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Thread: Two Years Follow-up with Dr. Hu

  1. #1
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    570

    Two Years Follow-up with Dr. Hu

    I was reluctant to post about my two years follow up because so many people are having problems and I didn't want to brag about myself. But I thought that sharing my good report will help those considering or getting close to the surgery date, so here it goes.

    Dr. Hu said everything looks good and all the hardware is in place. I don't have any restrictions and she even gave me a green light for a little jogging, and I thought that it's a no-no with fusion to sacrum. I am doing zumba, swimming, working out 5 times a week and enjoying a little jogging around neighborhood. I was never a runner before, but getting a kick doing it now just because I CAN. Sometimes, when I am in bed, my right foot tingles, but this is very minor. I work full time and dress up in form fitting clothes every day. People often ask me why I am doing this fashion show haha. They don't understand that after a lifetime of wearing baggy clothes, I am still in euphoria stage that I CAN wear anything I want!

    I am very happy that I had this surgery! I wish more people could say that. I feel a little guilty writing this and thinking about Susan, who had her original surgery with the same doctor at about the same time... Hope she gets better and all of the folks getting surgery soon, have a good outcome. Cheers to all of you!
    Last edited by Irina; 03-30-2015 at 10:59 PM.
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  2. #2
    Join Date
    May 2013
    Location
    Grove City, OH
    Posts
    275
    Irina,

    It's wonderful to read about your awesome outcome!
    Peg
    61 yrs old
    75 degree lumbar curve with thoracic kyphosis
    T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
    Working on healing in Columbus, Ohio!

  3. #3
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,163
    Hi Irina,

    I am so happy to read your great report…I know Susan is on all of our minds but she is tough and has a great attitude. I am sure reading your good news is helpful for those approaching surgery. Thanks for the great update.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  4. #4
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,639
    Irina

    Congratulations on 2 years.....its always nice to see that glowing report!

    2 years was where I felt my recovery was pretty much over.....or 98% done. You only know after the years pass...

    Susan will get through all of this......sometimes we just have to hang in there, but it all works out in the end.

    I am also in the 100% “happy I did it” club. Not 99%, 100%. With all the pain and worry over all those years, it just wasn’t worth it, surgery as scary as it sound’s, was the answer.

    I am forever grateful.....

    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  5. #5
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    92
    Irena, I am happy to hear you are doing so well. Your two year check up sounds wonderful.
    It is good to see some one with a good outcome. Especially since my surgery is only two weeks away, i have been thinking about Susan a lot and hope she will soon recover. She has had a tough time of it.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused to S1 with screws in pelvis

  6. #6
    Join Date
    Apr 2012
    Location
    San Jose, CA
    Posts
    570
    Hi Marianne,

    Good luck with your surgery! You probably can't wait to get it over with. For me, anticipation was worse than recovery. Wishing you a successful surgery and speedy recovery.
    Last edited by Irina; 04-01-2015 at 10:14 PM.
    I am stronger than scoliosis, and won't let it rule my life!
    45 years old - diagnosed at age 7
    A/P surgery on March 5/7, 2013 - UCSF

  7. #7
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,702
    Irina,
    Congratulations on a good 2 year checkup. I understand your hesitation about posting, however, those contemplating surgery have to know that most people have good results from scoliosis surgery. It may not seem that way when reading the forum, but I have to think it is because many who are doing well no longer post.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  8. #8
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    Congrats on your milestone, Irina. Everyone loves to hear about a good report, including, I'm sure, those who're struggling.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  9. #9
    Join Date
    Jun 2013
    Location
    Muskoka, ON Canada
    Posts
    92
    Thank you Irene.
    Marianne
    rotoscoliosis, subluxation and spinal stenosis
    Surgery April 15, 2015 at age 67
    T11-L5
    Decompression with multiple discectomies
    Concord cages @ L2-3, L3-4, L4-5
    Osteotomies and local bone grafting
    Revision Feb.22, 2018
    Replaced rods
    Took out L5 disk to free up nerves
    Used BPM to help with fusing
    Fused to S1 with screws in pelvis

  10. #10
    Join Date
    Jan 2012
    Location
    Yacolt, WA
    Posts
    1,548

    Awesome 2 year report!

    Thanks for sharing the Good news about your 2 year visit. I am SO happy for you! Please never hold back from sharing your good news because some of us (moi) are having problems. Hearing your good news makes me happy and gives my energy to rehab even more! You are my role model!
    Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal Spinal Cord Injury T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L5 screw

  11. #11
    Join Date
    May 2010
    Posts
    347
    Irina,you must be feeling very good about the two year report! Yahoo!!!! I go for my two year follow up May 20th in St. Louis with Dr. Lenke. I hope I have a good report like you. I have a few issues with the neck~~ but I think that's just something that happens over the years. Have fun with your newly found freedom!!!
    But don't overdo that can happen when we feel so good and have been told we are free to do all the things we couldn't do before. You are amazing! Warmly, Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  12. #12
    Join Date
    May 2010
    Posts
    347
    [QUOTE=susancook;162743]Thanks for sharing the Good news about your 2 year visit. I am SO happy for you! Please never hold back from sharing your good news because some of us (moi) are having problems. Hearing your good news makes me happy and gives my energy to rehab even more! You are my role model!QUOTE]

    Susan, I hope you update us soon. Hope you are fine!!! I sent you a card. Linda
    Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
    Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
    This started adult onset scoliosis
    July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
    Oct.20th 2010, extended rods to T4 / did osteotomy at L3
    Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
    May 30th 2013 revision
    May 8th cervicle surgery 2016
    May 31st Dr. Gupta revision 2017

  13. #13
    Join Date
    May 2012
    Location
    El Centro, CA & Baja California, Mexico
    Posts
    193

    So happy that you shared

    It is as important to share success as well as not. This is a place to learn from each other.

    There are so many of us that need the good news as well as a place to vent our frustrations. There are many many good, well trained, surgeons and then there are millions of different permutations of each one of us, 'the patients'.

    Our bodies are not the same and the procedure done is never going to have the same outcome. Circumstances are so different for each and everyone of us.

    We can only do our best by doing our homework.
    - Find the best surgeon
    - in the best location
    - where we have physical and/or moral support and
    - where our imedical nsurance would cover
    - have the best attitude
    - be in the best physical health as possible

    And hope to come out with the best outcome possible.

    Best of luck to everyone, all we need is a little of LUCK on our side.
    Gardenia
    Baja California, Mexico & El Centro, Ca
    pre-surgery 75° and 89° - post ?
    Dr. Bridwell Nov 27, 2012 @Barnes Jewish @62yrs
    T11 to Sacrum Dural leak at L2 & L3 ccmail4g@gmail.com

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