Hi all
I am a father with 6 years old girl who was diagnosed with idiopathic scoliosis in march 2014. On June the orthopedist measured the angle and it was 20 degree. We were told just to wait and we scheduled the next visit on beginning of January. On January the curve was worsen to 25 degree and our orthopedist said that our daughter should wear a brace. On that moment was like we were the most unlucky people in the world. While we were driving back home we were without words. The problem is that we don't have orthopedist specialized in scoliosis in Albania so had to go in Greece. We ordered the brace in Ioannina and we arranged the visit with orthotist after two weeks. After almost one month we went in Greece to put the brace on and this day was even worse. Our daughter couldn't even breathe. She was walking like a robot. It was like a bad dream that would not never ended. The first two days were nightmare. She was crying,complaining. She could not sleep the whole night. After the first week things start to change. She started to get used with her new white friend. Now she has got some callus on the rib region where the brace tight her more. She feel some pain on axilla and hip region as well. Today is one of our happiest day. We performed an X-ray after 20 days wearing the brace and the correction was great,close to 0 degree.
I am posting this because i need advises from other parents that have children diagnosed with JIS. How the scoliosis goes on with the years.
Please help me your experiences.
Dajl father of Ajl 6 yrs old
diagnosed with JIS 20* on March 2014
08/01/2015 thoracic 25 degrees
05/02/2015 Boston-Cheneau 18 hours
28/02/2015 X-ray with brace closed to 0*
next scheduled x-ray w/o brace will be in 6 month
I am a father with 6 years old girl who was diagnosed with idiopathic scoliosis in march 2014. On June the orthopedist measured the angle and it was 20 degree. We were told just to wait and we scheduled the next visit on beginning of January. On January the curve was worsen to 25 degree and our orthopedist said that our daughter should wear a brace. On that moment was like we were the most unlucky people in the world. While we were driving back home we were without words. The problem is that we don't have orthopedist specialized in scoliosis in Albania so had to go in Greece. We ordered the brace in Ioannina and we arranged the visit with orthotist after two weeks. After almost one month we went in Greece to put the brace on and this day was even worse. Our daughter couldn't even breathe. She was walking like a robot. It was like a bad dream that would not never ended. The first two days were nightmare. She was crying,complaining. She could not sleep the whole night. After the first week things start to change. She started to get used with her new white friend. Now she has got some callus on the rib region where the brace tight her more. She feel some pain on axilla and hip region as well. Today is one of our happiest day. We performed an X-ray after 20 days wearing the brace and the correction was great,close to 0 degree.
I am posting this because i need advises from other parents that have children diagnosed with JIS. How the scoliosis goes on with the years.
Please help me your experiences.
Dajl father of Ajl 6 yrs old
diagnosed with JIS 20* on March 2014
08/01/2015 thoracic 25 degrees
05/02/2015 Boston-Cheneau 18 hours
28/02/2015 X-ray with brace closed to 0*
next scheduled x-ray w/o brace will be in 6 month
Comment