood luck Carol.
Linda, you've been through the mill but you're not yet crushed. Perhaps in a way it's good that there's no choice about this surgery, otherwise you'd be sleepless going backwards and forwards. There is the probability of a better life to come once you're healed from this surgery so this gives you something to look forward to. Keep thinking past the surgery, to the better life to come. I hope you have plenty of loving family and friends to support you through this. Thinking of you and best of luck!Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Hi all,
I finally got my surgery date for my Neck Surgery first. It's May 9th, at Washington University, by Dr. Gupta. He will go through the front of my neck first to replace a couple discs and then go through the back of my neck and fuse C1 thru C7. All this will take around eight hours. Then after six months , if it has fused, he will fix my broken rods in my back. I just pray I survive all this,again,with no complications.
Thanks to all of you for being the great people you are. You know what these big surgeries are all about, and you all make me feel much better. God Bless! LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Wow Linda, I don’t know what to say other than that I have read your post around 10 times now....
Thinking of you...
Ed49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258
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