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Thread: Two revision surgeries

  1. #16
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    May 2008
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    reno,nevada
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    Glad to hear things went well Jackie....

    Hang in there

    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #17
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    Dec 2008
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    It is still early but I think it is much better. It would be great to get off the meds. I should go home

  3. #18
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Jackie--Hope this is the answer for you! Good luck and many positive thoughts for a full recovery for you! Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  4. #19
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    Dec 2008
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    illinois
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    I saw the Dr on Thursday and he was pleased so far. I can't say that the nerve is completely better but it has moved over further towards my side. He said that was a good sign. It is much easier to have the hardware taken out as compared to putting it in. However I am amazed at the length of the incision. It is about 14 in long. The other really good news is he said the fusion is solid. Yeah!!I still need to have the other surgery but the MRI of the cervical found growth on my thyroid . The ultra sound confirmed it and I have a biopsy next week on the growth. I know that having a lot of X-Ray s can cause these problems. And us Scoli people get a lot of them. Any one else had a problem with this?
    Last edited by jackieg412; 09-10-2014 at 08:36 AM.

  5. #20
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    Well I did get the removed hardware from the hospital yesterday. It is very interesting and looks a lot like visiting a hardware store. It costs a lot more. It is completed with screws and nuts and bolts. The "domino" connector looks just like a half of a domino. It is weirder but like a small box. No wonder it bothers a person. The cross connector is a lot larger than it appears in X-Ray. So far the nerve pain isn't gone but better. The Dr says to be patient as a nerve heals slowly. I am taking less meds and feeling less nerve pain. I think that means it will get better.
    Last edited by jackieg412; 09-10-2014 at 08:37 AM.

  6. #21
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    Jun 2011
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    Southern CA
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    Hope you get better soon

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  7. #22
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    Jan 2012
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    Yacolt, WA
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    Quote Originally Posted by jackieg412 View Post
    Well I did get the removed hardware from the hospital yesterday. It is very interesting and looks a lot like visiting a hardware store. It costs a lot more. It is completed with screws and nuts and bolts. The "domino" connector looks just like a half of a domino. It is weirder but like a small box. No wonder it bothers a person. The cross connector is a lot larger than it appears in X-Ray. So far the nerve pain isn't gone but better. The Dr says to be patient as a nerve heals slowly. I am taking less meds and feeling less nerve pain. I think that means it will get better.
    Jackie, What are you going to do with your hardware? A collage? I only have 2 screws removed, but I am thinking earrings? My general surgeon says that if nerves are going to grow back, they do so t 1 mm/day.
    I hope that you continue to have decreased pain. Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  8. #23
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    Susan,I haven't decided yet but I like your idea. It is my domino that I want to display. It is about an inch square. Maybe half an in thick. I was thinking it may look good on a necklace. It will cause a lot of questions to be asked. My real thoughts are all over the emotional scoreboard. Mine just caused pain and yours did so much more. I can't even imagine how you may feel. When I look at mine I almost get teary . My physical therapist said he would put them in his display but I can't part with them yet. Don't ask me why I feel attached to pieces of metal. I did want to see them and am glad that I was able to get them. But it a lot of nuts and bolts for sure. Thank you for your ideas and I welcome more.

  9. #24
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    Jan 2012
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    Quote Originally Posted by jackieg412 View Post
    Susan,I haven't decided yet but I like your idea. It is my domino that I want to display. It is about an inch square. Maybe half an in thick. I was thinking it may look good on a necklace. It will cause a lot of questions to be asked. My real thoughts are all over the emotional scoreboard. Mine just caused pain and yours did so much more. I can't even imagine how you may feel. When I look at mine I almost get teary . My physical therapist said he would put them in his display but I can't part with them yet. Don't ask me why I feel attached to pieces of metal. I did want to see them and am glad that I was able to get them. But it a lot of nuts and bolts for sure. Thank you for your ideas and I welcome more.
    The necklace idea is cute! So, you get questions! To most people just say, "I just like it because it is different".....none of their business unless you want to share.

    Sure, you have a love-hate relationship with the hardware, but it was you....a part of you. If you truly love your PT, maybe give up one piece, but maybe not. While the hardware hurt, it did make you whole and your back is fused because of the hardware holding the spine in place. The surgery to remove everything is a smaller deal than the original surgery, but still, it was a big surgery. Emotional? I cannot imagine that you would not be emotional.

    Maybe I should wear one of my screws through my nose! Amazing that 2 screws can cause such destruction to the spinal cord. There is a part of me that wants to cut them up into little pieces like a punishment. I am angry....but I should not take it out on the screws?? "Screwed by the screws" just about sums it up. I am really unsure what they look like or how they might make into earrings. Maybe just carry them in a little velvet pouch around my neck? I will keep you posted and post a copy of my jewelry decision.

    Take care, you and I are both healing and it will take a while
    Hugs, Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  10. #25
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    illinois
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    Susan, I wonder if the screws in the pouch thing would be like a voodoo potion to ward off any more evil. Just a thought! I wish you could see the little nuts and bolts. Maybe spacers for a bracelet?

  11. #26
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    Quote Originally Posted by jackieg412 View Post
    Susan, I wonder if the screws in the pouch thing would be like a voodoo potion to ward off any more evil. Just a thought! I wish you could see the little nuts and bolts. Maybe spacers for a bracelet?
    So many possibilities! I'm thinking earrings but am not quite sure what the screws look like. Might be more appropriate for Halloween!

    Hoping that you pain is decreasing. Remember that the change will be slow as the body always takes a while to adjust. I am so happy that you are experiencing some decrease in discomfort.

    Keep smiling! Susan
    Adult Onset Degenerative Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Severe disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 in 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal surgery for Spinal Cord Injury at T4,5 sec to PJK
    2015: Revision Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone + prayer

  12. #27
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    Dec 2008
    Location
    illinois
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    Susan I did not mention that I have the piece of my rod that was cut out. But I have small wrists and maybe able to be bent in a circle for a bracelet. I can use the other pieces as charms. But as you said it may be more appropriate for Halloween. It is an interesting mix of hardware store products. Maybe I can make a small sculpture. Just a little welding required. The rod piece is so rough cut it Must have been interesting to cut out. All and all I am ok. I am decreasing the meds and doing well. Now I have a new issue . We deal with it this week. I need to have a biopsy of the thyroid because of a growth that was found on the cervical Mri . The ultrasound showed it to be suspicious so thus the biopsy. I had to wait until I could lay on my back. So it is on Wednesday. More fun when you can't always get in the position that they need you in.

  13. #28
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    Location
    Southern CA
    Posts
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    Hope your procedure goes well

    Glad that you are doing better

    Melissa
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  14. #29
    Join Date
    Dec 2008
    Location
    illinois
    Posts
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    First surgery is healing well and today I cut another med from my treatment. It is exciting to get off the nerve meds after 3 plus years. It is not gone but improving. I will find out on Tuesday if the thyroid needs any more treatment. The biopsy was easy. And most of these things are fine. But the concern about so many X-Ray s and taking them most of my adult life.I worked in the dental field and took a lot of them over almost 30 years. If everything turns out okay then I will see the spine surgeon for the cervical surgery in a few months. My right arm keeps going numb.but everyone can't work on the neck at the same time.

  15. #30
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    May 2008
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    reno,nevada
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    Jackie, glad to see you improving from your hardware removal surgery.....

    I know what you mean about the neck.....Mine was roasted when I had my scoli surgeries and found this out in my hospital reports. I guess they didn’t want to tell me or give me more bad news......”Oh, by the way.....”

    I sure did have great results from the Medrol pack and Diclofenac. It was a miracle how well they worked......These 2 herniation’s did contract somewhat...

    I have read that the CT scans are equal to 400 coronal x-rays. Its those you want to keep to a minimum......We also get nuked when we have our surgeries done from the O arms.

    Hang in there
    Ed
    49 yr old male, now 59, the new 55...
    Pre surgery curves C12,T70,L70
    ALIF/PLIF T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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