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Thread: post-op and needing some answers

  1. #1
    Join Date
    Nov 2014
    Location
    kansas
    Posts
    6

    post-op and needing some answers

    I just had revision surgery done 19 days ago. They had to use bone morphogentic protein this time. To make sure non union occurred again. I had a low hemoglobin level. it was 9.6 at discharge. since being home I've noticed I'm always feeling really cold during the day. When normally i'm the last person to get cold. Then at night I have been having night sweats. I only take 10 mg of oxycontin extended release at night now. I thought maybe it was causing my night sweats. so I went without it one night and still had my night sweat. I have gotten no answer from my Dr. yet and I emailed him a week ago. SO just thought id see if anyone on here has ever experienced this.

  2. #2
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,160
    I think feeling cold all the time is pretty common. Many have mentioned it here. Do you have any fevers?

    I remember having sweats when I was weaning down my oxycodone doses.

    How are you feeling otherwise?
    Gayle, age 49
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    5/10 VBS Dr Luhmann Shriners St Louis
    5/16 6 yrs post-op, 24*T/ 22* L, mild increase in curves, watching

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #3
    Join Date
    Oct 2007
    Location
    Indiana
    Posts
    1,974
    It's been awhile for me, but I remember having difficulties with body temperature regulation. You are probably on course. It's just really tough with so many things for awhile. Hang in there. It does get better, but go ahead and ask your doctor when you are not sure about things. (and ask us also!) Best wishes as you rest and recover.
    66 and still heartbroken...
    2007 52 w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior spinal fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15
    2014 DXd w/CMT (type 2)

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  4. #4
    Join Date
    May 2009
    Posts
    3,745
    hi bubba
    congratulations on the surgery....

    i have not had surgery...but have been on oxycontin for
    a while...i have no sweats, at any hour, from the medication.

    wishing you an uneventful and successful recovery
    jess...and Sparky, the wonder puppy

  5. #5
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    6,793
    Quote Originally Posted by bubba.smith29 View Post
    I just had revision surgery done 19 days ago. They had to use bone morphogentic protein this time. To make sure non union occurred again. I had a low hemoglobin level. it was 9.6 at discharge. since being home I've noticed I'm always feeling really cold during the day. When normally i'm the last person to get cold. Then at night I have been having night sweats. I only take 10 mg of oxycontin extended release at night now. I thought maybe it was causing my night sweats. so I went without it one night and still had my night sweat. I have gotten no answer from my Dr. yet and I emailed him a week ago. SO just thought id see if anyone on here has ever experienced this.
    Hi Bubba... If you haven't already done so, please take your temperature. If your temperature is elevated, it needs to be reported to your surgeon.

    "To make sure non union occurred again" ha ha... glad I'm not the only one who doesn't always make sense. :-)

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Dilbert
    I'm sarcastic... what's your super power? --Unknown
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
    ---------------------------------------------------------------------------------------------------------------------------------------------------
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  6. #6
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    758
    I can relate. I was freezing and the in a minute sweating. One minute later freezing again. No fever though. I have low blood count and low thyroid. It is a lot for the body to recover from.

  7. #7
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    3,531
    Quote Originally Posted by bubba.smith29 View Post
    SO just thought id see if anyone on here has ever experienced this.
    Oh yeah....

    I was freezing most of the time, but then could start sweating just a minute later.....and had my highest gas bills during my recovery period. An electric blanket might not be a bad idea....

    Its a careful balance of dose and pain...a 20% reduction each week is a rough guideline for reduction. This of course being 5 weeks.....

    Going from max to clean in a few weeks after scoliosis surgery is never an easy thing.....and pain levels and how we cope with them have to be analyzed. There is going to be some level of pain involved at some point, in my case it was upon termination after I was tired of the constant battles with constipation and having to have to force myself to eat. Eating is extremely important right now since our nutritional levels get slammed upon these surgeries. Healing is all about nutrition and walking delivers that nutrition by stimulating blood flow.

    My temperature was taken every day for 3 months....

    Hang in there, you will get there

    Ed
    49 yr old male, now 58, the new 53...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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