Results 1 to 12 of 12

Thread: The loss of Tonibunny

  1. #1
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901

    The loss of Tonibunny

    I don't know where to put this post.

    The beautiful spirit that was Tonibunny has been lost.

    Life is beyond unfair.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  2. #2
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    Sharon,

    That is shocking. Do you know what happened to her?
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #3
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    I know some broad outlines.

    She had some lumps in her breast and a doctor misdiagnosed them as benign. Her cancer metastasized to her liver and she fought it for a few years.

    This did not have to happen. It was malpractice.

    People who have had more than a few radiographs need to be vigilant not only in getting imaging but also in getting second options when the stakes are high.

    This situation is so devastating.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #4
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,809
    OMG, how horrible. I am so sorry to hear this news and will keep her family in my thoughts.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  5. #5
    Join Date
    Mar 2005
    Location
    east coast
    Posts
    359
    Oh my....

    I can't believe this.
    30 something y.o.

    2003 - T45, L???
    2005 - T50, L31
    bunch of measurements between...

    2011 - T60, L32
    2013 - T68, L?

    Posterior Fusion Sept 2014 -- T3 - L3
    Post - op curve ~35



  6. #6
    Join Date
    Jan 2008
    Location
    NC
    Posts
    8,901
    We were friends on Facebook. She was a gifted artist and musician. She had many interests. She was among the most knowledgeable people on the scoliosis forums.

    I never met her in person but she came across as so magically good.

    When she became sick and was given a tough diagnosis, I sent her Gould's essay on the median is not the message. This heartened her. Gould far outlived his original prognosis and I hope Toni beat the median by a mile also.

    I cannot stop thinking of her and how big the loss must be for her husband and family. How can such an essence be gone?
    Last edited by Pooka1; 02-27-2015 at 07:44 PM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #7
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    I am also quite sad about her passing........she was so young.

    She had an incredible knowledge of scoliosis, and was probably the best scoliosis forum poster.... All her posts were spot on.

    She made it through 2 thoracotomies which are no piece of cake.....and she had the best attitude, and was such a strong individual.

    Last night, I was wondering why she wasn’t posting, looked at her final post on Christmas eve and I knew something was very wrong.....

    She is a huge loss to the scoliosis community.....and we will miss her deeply.

    Ed
    (Rod Stewart)
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  8. #8
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,690
    I am sorry to hear this and feel for her family and friends.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  9. #9
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,261
    I'm shocked. She was so bright and knowledgeable. I remember her from the English forum and this one. She'd already had enough to deal with. Life is so unfair sometimes.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  10. #10
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,793
    I agree. She got dealt a pretty crappy hand in terms of health issues, but she played it so well. I'm so sorry for her family and friends. It's a great loss.
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    If you've signed up and are having trouble posting, please check your spam folder. An email was sent to the email address which you subscribed. You have to follow the instructions in that email. Done that and still having trouble posting? Contact Joe O'Brien at jpobrien@scoliosis.org.

  11. #11
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    I just found this out on the English fourm. I Feel really bad about her passing. She was a strong and supportive lady
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  12. #12
    Join Date
    Jul 2008
    Location
    west midlands, UK
    Posts
    152
    It was here that Toni suggested the UK forum to me (I didn't know of it) so I posted regularly there where Toni and many others supported me through my surgery and recovery. She was such a kind gifted person who should not have been taken so young. When she found out that my dad had been diagnosed with Cancer she took the time despite being unwell to reassure me that he will get through his chemo (we did lose him 18 mths later). Toni fought her cancer so bravely and always stayed positive.

    Toni was very talented at many things and she sent me some dolls house food for my dolls house that she had been making-it is so realistic and I will treasure it. She also sent me a postcard with one of her hand painted pictures (a fairy) on which she enjoyed painting for people.

    She is and will always be very missed
    Fused T2-L4 with costoplasty on 3/11/10

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •